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QuixI have a question regarding paresthesias

I am new to thie site ,I have been on the thyroid forum site,trying to find answers...I am a 39 year old female with no history of neurological problems or health concerns except thyroid problem.very healthy happily married with 2 children.No history of anxiety or depression .Until now!! I did have saline breast implants 3 years ago This is now a concern to me also ,wondering if they could be causing problems.

I will try to make this as short as I can.i Can of this year I was treated with radioiodine for a hyper toxic nodule on my thyroid affecting It's function,causing me to become hyperthyroid with symptoms of heart palp's.

therapy eliminated  nodule ,but approx 2 months later around march 2007 started getting tingling and numbness in hand and foot .I have had mild tingling in right hand before ,but always attributed it to my work I am a hairdresser part time.the tingling started to spread through most of my body face arms hands legs neck back ,really almost everywhere within 2 day's.They have continued every day all day for 6 months now every day all day.Even get a numb nose and thick tongue with some tingles.HOrrible can barely stand it any more .Starting to get very scared and depressed.affecting my quality of life,use to very active and I also have two small kids.


Also experiencing burning pain as well  A little dizziness,.No loss of balance ,a little tiredness of my arm muscles and quad's.no vision problems.I have ulnar nerve pain around both elbows that goes up into hands and affects last three fingers. and I get stiffness in hands but no loss of strength.Gate is normal. no dropping things or clumsiness.


My endo  said at the time she thought it was related to my thyroid problem and that it would take time to go away. tissues need to heal and that thyroid affects every cell ,organ in your body.I wanted some kind of drug or something for the pain.She gave me nothing,but my GP gave me klonopin which seems to help relax muscles and nerves a bit.

I went to two endo doc's to get two opinions and they both now do not think it is related to thyroid  because symptoms are lasting too long.and suggested neuro. went to top neuro where I live, He happens to specialize in ms, travels all over the world and speaks to people about the disease. I also have a girlfriend that is a ms researcher and she does not think I have the disease,she got me in tho have mri and my Neuro is her  friend that really helped!!He did brain mri  and c spine and eeg ,evp testing and a host of blood tests.Everything normal no lesions no abnormalities. my neuro said the pictures they got were very very clear  and of excellent quality, there was nothing ...no atrophy or lesions of any kind.(I know this sometimes means nothing.)   No
stenosis.only a bulging disc at c5 c6 slightly compressing spinal cord.I am getting burning tingling pain behind neck in that location.My fundi's were all norm except for minor absent abdominal reflexes in three quadrants and  my left big toe was slightly up with babinski test,but he did not seem concerned at all about these findings.

My Neuro believes that the chances of me having ms are very  very low and he does not think that I have it  Although he said my symptoms were suspicious, he said it was very good that all  finding's. were norm and that that was very reasurring.

When I asked him about doing an LP he said not at this time, it is not necessary. we have don all necessary tests .He said the only test left to be done is TIME. and to do the wait and see approach, to be positive, and to see him in a year to see how my symptoms are.He believes there is a high chance of them resolving on there own .But he has no ideas or at least he has not told me what he thinks are causing my horrible symptoms.My GP does not think it is ms because my symptoms are so diffuse and have lasted for 6 months every day without any change. She seems to think thyroid has triggered something and also anxiety OF COURSE .My Neuro said to come back to see him If I start getting more severe symptoms.


I am taking KLonopin .5 mg every day If I do not take it my symptoms are really bad!! still I even tried taking a trial run of synthroid for 3 months really hoping it would work but it did not.I need to know what is wrong with me.

My question to you Quix is do my symptoms sound like ms to you ?? or possibly fibro??and is it common to see people with paresthesias lasting for long periods of time without them going away for a time and then returning?
could it be progressive ms and not the relapsing remitting type? and in your opinion what do you think I should do.I am very frightened at the idea of having ms,I have two small children that I need to care for, and if I become disabled I do not know How I will cope.I am making myself sick with worry.I should mention I have been tested for lyme,lupus etc... I believe it was the elisa test .ALL NORM!!! ana normal as well

Thank you so much for taking the time to read my post
sorry it is so long.I really value your opinion,I have read allot of your posts.
   LJ39
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Avatar universal
Thank you so much for responding to my question.  I feel so much better now knowing  a little more info on ms and also that this may be indeed related to my thyroid problelms.  whatever it is I know that I will have to try to deal with the pain as best I can I need to try to stay positive for my family.I have had a complete work up for autoimmune diseases and all blood work done for vitamin deficiency.b12 and all of the rest.  they were all normal.I will have to just give my body time to heal and recover and see what happens.  You are really helping allot of people on this web site ,you are doing a fantastic job.  you should feel really good about the work you are doing here!! I hope you are feeling o.k. and hanging in there.Take care.

LJ39
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147426 tn?1317265632
Welcome to the forum!  I'm glad Chris (Momzilla) answered the sicone implant question.  what she told you is absolutely what I have learned and what I believe.

The paresthesias are well known complications of thyroid "out-of-whackedness"  (official medical term).  They can be diffuse as yours have been, and it seemed like you were having some muscle fatigue, too.  Is this correct or am I reading too much into?  I was always taught that the body heals from thyroid disease slowly, but I can't tell you how slow that is - many months I think.  Also, the blood levels return to normal long before the tissue levels do.  So it seems quite possible that these lingering numbnesses are likely do to that or some other problem.  

Has the neuro worked you up for other causes of paresthesias, like B12 deficiency, or B6 toxicity?  Have you been checked for diabetes?  As a hairdresser there are many chemicals that can be toxic and you should have the doctors go over these.

As for MS, given the excellence of the neuro and his attentiveness, combined with the opinions of your other doctors, I agree the MS is VERY unlikely.  Espcecially do not worry about having a "progessive" form.  There are two reasons that make this unlikely.  The first is that in progessive forms there are usually many, many lesions on MRI.  Second, in the progressive forms there is alsmost always a predominance of motor/muscle problems, like severe weakness, spasticity, and paralysis.  So MS doesn't rise very high on my list for things that are causing your paraesthesia.  You should, though, ask and make sure the doctors have looked for other causes.  

Also, since thyroid disease is often auto-immune, have you had a complete workup for autoimmune diseases, some of which casue parasthesias?

I hope this helps.  Quix
Helpful - 0
220917 tn?1309784481
Hi, LJ!   Welcome to the forum!  You've come to the right place!  I'm sorry you're getting scared.  You've got a lot going on.  Let's see what we can do for you.

I wonder if I could take on the q about the saline breast implants, since that is exactly what I do for a living?  I am a clinical study coordinator for a reconstructive  and plastic surgeon who mostly treat cancer patients.

The FDA approved the use of SILICONE implants just last November for the use of the general population because it was proven that there was no link to neurologic or rheumatologic disease.  Saline has been in use for much longer for the same reason.  The outer shell of saline implants is sort of BAKED silicone.  Once implanted, your body creates a protective scar tissue shell around the implant.  The FDA  (and the doctor I work for) believes the implants are so safe, they have been approved for use in breast cancer patients for almost 20 years.  

They are NOT what's causing your symptoms.  That I feel completely confident telling you.  

I also know that thyroid problems can cause tingling, but I'm not sure in what context.  High/low.  Is your thyroid problem under control?  I bet Quix will be along in a while, or someone else with experience in this who can give you some insight into this.

Please hang in there to see what others have to say.  Burning/tingling are not normal, but can be symptoms of other disorders.

Stick around and make yourself at home!

Momzilla*
Helpful - 0
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