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Rebif

Is there anyone using Rebif for MS?  if so how are you getting on with this treament?
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198419 tn?1360242356
Hi Lui915!
You happened upon an old post. Theres lots of things you can do to be more healthy. Can you tell us a little more. What are you thinking diet? Exercise?

I'm thrilled the Rebif is working for you - I'm on it too and doing well. Is this a new normal for you? Or, are you truly feeling like your old self.

Welcome to our forum! All will meet and greet you if you start a new post (this one is from 08), and I look forward to seeing you around.
-Shell
Helpful - 0
Avatar universal
its been a yr since I was dx with MS.  my dr recommended rebif so I took his advise.  at first, my left arm, my left leg and my left eye were not working properly; as i said, its been already a year and it could be said that I am back to normal.  

this disease is very scary.  i really want to learn as much as I can about it so here I am.  i take b-12, omega 3, v-d3 and v-C.  what else should i do to be a healthy MSER?
Helpful - 0
692025 tn?1232218094
Rebif was the first drug my Neuro placed me on, and I wasn't able to handle the drug too well.  Currently, I'm taking Copaxone and I'm not sick with the flu like symptoms. However, Rebif shows to be a little more effective.  Copaxone is working very slow.  I've been having problems and not sure what to do.  Although, I have plans to speak to my Neuro and go over my home charting to see what direction we need to go.  
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Avatar universal
Thanks for your letter about rebif.So glad that it is working for you.
Good Luck with trying for  baby.
Helpful - 0
Avatar universal
Hi Shell, Thank you for your reply.I can't tell you what it is to talk to someone who is sympathetic. It is very hard to see soome one you love go through this really bad time.As she has no friends (neither have we,her parents) nobody seem to want to know us now.
A my daughter has to do the injections manualy because she has trouble with gripping the injector. She is 41 and is currently living on her own,has a oldish dog for company .
She has had MS for 8 years with no remission. Only hope is the rebif working now.
I know this messing sounds depressing,but we do manage to have a laugh,as we both have a wicked sense of humour
All the best
Coopsy
Helpful - 0
198419 tn?1360242356
Like Bellaf, I'm on Rebif too and can answer questions - k?

-Shell
Helpful - 0
198419 tn?1360242356
Hi there,

I hope the Rebif does him or her well. I'm not sure, but since they were already on an interferon, and now getting this one which is a higher amount, maybe it won't take long for it to begin to slow progression.

I too hope the wheelchair is not perminent. Of course we don't mind you staying in touch. We're very glad to have you here on your relative's behalf. Please ask us anything - we're here for you and your family member.

How are you doing? Please keep us posted.
ttys,
Shell
Helpful - 0
Avatar universal
I love Rebif! It has worked VERY well for me and has definately slowed down my MS and i have not had a serious relapse since starting the medication.
I have been on Rebif for 6 years now and i have only just stopped taking it so that i can plan for a baby. As soon as i have a baby im going straight back on it.
No one likes giving themselves needles but i got used to Rebif after a while. It is a small needle and as it is subcutaneous you can use an autoject device which makes injecting alot easier and less scary.
At first i had flu like symptoms (nearly exactly 6 hrs after doing the needle) but if you have panadol one hour before the needle you will not have many symptoms and the flu like ones go away.
Only other problem ive had is injection site reactions but if you rotate where you do the needle and dont inject in the same spot for at least 2 weeks you should be ok.
It stings a little when the fluid goes in but this is very quick and after that i always feel fine and have no other reaction or problem.
If you use an ice or heat pack after the needle that helps.
If you have any more questions on Rebif i now consider myself an expert after injecting 3 times a week for the last 6 years!!!
Good luck x
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Avatar universal
Hi There
Hope you don't mind me keeping in touch.My relative is on rebif as i said before.Since she has gone fromm 22 to 44 she seems a lot worse. Been on 44 for about 2 weeks.I wonder if thats normal,if so when will we see the daylight (so to speak)
Due to have a review dec 8th at hosp
Coopsy
Helpful - 0
Avatar universal
Hi Shell
Yes very worried. Was having Avenex once weekly injections for about 4 years ,but changed to rebif Sept 2008, First 22 strength.Now 44 strength for nearly 2 weeks. Going for more steroids next week. Has to use wheelchair now.Hope this is not perminent.
Bye for now. Just taking my sleeping pills.
Coopsy
Helpful - 0
198419 tn?1360242356
Hi there,

Your post came through just fine.  No worries.

Ok, so your relative is on Rebif and currently getting steroid treatment.  This is relatively common with MS during a flare. And also, some Drs choose to combine this with the DMD (that is what they call the meds for MS - D-disease M-modifying D-drugs)

I'm sure our other members will chime in here who are more familiar with getting the steroids for flares.

How long has your relative been on the Rebif.  It does take awhile to be affective.  You know, it's really nice of you to gather info for your family member.  You must be worried.  

We'll help you to get your head around this treatment business.  It can be confusing.

The more you know, the more helpful you will feel for him, or her.  Hope we can put you in this position.
Be well,
Shell
Helpful - 0
Avatar universal
Hi Shell, Thanks for your reply. It is for a relative i am askin about.No flu symtoms, but has got worse ( as we were told) when first start of injections. She is having steroids as well.  Just wondered if anyone has had any success with Rebif.
Hope you get this message,as i am a novice on the computer.
All the best
Coopsy
Helpful - 0
198419 tn?1360242356
Dagnappit - I just typed nice post, and where it went, I'll never know.  Lets try this again..

Hi Coopsy,

I was dx'd last year and started Rebif shortly after.  I was on it for about 5 months and developed an allergic reaction, but I was on a couple other meds.  I had to stop all meds, and now, after about 7 months, I just started injecting again.

In the past, I had the typical flu-like side affects they speak of.  Are you researching the meds? Or, are you on on Rebif and need to change?  

Welcome to the forum.  You'll gain a lot of knowledge here, as well as friendships.  If you need more info I can dig up some past discussions on the DMDs.  To get more of a feel for what others have gone through w/the others ones as well.

Hope you are able to get back w/us and tell us a little more about you.

Hope to see you around,
Shell
Helpful - 0
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