Hi, and welcome! I have not been diagnosed yet but I presented with sudden vision changes two years ago. I am curently being monitored for new lesions by MRI and have been every six months since the attack. So far nothing new. My dx for now is ADEM unless I have something new.
I have had that feeling of feeling and walking like I was drunk. It is called virtigo and it happens with a lot of neurological illness and damage. I had it from 3 months after the attack until the one year mark and it gradually improved. Sometimes I still feel it a little, but not much. Mine they think was caused by the visual field cut (defect) that The attack caused. Having a piece of my visual field missing makes me kinda off balance. But it can come from MS. I also had and still have weakness in the right side of my body. Sometimes it feels like my right side is not even there. They said that I didn't have a stroke either. I went to a hematologist yesterday to be checked for clotting problems just to make sure that this can be completely ruled out.
Did the neuro say that you had white matter lesions in your brain scan? Did he offer any other possibilities? There are other test that can be done. evoked potentials, spinal tap, and others. Some of the people here who are more experienced in MS than I am will probally come alont with more specific information on this for you. I know first hand how scary it is to not know for sure. Just stick around here and you will find the support and information you need to get through this challenge. If you wouldn't mind to tell us about any other test results and symptoms.
Thank you for your message to me. All I was told so far was that when I had my 1st MRI in the hospital that he saw something that he did not like so I had to go for another MRI with contrast, and then he told me that he thinks that I might have MS and wants to do a neck, spine and another brian MRI with and without contrast. I did not get a spinal tap yet he said he is not sure that he wants to do one unless he really has to, cuz it is painful. Now I am having some new things happening to me, like I have this pain in my neck that shoots down to my shoulder. And has I have also had Veritgo many times for many years. I also have high blood pressure for about 8 years now and take meds daily, had many test done with that to, like kindneys, heart.. and all kinds of blood work done from lupus, lyme, ect, and all other test come back normal. So really I can say I been not feeling that great for about 8 years now. I mean don't get me wrong I have my good days and bad, JUST want to find out what's wrong with me. As I am sure most people wanna.
Anyway thank you again for your info, and I must say I see you are from the great state TN.. I go to TN every year on vacation to Dollywood, Pigeon Forge. Love it down there going again in Aug. And see your not that far
I live about 15 min from dollywood. It is a nice place to live with lots of fun things to do, but if you live here you have to learn the back roads because of the massive amounts of traffic. I am origionally from Kentucky but have lived here for about 14 years now.
Now about the spinal tap. I had to have one to rule out other causes. It wasn't painful to me. I was sore for a couple of days and thats all. I was more scared of it than anything else. Mine came back negative and showed no O banding which shows up a lot in people with MS. Infact all my other test have came back normal except for the VEP, visual evoked potential and my first MRI. I have had repeat MRI scans of the brain every six months for two years and they have showed no change in the lesions, no enhancement, and no new lesions. All of this is still why I am in limboland, that's what we call it here when you don't have a dx yet. If you do end up having a spinal tap the only advise I can offer is to lie flat and as still as you can for the first 24 hours. They tell you 6 hours, but I wasn't taking any chances on getting one of those spinal headaches that is a possible complication. I didn't get a headache at all and was back up the next day and just didn't lift anything for a couple of weeks. I am glad that I had it because it ruled a lot of things out, but your neuro will know if he needs this to help find a dx. Let me know what they find out.
I will let you know for sure. Thank you again for all your great info. And thanks for the friend request.