Problems with Neurologist

[MamaSpenz]

Initial symptoms: "foggy brained" , Numbness of face, tongue all left side of head. Excruciating headache, blurred vision, loss of balance, difficulties with speech. Symptoms lasted 3 weeks, saw doctor 2 wks after onset of symptoms.
MRI & lymes test done  : large brain lesion found. Stroke and Lymes disease ruled out.
Lumbar puncture performed: abnormal results
3 months after initial "attack", shooting pains started in hand and feet, progressively got more frequent and worse. Cognitive skills deteriorating. Memory, getting "lost" in my hometown. Forgetting easier than ever!
I scheduled an appt with my neurologist after weeks of extreme fatigue shooting pains and fear.  My neurologist laughed in my face, he scoffed rolled his eyes and proclaimed that "MS does not cause pain!". 1 week prior to appt. I was taken to the emergency room by my mother because something was happening to my chest/heart. CT scan done, chest xray, and ekg done, heart was fine, "ms" hug was mentioned as a possibility for the horrifying experience!
I was brushed off by myy doctor as though "its all in my head!".

Symptoms I am concerned about, wondering if anyone has related experiences and or symptoms.
1. memory issues (losing things, forgetting words and sometimes conversations, difficulty with details)
2. Shooting pains in ears( stabbing, random)
3. and my biggest question is has anyone experienced Night terrors, awake nightmares, hallucinations/visions, sleep disturbances related to their multiple sclerosis?
Mine have been progressively getting worse , happens when I'm sleeping or waking, seeing scary things, spiders etc.
Just had a visual evoked potential test done, waiting for results!
Also had PCP get me a new referral to another Neurologist, perhaps one who will listen to my symptoms and at leat help me to get to the bottom of the pain, and scary unnerving mental issues at this point!

[Sumanadevii]

Here is a reporter on air having a migraine.  It may surprise you.


http://www.youtube.com/watch?v=423JhqFygI4

[sllowe]

Mama,

Welcome! Is the doc that ordered the VEP the same one who said MS does not cause pain? YIKES! Couldn't be more wrong about that - unless doc was referring to an initial complaint. In that context I can see where MS would not be the docs 1st concern. But, to say MS does not cause pain is completely inaccurate. We have an excellent health page on pain and MS if you have a chance to look at our health pages. Also, pain can often be a secondary issue to a very MS related symptom. For example, if you go to the doc for pain in all your joints, the farthest thing from a docs mind would be MS (my opinion) vs going to the doctor for pain cause by spasticity which is directly related to your MS.

Couple questions for you - did the doctor tell you he/she was concerned about MS? And do you know what has been ruled out so far? Suma is right, headache/migraine can cause what you describe too - but we are not docs and sure can only give you our best based on our knowledge set.

I can say that I can relate to the memory issues, loss of words, balance and speech issues But, so many diseases and syndromes have overlapping symptoms. I cannot relate to the night issues, hallucinations, etc.

I hope the new neuro serves you well, and that your PCP plays an active role in your care.
Thanks for joining us,
~Shell

[Sumanadevii]

I am not a medical professional but just want to share.  I have a daughter in law that has migraines and she has the same symptoms.  She doesn't get big headaches like most people think when they think migraines...but she does have night terrors,memory issues, loss for words, stumbling and shooting pains.

Just a thought.