Possible MS?! Need your thoughts

[Kadancekatie]

I am 25 years old and have been experiencing a lot of symptoms since the birth of my first child. It all started with vibration in my feet, it felt like a phone was going off under me and it was constant. Then the insect sting feelings began along with what I would call extreme twitching of my extremities. My vision started to blur every once in a while but I thought nothing of it. Then I got sick with sinusitis and it lasted 8 months! During the last 3 months of the sinunitis I lost all hearing in my ears. I went to a ear nose as throat specialist and they determined it was nerve damage and they wanted to did a balloon synoplasty, which I declined. Over time I eventually got most of my hearing back. A few months past when my symptoms seemed to subside. Then I started to experience really bad cramping on my legs and feet (especially my feet).the numbness and vibration travels up my calves but I could still walk. I had also been experiencing loss of balance, running into walls constantly. Then the double vision came along and I went to the eye doctor 3 months after that started and they said it could be due to using electronics to read, so I got glasses and thought okay one thing has been fixed.... oh o forgot to mention around the time the sinusitis began I had numerous bacterial infections and kidney infection UTIS, I eventually got to where I was barely peeing and in a lot of pain! I would take AZO pills on a regular basis. A few more months go by and then I get a bout of pneumonia using about 50% of my lungs. So I’d go to the doctor and every other month it would be back again even worse. After 4 pneumonia’s, I was outside one morning after church and I notice a gray fuzzy blob in my right eye I tried to was my face to get it out with no such luck. So I give it a few days... we’ll 2 weeks and it was just getting worse and worse so I call the eye doctor and they have me come in right away. They ran every test available Bd found that I had optic neuritis. The doctor told me to go straight to the hospital but I couldn’t for 3 days (family issues arises) so I go the following Monday I get in to see a neurologist. And he runs every test spinal tap negative, mri of brain only negative except for the lesionbon the optic nerve. He asks if I have other symptoms and I didn’t think that my issues were related so I said no , ( by this time I was so slow to speak an had no memory AT ALL) so he schedules me to see an optic neurologist which I’ve been waiting to see for 5 months ( I go next month on Nov. 22) since then I’ve had 5 more bouta of pneumonia all acccompanied by a uti. Throughout this ordeal I’ve had huge memory loss and feel so dumbed down! I am in pain everyday and it’s just escalating. They are so many more weird symptoms like feeling of water dripping on me, patches of numbness and pins and needles. I feel so awkward when I walk. Oh and I also have fibromyalgia. I just don’t know what to do, I know something is severally off with me I’ve never been a sick person! Please I need someone to talk to and to tell me what you think. I feel crazy but you know when something is wrong with your own body!

[supermum_ms]

[POST SPLIT SO IT'S EASIER FOR pwMS TO READ]

"I am 25 years old and have been experiencing a lot of symptoms since the birth of my first child. It all started with vibration in my feet, it felt like a phone was going off under me and it was constant. Then the insect sting feelings began along with what I would call extreme twitching of my extremities.

My vision started to blur every once in a while but I thought nothing of it. Then I got sick with sinusitis and it lasted 8 months! During the last 3 months of the sinunitis I lost all hearing in my ears. I went to a ear nose as throat specialist and they determined it was nerve damage and they wanted to did a balloon synoplasty, which I declined. Over time I eventually got most of my hearing back.

A few months past when my symptoms seemed to subside. Then I started to experience really bad cramping on my legs and feet (especially my feet).the numbness and vibration travels up my calves but I could still walk. I had also been experiencing loss of balance, running into walls constantly.

Then the double vision came along and I went to the eye doctor 3 months after that started and they said it could be due to using electronics to read, so I got glasses and thought okay one thing has been fixed.... oh o forgot to mention around the time the sinusitis began I had numerous bacterial infections and kidney infection UTIS, I eventually got to where I was barely peeing and in a lot of pain!

I would take AZO pills on a regular basis. A few more months go by and then I get a bout of pneumonia using about 50% of my lungs. So I’d go to the doctor and every other month it would be back again even worse.

After 4 pneumonia’s, I was outside one morning after church and I notice a gray fuzzy blob in my right eye I tried to was my face to get it out with no such luck. So I give it a few days... we’ll 2 weeks and it was just getting worse and worse so I call the eye doctor and they have me come in right away. They ran every test available Bd found that I had optic neuritis.

The doctor told me to go straight to the hospital but I couldn’t for 3 days (family issues arises) so I go the following Monday I get in to see a neurologist. And he runs every test spinal tap negative, mri of brain only negative except for the lesionbon the optic nerve.

He asks if I have other symptoms and I didn’t think that my issues were related so I said no , ( by this time I was so slow to speak an had no memory AT ALL) so he schedules me to see an optic neurologist which I’ve been waiting to see for 5 months ( I go next month on Nov. 22) since then I’ve had 5 more bouta of pneumonia all acccompanied by a uti.

Throughout this ordeal I’ve had huge memory loss and feel so dumbed down! I am in pain everyday and it’s just escalating. They are so many more weird symptoms like feeling of water dripping on me, patches of numbness and pins and needles. I feel so awkward when I walk. Oh and I also have fibromyalgia.

I just don’t know what to do, I know something is severally off with me I’ve never been a sick person! Please I need someone to talk to and to tell me what you think. I feel crazy but you know when something is wrong with your own body!"

[supermum_ms]

Hi and welcome,

From what you've mentioned I think your more likely dealing with a chronic or reoccurring bacteria infection, eg bacterium Mycopasma which causes an atypical pneumonia called Mycopasma pneumonia (sometimes called “walking pneumonia” and often has milder symptoms than “typical” pneumonia) and....

is commonly associated with secondary bacterial infections (eg ear infections, sinusitis, uti's etc), as well as Optic Neuritis (ON), peripheral and central nervous system symptoms along with many neurological symptoms.

I would suggest you contact your neurologist and inform him/her of your recent medical history, because it's highly unlikely to be unrelated and the information will definitely aid in diagnosing and the potential treatments!

Hope that helps....JJ