I'm not for sure if occipital neuralgia is what I have....but sometimes when I bend my head a certain way, I feel like something has grabbed the back of my head with a lightning bolt/electrical shock. It almost feels like I'm going to black out when it happens. The sensation starts towards the upper part of my neck on my right side, and then fans out like a few fingers/hand into the back of my head on the same side. It's instantaneous and then after it happens, it goes away until the next time. It doesn't last, like a headache might.
Has anyone else experienced this and do you know if it might be related to my MS?
Oh, another question - when I was at my neuro this last Fri, I brought up how my ear will start to feel like it's burning and then turn bright red, and feel hot to the touch. He asked if my neck is also stiff/tight. Well, of course I said that my neck muscles always feels stiff. He just wrote some notes. Any ideas of what he might have been getting at? He is ordering another c-spine MRI. I already know I have a lesion between C4-6.