Things not good

[mokibear]

Ok so these little green men are having way to much fun in my head!!

Last night my speech started slurring again. If it had of stayed where it was, I would have been able to work. This morning though I got up and can hardly get words out. I didn't realize how fast our thoughts come and go to our mouth until this happened. I think I know what I want to say but when it comes to some words, I can't seem to get my brain to hold the word in time for my mouth to get it out. Needless to say I can't work today. I need my speech for my job.

I just don't know what is going on. The fatigue this last week has been awful and then that sensation with my foot and now this. What the heck is going on? Sorry guys, ranting here. I'm just so frustrated and angry right now. I'm worried that my job is going to be jeopardy if this keeps up.

I'm frustrated too because I'm having trouble getting to sleep and then that is making the fatigue worse. How can you not sleep when you are that tired? Well I'm done rambling, sorry. I'm going to go back to bed and see if I can catch a few winks.

Moki

[doni54]

You are all sooooo funny.  I knew I needed to check in here today!  Been having the same problem for the past two weeks.  My DH just looks at me and grins when I try to talk.  I'll usually just give up and say the heck with it and laugh with him.

Luckily it only happens to me every couple of months then goes away for awhile.  I told my DH that the words get stuck somewhere between my brain and the end of my tongue!

I do agree we need to all get together in one place, wouldn't that be a trip!  Love all of you and thanks for the laughter!

doni

[Super_sally888]

Hi Heather, Jazzy, all,

here in Philippines when we can't think of a word for something, we refer to it as the "ano".

Can you please pass me the 'ano'?  I put the 'ano' in the 'ano'.  Have a look.

It works a real treat! And usually we know what we mean from the context!  Reckon we all need an 'ano'!!!!

[Heather3418]

We could open our own place and call it the "Blah-Blah Club."  We could serve  "duhhhh" drinks.... Membership required...you MUST have speech impediments to join.

It's just a thought.  It feels so good to be able to laugh at our blunders....

Heather

[Jazzyfizzle]

Ok, see there, I can't even spell s p e e c h    duhhhhhh


Jazzy

[Jazzyfizzle]

Girls, save me a seat, I will be right over. LOL I love the neurologic tongue, we need a name for it like -  Hypogammish   hehe


I am glad your speach is a bit better Moki

Many hugs

Jazzy

[mokibear]

Jazzy:I would love to sit with you and"blurb" together and hold out our foot. lol The speech is a bit better today where I have gone from some words not coming out to if I speak really slow I can get it out but it is still really slurred. Sounds like a record playing in slo mo. haha As for the sleep I wish I knew!!

Heather: "Speech Misfits" I love it!! I do agree that we are the sweetest bunch of misfits going. You made me smile, thanks.

Big Hugs
Moki

[Heather3418]

I think we ALL need to get together and talk in our "native neurological tongue."  It seems that no one else understands what we are TRYING to say, but I will bet if you put us all in one room, we would know EXACTLY what the other is trying to say.

So we are "speech misfits" sometimes...but aren't we the sweetest bunch of people that you would ever want to meet?  It's cool, we speak our OWN language....

Big Hugsssssssss.
Heather  

[Jazzyfizzle]

Oh Man Moki,  I know just where you are coming from. Sometimes I sound like that Evan newscaster guy on Bruce Almighty... blah blu ba ba ba, gur ba blah bu bu    :-p    

And the %$#^ foot too! Can I come over and we can sit and blurb together and hold up our respective foot?
I have often wondered that about the sleep. How can your body be so tired and the mind won't allow it.
Many hugs to you gal

Jazzy

[mokibear]

Thank you all for your wonderful comments and advice. I guess I was just feeling a little low this morning. I hate missing work due to this ****. I sound like I have been tipping the bottle way to much and now have marble mouth. I'm still really tired but managed to get in about an hour of sleep. Yeah me!! lol

The first time I had this it was really bad and lasted a little over 2 months, then I got it again but for only about 5 days. I'm hoping this round is just as short or shorter.

I'm just trying to figure out why this is going on. It's -12C or around 8F so it's not that it is too hot out. lol I just don't seem to get much for breaks anymore. The last 2 years have been really sucky.

As I am not diagnosed yet (but upgraded to probable MS) I am not on any meds. I do take Percacet for pain but only when I desperately need it. So meds is not the prob. I got these dumb shooting pains later today that just seemed to hit randomly. Where some have said they liked where the tingling was hitting, lol but I was getting pain and trust me I was not happy. It didn't last long but sheesh, I haven't done anything today. My right foot is still doing it's sinking in the stair thing and my legs now are shaking every time I go down the stairs. Kind of euchered both ways now.lol

The new neuro I went to see is trying to get me into a particular MS neuro so it could be a while before I can get in. I'm keeping track of all this new stuff, so we'll see.

Thanks again for letting me know that I'm not alone in this. I was just getting so frustrated and worried about my job. DH did call today for me to tell them that it still is not good and they said not to worry that they have me covered for the week if needed. So that at least is a load off my mind.

Big Hugs to you all
Moki

[sllowe]

Hey Moke -

It's just horrible, when you can't get the words out.  Only thing I can say, is just don't force it.  There is no way to control it, and frustration makes it worse, well, it did for me anyway.  Took me a little over 3 months, and I've never had it as bad as that time.  Only time to time now, now steady every day.

Speechgk and everyone gave good advice.  Dr told me before an MRI of my spine, that he thought I had a lesion there.  I did, and it was the biggest of them all.

I hope it doesn't stay long for you.  You having any fine motor skill issues accompanying the speaking probs? i.e.,  clasps for jewerly, writing, picking up small things, etc?  

Hang in there,
SL

[CtResident]

I found this word "dysarthria" just yesterday!

http://www.geocities.com/hotsprings/3468/scan-01.html

It's in the section under signs of cerebellar disease, about 75% of the way down the page.

Fascinating site!

Suzanne

[Wobbly]

opppss...I meant to say it wouldn't surprise me...
hehehe
Andie

[Wobbly]

well, I'm not yet Dx. not on any MS meds..but I have been having some speech problems for 6 months or so.  Loosing words...I know what I want to say, but can't get it out. Stutter at times, and find I have to really slow down and think before I speak.  I could be in the middle of a sentence and forget what I was saying???  This doesn't happen all the time, as a matter of fact I'm ok for the past few weeks, and feeling better with walking etc the past few weeks...except for the pain... I have less tingling and zaps...but they remind me once in awhile that they are still there...but my speech has improved..with no meds?  So I guess I'm confused as too if this will come back again...would surprise me.. take care everyone
Andrea (Andie is what my friends call me)

[speechgeek]

I think I can contribute some to this! Depending where your leisions are that will determine the speech problems. Often poeple with MS have something called Dysarthria (weakness/slurred speech).There are many types.  For example cellbellar lesions are associates with something called Ataxic dysrthria.

There is also something called paroxysmal ataxia dysarthria (PAD) which is suggestive of MS brief periods of ataxic dyarthria, limb ataxia and visual symptoms. Seen during an "active" stage of MS.

Any type of dysarthria is possible with MS spastic -ataxic being the most common.

It is very rare with MS but there is also something called apraxia of speech. This is the brains ability to program the movements of speech..not weakness/ not slurred. Motor planning

Meds certainly can have an effect on your speech and coordination as can anxiety and lack of sleep!!

I hope this answers some questions.

Rebeccah

[grannyhotwheels]

Moki, wow if it's not one thing then it's another.  I"m sorry your going through this.  I do the same thing sometimes.  I stutter, forget what I was saying, and sometimes just don't know what to say.  It's very frustrating.  Hang in there and get some rest.  I think that all symptoms get worse when you are in need of rest.  So sleep away if you can.

I'll be praying,
Carol

[Rena705]

Hey honey, sorry to hear that you are having these problems with your speech but if its any consolation, I can relate.

I have been having problems with my speech since approx. Nov./07 and the dr. figured that lowering my meds would help...WRONG!  I was pretty tired yesterday after spending the night in ER with my Mom the night before.  Hubby and I went to the grocery store to get some stuff for her and between the slurring speech and having to rely heavily on my cane to keep from falling over, I am sure that most of the people in there thought I was drunk!  You should have seen some of the looks I was getting!

I think that the stuttering is the worst, for me at least, as I find it sooo frustrating!  But just trying to make that connection between the brain and the mouth is very frustrating and tiring in itself.  I have times of course when I can speak very fluently and have no problem but when this inability starts, it is crazy!

My husband is wonderful in that he is able to finish some of my sentences but that could grow to be a problem and I tell him that he had better not make it a habit!  He just laughs and keeps on but I know that it is difficult for him as well.  I don't know if this is a widespread problem with MS or what and I don't know if it is my meds that are causing it (I doubt it) but I would like to get more info on this problem if possible.  Does anyone out there have any further information as to if this is a common problem in MS and if so is it part of a relapse or what?

Rena705

[pennst8r]

Moki - I'm so sorry you're having such a rough time. I get exhausted but then can't sleep too. i know how hard that is, especially when you have to go to work in the morning. Have you called your doc? Any appts coming up soon I hope???


Speechgeek - I wondered if you were a speech therapist! That's what my degrees are in too! I did practice for several years, then realized my true love was mental retardation - been working in that field for many years now. Combined the 2 for quite a while, doing speech therapy exclusively for adults with mental retardation. Small world!

Penn

[Heather3418]

Oh dear heart...it sounds like you are having some real difficulties.  Remember to listen to your body, when it screams out to rest.  Evidently that is exactly what your body needs.  If you are anything like me, I get tired as you know what, but can't sleep a wink.

As always, you will be in my prayers.  I hope you feel better soon, girl!  Say hi to the "little green men" running around in your head.  The "MS Pac-Man," runs around in mine.

I'm with ya!

Heather

[speechgeek]

Moki

I am sorry to hear your having a bad day. I'm a speech therapist... and this thing that I have has given new meaning to "word retrieval/word finding difficulties". I actually feel dysfluent at times (stuttering). I hope that you get some relief soon.

Hang in there. You are in my prayers.

Rebeccah