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Avatar universal

Should i accept this diagnosis or could it still be ms

I have 2 bilateral parietal lesions on brain (1 either side) (1 small and 1 18mm in size). I also had raised protein when i had my lumbar puncture. I have had deteriating balance and gait over the last 10months which when i was walking i always veered to the left (unable to walk forward to right) and now I am in a wheelchair always when out and most time indoors. I have suffered severe tiredness over the last 6 years but now i have been diagnosed with sleep apneoa and i have a cpap machine. I also 7 years ago was diagnosed with overactive bladder after tests and at that time a stroke or tumour was suspected but my CT scan was clear. My Ct scan was also clear when i first presented with left leg paraylsis 18 months ago but a MRI showed up the lesions. My paraylsis returned after 2 weeks but my walking deteriated after that and then the balance became affected. I have had tests to rule out secondary cancer and at first they thought a stroke but that has also been ruled out. My visual evoke test was normal so they have ruled out MS. Now I am being told that it is a functional disorder as they do not think my lesions are in the right place to cause my symptoms. I am 49 should I accept this diagnosis and always be in a wheelchair or should i be looking else where. I have years ago (in my 20's) suffered from anxiety due to an overactive thyroid. Over the last 12 years i have had no bother with my thyroid and my anxiety and palpitations have ceased. I am very upbeat and i know i do not have depression. I want to get back to work and I would try anything to help my condition but my gut feeling is my condition is not functional. My neurologists say my lesions are a mystery. Please help
13 Responses
562511 tn?1285907760
Hello and welcome to the MedHelp MS Forum.  I am sorry to hear that you are struggling with these symptoms.  I have never heard of a "functional disorder" but I'll take a look around and see what the internet has to say.  My gut feelings would be to question this diagnosis too.  You are not functioning fully obviously, but I've never heard of that being a diagnosis in itself

Would you mind telling us what prompted you to have an MRI initially, and was this MRI the first you have had?  Did the neurologists also obtain imaging of your cervical and thoracic spine?

I'll be right back.    
562511 tn?1285907760
Hi again.  My brief understanding on a functional disorder is that no known organic reason can be found for symptoms.  When I looked up the symptoms of this disorder, they are eerily similar to MS.   I would want a better explanation for the lesions and elevated protein in your spinal fluid. I would consider those of an "organic" nature.

We have had many discussions here where forum members are told they have a somatic disorder. Have you been evaluated by a psychiatrist, or has a neurologist who barely knows you come up with the functional disorder diagnosis?  

What is their plan to treat you?  Interestingly, while researching this topic, it is stated that stress always makes the symptoms worse.  We have had a lot of discussion here lately how stress can make our symptoms worse.  It is almost universal amongst us

Epilepsy, schizophrenia and other diseases were once considered a functional disorder.

From reading your post, is it correct to say that you have had terrible fatigue and bladder issues for 6-7 years and 10 months ago had an episode that has affected your ability to walk?

Do you have a copy of the written report of the brain MRI that describes the location of the lesions?

Please take a moment and read the Health Pages, yellow icon-right upper corner of this page.  There are many topics regarding MRI's and the mimics of MS.  It is important that you have had a full work up.  

Please feel free to ask as many questions as you like.  We have many smart and nice people here who will help you to sort this out.        

    




429700 tn?1308011423
You need to find another doctor.  This doctor doesn't seem to know his head from the other end of his body (I won't say it, but you know what I mean).  Good grief, you have plenty of evidence of organic problems--lesions, elevated protein, sleep apnea, and in a wheelchair for cryin' out loud!  

Because this brings up bad memories (I had someone tell me that I needed to see a psychiatrist when to see someone for a physical problem), it makes me so angry to see others like yourself, being treated this way because of their incompetency.  

Have you had your TSH checked for hypothyroidism?  Sometimes after years of being hyperthyroid, your thyroid stops working and goes hypo.  It's just a thought.  It could explain the numbness, fatigue, and possibly the sleep apnea.  Hypothyroidism is something that has to be ruled out before an MS diagnosis is made (it's a mimic of MS)

I do not believe that the hypothyroidism causes lesions in your brain, though. However, often times people with MS often have other autoimmune diseases like thyroid disorders.  

What about an MRI of the spine--have you hade one?  Two lesions in the brain is nothing to brush off and is not normal for your age.  The reason why they say that the lesions in your brain is a mystery and blame it on a smoke screen term is because your doctor is too lazy to figure out what is going on with you.  

Deb
667078 tn?1316004535
"Functional Disorder" sounds like I don't know. If it were me I would no accept it as a diagnosis.

Alex
562511 tn?1285907760
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Avatar universal
Hi karen,
Thank you for your e-mail and the time you took to look up functional disorder. I had my first MRI in jan 2008 I was fine up until then looking after my husband and 3 teenagers and doing all the usual running around. It was a Sunday afternoon and I went into the kitchen to make a cup of tea and when I turned I thought my foot had stuck on something sticky as my foot would not move properly of the ground to walk, as time went on I lost the power of my left leg. I was taken into hospital as they thought I had taken a stroke ( I also found i was unable to follow instructions at my normal pace something was not right). A cat scan at first was clear but because my reflexes were not good they sent me for a MRI which showed up 2 lesions ( 1 they thought explained a stroke and the other they were baffled, They contacted an neurologist who said that the lesions were the same but he could not say what they actually were and that was when i got the lumbar puncture. The power came back into my leg gradually after 10 days but it did leave a difference in my walking. In August that year I then lost the power of my right arm (days after having a severe spasm in my arm), They gave me another MRI and said that the lesions had not changed therefore they said it had not been a stroke as the lesions would have shrunk and they were 99% sure that it was not cancer. 1 lesion is small and the other is 18mm, both are well defined. Also during these summer months I noticed that was walking was deteriating and I was starting to veer to the left my gait was getting wider and my stride slower but I kept going even although my husband and myself thought that I was getting worse the more I did. I have run out of space Marie
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