I take Depakote and Trileptal for Neuropathic pain. I do not think they would make a diagnosis more difficult. They had me take them when I had a EEG and other sensory testing. They did not hinder my basic Neurological testing reflexes and such.
My personal feeling is if you can get relief from symptoms before a diagnosis that is good. Why suffer more than you have to?
Yes, anti-seizure medications (Tegretol, Gabapentin, Lyrica, etc) are used to treat neuropathic pain (things like Trigeminal Neuralgia or Dysthesias.) They can also be used to treat seizure disorders.
They did not seem to effect my diagnosis. They did not effect my neuro exams, MRI, VEP, LP, etc.
I have been taking trileptal for about 5 years, It has had a huge impact on my headaches and sleep. I have some weird sleep pattern thing, it may have a name but I surely cant remember.
Im grasping at straws trying to figure out what I can do, Im so tired of being blown off and called crazy (you know depression or anxiety) all though that would be easier. Im ok with being crazy but calling me crazy doesnt help me function any better.
I see my primary tommarrow, what should I ask for?
I have had 3 MRIs all the blood test to rule out lymes, and all that stuff, lp.
Im going to see my primary today. Im going to ask to rule out the possible sjogrens with a lip biopsy, advice on the fact that the neuro she sent me to calls it anxiety, if we need to redo some labs, ask about ana, and just see where it goes.
I am a bit anxious, fearfull of another dead end added with the anniversary of a lost loved one. The last thing I need is to come off as a emotional wreck.
It makes me angry that something is wrong and in many diseases if caught early, the outcomes are better. Its not ok to be so weak that one can not take a shower, Cant not that its I dont want to or dont care physically unable some days.
Ok thats my rant and im done.
Anything come to mind I should ask of my primary?
I appriciate all the help everyone has been here. Truely cant imagine what I would do with out all of you.
It took a lip biopsy to secure my diagnosis after 4 years of testing for everything else. I use some anti-seizure meds for my neuropathid pain and they do help with the neuropathic pain.
I hope you get some definite answers soon.
I think I would be happy if I just had help with the severe weakness its so scarry, I dont know what to do to help it or what im doing that may make it worse. The rest of the stuff I can deal with and except it.
If I knew what it was I feel that there just might be help and guidance.
I dont have much pain, dry mouth, eyes, dry skin yes, the weakness and then the fine motor tremors, stutter sometimes, a heaviness all over my body even my chest, a bladder that goes crazy mental fog. I only get these when Im having symptoms and not always all sx at the same time. When things clear it seems all goes back to normal.
Do you get many of these symptoms