Plexus question

[SooziQ]

Has anyone tried using this to help with pain and energy management??

[immisceo]

Could you be more specific? Many things on the internet use this term, and I've never heard of it in relation to treatment of MS symptoms before. What is plexus, in this context?

[immisceo]

Look at the time stamps on these posts. It's clear Ess wasn't speaking to you (from January). She was speaking to whoever posted on the day she responded. I assume she reported the post in question as spam (the upper right corner of every post provides the ability to do this) and it was duly removed by the admin staff of medhelp.

Directly plugging something in order to profit from it is an abuse of the terms and conditions of this website. I've used the report function several times myself. MS is ripe for misinformation and snake oil sales, and I personally feel very motivated to stop the flow of misinformation where I can, especially as these posts are publicly searchable. This does not apply to you sharing your personal experience. Again, I can only assume the person who posted after you was selling something or stating direct medical advice. (another T&C no-no)

If you come to the community at breakfast and see a thread near the top that appears to have had nothing written on it for months or years, it's probably because the actual most recent post to that thread was removed. But as with all text-based communication, it can cause wires to be crossed as it seems to have done here. It's a game people play on facebook to - say something inflammatory to get someone to respond viciously, delete your original statement, and have the respondent coming off at best looking a little unbalanced because the context is completely removed. LOLs, I guess.

Just always look at the dates on these threads. Ess didn't just hunt down a post from January to randomly go off on. Also, things can be critical *and* helpful. That's why I've stayed on this particular forum for four years when I've started and stopped on multiple others in the interim.

[cuttersmom]

I am not new to MH, have been here for years, just don't post very often as I find more responses are critical rather than helpful. I answered a question that was asked and don't see anywhere, anyone "plugging" a product, and I certainly am not. I've used it for weight loss (which is the purpose of it), lost weight, but saw no difference in MS symptoms. They have a nerve health supplement, which is probably where the question came from, which some have claimed has helped with pain, and I'm guessing is promoted that way, but I don't ever remember a claim to be an MS remedy or treatment.

[essdipity]

When someone brand new to MH and our forum joins to plug some product, all my spam antennae go into overdrive. I have reported this. If this is an error, then let's here it from some old-timers who have had good results with this so-called remedy.

ess

[cuttersmom]

I used it last year for about 6 months. Loved it for weight loss and energy, I felt great, but did not see any difference in any MS symptoms, trying the different products that they have. Going to start again here soon! They do have trial packs, I believe, so you can get an idea.

[immisceo]

Please read this and save your money. http://www.fda.gov/ICECI/EnforcementActions/WarningLetters/2014/ucm411287.htm
The FDA has already had to tell them to stop making false claims about the product's benefits. You will no longer find these claims on their site, but that they made them to begin with means they're full of it.

Multi-level marketing is a serious red flag on its own. If people are claiming the results you mention, it's likely because they're desperate to off-load the subpar product they bought for way too much or recruit others to sell it as well. They are making claims the company itself has been forced by the Government to back-peddle on because the claims were false.

There are already medications out there to help us with pain and fatigue and our neurologists are happy to discuss these options with us. If they are not, we can fire them. Anyone else is just out to make a buck.

If you are skeptical, then you know that what anyone claims about a product or states as personal experience is just anecdote and doesn't tell you anything of real use like "what's in this?", "who created it?", "what does it claim to do and where is the objective proof it does it?".

My vote? Save your money. And if you're feeling feisty, report the claims of MS pain and fatigue help, if they show up in any form of media, to the Federal Trade Commission.

I go to town on false MS treatment claims I see over here too with our Advertising Standards Agency. Those with chronic diseases are a rich target for these kind of gimmicks. They say "pick your battles", and this is one I fight.

[SooziQ]

Plexus is a vitamin, etc. drink that some people I know are selling and claim that it can help with MS pain and energy.  It's a multilevel marketing product.  I'm a sceptic so was just wondering if anyone has tried it.  A lot of folks are using it for weight management as well.  I've only heard of it, never tried it.