Stopping Betaseron

[Zacksmomi]

Happy 4th of July to all of those in the US.  and a Happy July 4th to those not in the US lol!!
I was wondering if anyone has every had side effects from stopping a DMD??
The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron.  It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me.

My husband is insisting it is cuz I am not taking my shots.  I don't see how that can be.  We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.  Got 7 vials of blood drawn before I ate lunch, then spent that afternoon and the next day wandering around SF and driving home.  DUH!!!!! I know!

I have been trying to get this house back in order since our trip, and I think I am over worked basically.  I have been getting a very upset stomach at night and flu like sx's with a cough (only at night I know wierd) which I write off to doing too much during the day.  

I had 5 days of solumedrol from June 14-18 and my sx's improved.  Of course when I went to UCSF I was in tip top form for me, and the Dr didn't get to see how bad off I get.  He thinks as of June 29th that I should continue to improve from this last flare, but since stopping the Beta, I almost feel like I am in another flare.

Has anyone experienced this when stopping or switching a DMD??

Thanks
D

[meg321]

Happy 4th to you too!

I agree with ess, i know there have been times when taking a trip to UCSF and it being a long day, shopping on the way home....I felt like crap for a couple days, especially if you come home and do a lot of work.

Rest often when working !!  Hope you start feeling better....

hugs, meg

[essdipity]

Hi, D. I'm with you. It's very unlikely that stopping the DMD would do that, and very likely that overdoing things generally would make you feel sick.

OR---you're coming down with a bug, just a coincidence.

OR---you're starting an MS flare, also a coincidence.

So take care of yourself, and do as little as possible! Feel better soon.

And three cheers for the red, white and blue!

ess