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Problem with gilenya

I started gilenya yesterday and decided not to continue with such bad possible side effects. Now i feel awful feeling weak and feels like my hearts racing when it is actually slow
3 Responses
987762 tn?1331027953
COMMUNITY LEADER
bump?
382218 tn?1341181487
The occurrence of serious side effects with Gilenya is actually very low. Most people tolerate it well. It's the only DMD I've used that caused me to have no side effects aside from low WBC. Blood is monitored every three months to ensure they don't get too low. Liver function also monitored.

What did your doctor say about your heart rate?
2 Comments
Hi there, have you spoken to your Neuro or MS Nurse about it? Not used Gilenya but others who have will probably give you more detailed answers.

Hang in there
Nx
Was meant to be a new answer but put it in the wrong place - sorry
488198 tn?1493875092
A couple of years ago I lasted just 19 days on Gilenya after switching from Avonex, which I then returned to. Gilenya seemed to have adverse effects on my heart, and I was told I looked like my soul had left my body. No DMD is a free ride, but with several available you can find one that you can be more comfortable with.
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