Uncertain if this is the appropriate community to post this but per the advise of another participant on this forum, I elected this page first. I'm a mother, 44 years old, and have experienced suspicious symptoms for nearly 6 years. First onset was in 2007, three months of vertigo, fatigue, excessive tiredness though obtained sufficient sleep, slurred speech, numbness and tingling in left arm and leg. Additionally, flu-like symptoms and overall tiredness mirroring the same as nauseousness. After an evaluation from an ENT, he immediately stressed his concern of MS, and ordered an MRI (brain and cervical spine). I immediately scheduled an appointment with a neurologist and walked the MRI films in with me. The neurologist confirmed no "significant" findings on the MRI of which I remained suspicious considering my debilitating symptoms. Shortly after, and with symptoms persisting, I located another neurologist to review the findings and evaluate me further. He ordered additional tests such as, evoked potentials, nerve conduction studies, and a skin grating test along with an MRI of my thoracic and concurred that no findings suggestive of MS were present but indicated he was suspicious of my symptoms. Again, this was all conducted in 2007. Third time is a charm right? Visited with a third Neurologist nearing the end of 2007, who is an MS Specialist. After a thorough examination and reviewing my MRIs, and all other testing, she indicated no presence of MS, but also quickly stated that she saw a lesion, but in her words, "it is in the wrong place and not the correct shape for MS."
Regardless of feeling horrible, I had to grit my teeth with hope and prayers that this suspicious undetermined episode would pass....... and it did after three months. In 2012, these suspicious symptoms recurred representative of what I experienced in 2007. They nearly mirrored with the exception that new symptoms such as muscle cramping especially in my two middle toes on both feet, hip soreness / left leg and arm weakness, and blurred vision this time. And here we go again, sought medical care with a neurologist in a different state this time around and had an MRI of the brain accompanied by the cervical spine, an LP (ouch...never again thank you very much), but no nerve conduction studies or evoked potentials this time around. The findings were inconclusive with the exception of a bulging disc and a diagnosis of degenerative disc disease (C2 C3-C4-C5-C6). A biking accident in my youth was the culprit in which I landed a few broken bones in which I have some arthritis which I expected later in life with these types of fractures.
In current day, and approximately three months ago, I began to feel quite oddly again. Vertigo, blurred vision, muscle stiffness and pain in neck on both sides, shoulder pain this time around, mild slurred speech, unexplained fatigue, numbness and tingling in both hands and bottom of feet but mostly felt in left hand and foot, left eyelid twitching, mild facial numbness primarily focused on left side. Every morning I wake up hoping these symptoms subside but they are very apparent every morning and remain.
My question is this... Has anyone experienced a combination of both MS and Disc disease? My PCP suggested I see a spinal surgeon and an internist, but I'm more of the thought that a neurologist would be better suited in this area of symptoms. When I conveyed this chronological history since 2007 to my physician, he did not comment on anything other than sharing a large neurology group for setting up an appointment if I so choose. The earliest I can be seen is august 3rd. I've contacted 4 independent neurology practices, and not one can see me before that date. I've relocated out of state 4 times in the last 5 years but have all results from each physician. Very frustrating, even with my name on a cancellation list, I must remain idle with suspicions.
Thoughts or shared experiences on this issue? If this is not the appropriate forum for this question please do not hesitate to inform me. I'm new at this and just attempting to locate others who may be of the same position.