Regroup...

[Heather3418]

I need to regroup.  I need your assistance.  With as fast as people are coming to the board, I cannot keep up with everyone.  So I'd like to ask, maybe it would be easier for all of us, if we could list our "forum names;" "diagnosed or undiagnosed;" and if not MS, then what your doctors are saying that you have.  If you would like, also put your age if you feel comfortable doing so, so it can give us all an idea just by looking, what "age group" these symptoms and diagnosis are affecting.

I'll start....

Heather3418 (Heather) age 54......diagnosed-1995 ......MS

[needanswers54]

Needanswers54:

Diagnosed MS in October, 2007.  Neuro states have had at least since 2001 or before.  Also diagnosed prior with fibromyalgia, multiple level degenerative disk disease, bilateral carpal tunnerl, weakness of peroneal nerve, disability of right arm and ankle, and others.  Possibly now have precancerous or cancerous situation rearing its ugly head.  But, my gut feeling is that it is just some more weird inflammatory with possible adjunct hormonal variation of some sort going on.  Who knows?  Lots of stress lately.  Tremors and rubberband and dizziness and some short-term memory problems and increased weakness, etc. feelings since pneumonia in December when I fell down the stairs and ripped the tendons in my foot and ankle.  Now, my pulse has gone from 59 with normal readings after walking to 182 after 3.5-4 minutes on the treadmill at half the speed.  Physician feels that my heart has been overwhelmed and could not compensate for the added security stress with the theft(s) and threats, particularly since my having pneumonia.  He basically said that he felt that I was just really worn down and my heart tried to compensate and became overhwhelmed.  My QT has now lengthened to a concern level and I am being holter-monitored.  No clearance for surgery for at least two months.

The other neuro states that there is no way that anyone could have all these problems.  S#@#@ him!  I have the MRIs and ECGs and lab work, and radiographs to show it.  I will never go back to him.  Sorry that this is so long.  God help us all keep out sanity and patience.  Lots of ear ringing, especially with migraines---unrelenting migraines since 1991 when my ANA went high.  Almost daily headaches, now.  Need morphine at times to relieve.  Have tried almost every preventative and been in drug studies for prevention and help without much avail.

[hbananas]

hbananas (Holly) 53, undiagnosed, One brain and 3 spinal lesions I know of, negative LP and VEP.  Symptoms are tingling and numbness in hands and feet, and side of torso, and I get weak and dizzy in the heat.

[julia111]

julia111 - Julia (age 40)

1995: Diagnosed w/ Fibromyalgia

2007 September:  Presented w/ neurological symptoms (numbness, weakness, stiffness in legs, increased pain & fatigue among others)

2008:  Re-diagnosed w/ fibromyalgia

Also diagnosed w/ Gluten Sensitivity - symptoms can mimic MS

[amas]

Anamaria,  42, Married w/3 children, Undx

Diagnosed with Hypothyroid 12/06 and Hypertension 4/07.  MRA 05/07 and MRI 11/07 showed areas of concern for MS - Done due to constant dizziness, unbalance and leftside numbness.  After researching, I  believe to have had symptoms for over a decade.  Awaiting LP to be performed.

[Want to feel well!!!]

Want to feel well!!! (aka Wanna)  

48 yrs old...undiagnosed (but NOT MS,Fibro,CFS,Lyme)

[humming4u]

humming4u,or cathy
51 years old, fibromyalgia for 14 years, 2005 head,face pain,fatigue(more then with fibro)
to neros, Mri=white matter, mom had ms, doctor said possiable /proable, clear sp,2ond mri=same,say nay for ms,.. for now,.. treating symptoms,and scared of neros.