This is a cross post. I originally posted in nuerology, but after looking up periventricular lesions on MedHelp, it was clear I needed to post my questions here.
I was recently sent to see a neurologist for occipital neuralgia that I have had off and on since 2008. The pain is not like a headache, it's more like an injury. I do not have migraines. It hurts to the touch and muscle relaxer sometimes helps. Upon my recent examination, Neuro said my balance was a little off and I had diplopia and sent me for an MRI and VNG. I have known my balance has been messed up for a while. I cannot walk in a straight line if I am not looking straight, bump into things a lot, can't stand well with my eyes closed. I also have bad vertigo, bouts of weakness and such, tingling, vibrations in my body and and burn in in my legs. This has been going on for years and my MRI from 2008 never showed anything. So my most recent MRI comes back abnormal as well and my VNG.
MRI says: several small nonspecific periventricular white matter lesions without mass effect or restricted diffusion. This may be secondary to small vessel disease, however in a female patient this age, possibility of demyelinating process such as MS should be considered.
VNG: Nurse just told me it was abnormal and that the Doctor would to speak to me about it. But she can't see until the end of Feb. Have a nice Christmas...
What the heck does this mean for me? I tried to get in to see the doctor but she is out on vacation and there are no openings for a while. I am just a little stressed out. Does any of this sound familiar to any of you? She tested me for myasthenia gravis but that was negative so I guess that is good news at least.
Just wanted to add that I am also under the care of a rheumatologist. I had a really freak health scare in May 2015. Suddenly my knees began to hurt. Both knees at the same time. The joints were fine on xray, but I was literally immobile for 17 days. I was also having really bad/fast muscle spasms on my face, both side at the same time just under my eyes accompanied by numbness and tingles all over my body. It was the strangest thing ever. I was tested for lupus and RA. Both were negative. Could that random knee pain be related to my abnormal tests? I'm not sure what other tests they could order or what other possibilities there are for what is going on. What do you think?