Hi and Welcome to the forum!
I'm not sure if I would be 100% convinced either. I'm sorry your having a lot of issues. Did your doctor check you for the MS mimics through blood panels?
I have several family members who have fibro. It is a very painful condition to have and is very hard to control. As far as I know, eye involvement, is not apart of Fibro. For your eye issue, I suggest you seek out a opthamologist. They specialize in the diseases of the eye. They could run a full exam on your eye and check out your optical nerve. Sometimes if they suspect something, they might order MRIs as well. They can help in your diagnosis process.
I would also seek out another neuro. I'm not sure if they checked everything they should have, but if you are questioning your diagnosis, then it wouldn't hurt to get a second opinion on the matter.
One of your symptoms that you describe ("squeezing sensation around your ribs") sounds similar to the MS hug. It's usually caused from a spinal lesion, but spinal lesions are very hard to image on a regular MRI machine. I would report this to your neuro or doctor and do get a c-spine and t-spine MRI on the highest available machine you can get on. Here is a link to a page about the MS hug. I'm no doctor, but it does sound similar..and you should have it check out regardless. It could be something else as well.
Check out our Health Pages while your here (yellow icon). It has a lot of info that will guide you through this whole process. I hope you fell better soon. Take care and hang in there.
Thank you so much for commenting on my post. I definately meet the criterior for Fibro and yes it is a very painful and debillitating condition but i just wonder if i might have both??? If all the tests that could be done where done to rule MS out then i would be ok with that as i would not like to have MS, who does??? Funnily enough the nuerologist who said that i don't have MS had the nerve to imply that i would have prefered to have a positive diagnosis, how rude and insensitive. What some of these mediscs don't understand is that for the most of us we have been in limbo-land for many years with no real treatment or help for our very real symptoms and having a diagnosis can be a real relief even if it in itself is not a nice one. I will continue to research and pursue other avenues in order to make sure that nothing's been missed. In the mean time i am fighting for mobility and disability benefits, oh here we go ..more obstacles lol
Do you know if the doctor used MS Protocol when he ordered your MRI? Was there contrast involved and all the other requirements? I have learned that it is really important in the diagnosis. Fibro is a debilitating illness on it's own, unfortunately not very well respected or understood in the medical world. I have heard that people with Fibro sometimes are diagnosed with MS later.
THere are alot of other tests that can be run besides the MRI's. I would get another opinion and not allow the doc to stop at the MRI. Doctors can be downright lazy
Hi and welcome!
I too also suggest you get a second opinion from a neurologist. Start keeping a documented time-line of your symptoms and history.
Too, if you could when you are posting, break up your paragraphs into smaller ones because MSers have a difficult time reading large paragraphs due to optic neuritis etc.
and we cannot respond due to this.
I agree that you definitely need further testing etc. It can be a long road for DX. I am still in limboland for 7 years at this time.
The best of luck!
Hi there (I wonder who slickchick1 is????) Welcome to our great forum. I am also so sosrry to hear of all the symptoms that you have I have a freind who has fibromyalgia and it si a very debilitating condition. I would just go along with what everyone else has said and suggest that you try and see aonther neurologist for a 2nd opinion.
Keep us posted and be patient..
With best wishes
I have fibro too, along with a host of other muscular and spinal problems. I get the squeezing chest pain you have described, along with the pins & needles, fibro "fog" thinking, etc. Fibro mimics a lot of ms symptoms. Unfortunatly there are no difinitive blood tests, x-rays, or mri's to aid in the dx. The one thing fibro doesn't cause , at least to my knowledge, is eye problems. You need to see a good opthomologist.
You might see a rheumatologist for a 2nd opinion. A good rheumatologist can help you manage the sx's of fibro. And yes, of course you can have more than one disease, including two or more auto-immune ones at the same time. Ain't life fun? LOL
My neurologist says that that the MRI is the best diagnostic tool for MS but that a clear MRI does not rule it out. He told me about a study that was presented at a conference he went to where a diagnosed MS patient was given an MRI every week for a year. No two of them were alike. Some had lost of lesions, others almost none. And the weirdest part was that the scans that were done when the patient reported the most symptoms were the clearer ones.
I'm showing the same symptoms that you're talking about. I was dx with FM about 15 years ago and have been frustrated with doctors and medicines ever since. There's just so much unknown about it all. My neurologist wants to do another MRI (the first one was ordered by an ENT for vertigo and tinnitus and was done without a flair sequence) so I'm repeating it later this year.
Good luck with getting a more definitive diagnosis. I appreciated the fact that my dr understood that although I certainly do not want to have MS, that the FM diagnosis is so nebulous that sometimes it seems life might be easier to manage if we did actually have something that had a protocol of treatment. He also said that I should understand that FM COULD cause all the symptoms I was having.