Let me start over. I had MRI's from 3 years ago and 1 year ago. The one 3 years ago showed ON and a ubo in my right frontal lobe., The radiologist said it was demyelination. The neurologist said it was not.
So I went to an MS specialist who said the UBO was demyelination and that along with my clinical exam he could dx me with MS. He started me on Avonex. He decided to retire last year so I had to find a new neuro. This new guy is not an "MS" doctor. We do not have any around now because two of them retired last year.
So I went to the new neurologist who wanted all new MRI's on HIS machines read by HIS radiologist. He totally ignored the previous MRI's and radiology reports. Hope that makes more sense than my other post.
New guy does not disagree with MS dx but does not think I should be having the symptoms I am having at this point. So what, I am faking it so I can give my self a shot?? And take these meds that have totally shot my bed room life and added to my weight gain issue?
You have got to be kidding!!!!!!
I am so sorry that your appointment went to "Hell In A Handbag"!
Can someone please answer..Is there really such a thing as "Mild MS"????
I mean either you have MS or you don't! Am I right Quix? Someone??
I feel for you. I really do!
Well you certainly need to LEAVE that neuro with a quickness!!!!!!
How long have you been on the DMD?
Quix, how can a doctor dx someone, start them on DMD w/ other drugs, then just say......"Oh never mind, you don't have it?"
Again, I am so sorry for you terrible, horrible, no good doctor appointment.
your in thought and prayer.
Thank you. I have been on DMD's for 2 years now. In fact it was 2 year ago this coming Monday I was dx'd and have had steady progressing since.
There is NO SUCH THING as mild MS. Mild or benign MS is only determined after death. So this neuro is chock full of something... probably not goodness or knowledge.
I have only one 'clinical' lesion - in other words, although I had several areas of enhancement on my MRI, only one lesion was looked at by the neuro. Most of my white spots were ventricle enhancement, or UBOs. But I have, and have had, a lot of symptoms. It seems like people with a lot of lesions have few symptoms, while people with few lesions have more... but that's just my impression.
So you definitely have a dud. Why do neuros want to diagnose you with psychiatric problems when they're so unqualified?
I don'at know but I can tell you I am sick to my stomach and in tears. He told me to come home and hold onto something and walk on my heels and toes. I can't.
I told him I can not even get up on my toes. He just shrugged.
First, I'd file a complaint about this doctor and cc him. Second, I'd find a new doctor.
Well, maybe not in that order, but both of those things would be on the list.
In the complaint, I'd note the following
--this doctor is so behind on the data in his own profession that he's basically engaging in malpractice and endangering his patient's health, to wit: the incorrect assertion that lesions should correlate with symptoms in any way--been disproved repeatedly; the assertion that you have "mild" MS, which is not a clinical entity; his assertion that you need to get off of the meds that are helping you, based on faulty "reasoning"; his attempt to attribute your symptoms that are indicative of a disorder you HAVE to a disorder that you do not HAVE.
--this doctor is apparently incompetent to practice medicine, given the conclusion he has drawn that your MS symptoms are not attributable to MS but to "psychological" issues when you in fact have been evaluated by a professional and it has been determined otherwise
--this doctor needs to be sued for emotional damage and distress
I'm sorry this happened to you. But someone needs to know how poorly this man practices "medicine."