Symptoms in common

[debme]

I have had 2 bouts of optic neuritis a year ago, and while my MRI's came out negative my doctors still think I have MS. I had the 5 days of steroids, but no further treatment. Now I am experiencing intense itching and am having a lot of trouble getting the words in my brain to come out my mouth. I seem to have more trouble typing also, my fingers don't seem to match my brain. Has anyone had anything symptoms matching these? I am getting depressed as I seem to be getting worse and don't know what to do or what is happening.

[sllowe]

debme,

I didn't believe my doc either, lol
A 2nd opinion may make you feel better. I needed more proof too - I got it, and now I believe.

-shell

[debme]

No, he didn't start me on DMDs, I was in denial, and since my MRI's and spinal tap came out negative I was convinced he was wrong. Now that my symptoms are changing, I'm not sure what is going on, but it seems like MS is a real possibility. I am a person that likes proof before I proceed, and without real proof, I didn't believe that I had MS. Now I am frustrated, confused, and scared.

[sllowe]

Hi Debme,

Welcome. Did the doctor start you on DMDs for this? Sounds like clinically isolated syndrome to me - and, if so that is enough to get you started. The chances of getting clinically definite MS increase if you have lesions @ the time of the ON, but since you were clear at the time, did your doctor mention a plan to re-image you in the near future?

Thanks for joining us!
-Shell

[fibrotj]

I had a severe bout of "something" 2 yrs ago...that lasted for 3 months.  I had lost complete "central vision" of my left eye...was just a big, gray/black, blurry spot in the center of vision!  We had just moved to Montana...& by the time we got health insurance, PCP appointment, for referral to an Ophthalmologist...it had already cleared up!  So...IDK what I had?...as the Ophthalmologist didn't think it was ON!  I beg to differ! BTW...I'm STILL undiagnosed...going on 4 yrs of these CRAZY symptoms now!  
~tj

[Sidesteps]

Yup, I had all that (not itching but cold and hot patches.) I also had a heavy leg, balance issues (wobbled) which is called positive Rhombergs. I had sharp stabbing pains in my abdomen and chest. Muscle fatigue (had a hard time holding my hair dryer, going up stairs and carrying thongs while walking.) I dropped things.

Like you, I struggled finding words and made the most insane typos (not iPhone generated) and went from being articulate to feeling stupid. Luckily, I had an awesome internist see me at my worst and express concern to stay assertive since my Neuro at the time seemed to be barking up the wrong tree.

I have an MS specialist now and he ordered the VEP after having symptoms 5 months later. I am making progress, I think.

I think I'm in a flare up now. Trying to decide if I should call the office or not because I'm programmed to feel like it's not what I thought it was. (I just received confirmation I had ON 5 months ago. I still have issues with double vision and a small blind spot, imming, etc.)