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Avatar universal

Time for a bonfire

I am using the feathers from my turkey to start a fire for a weinie roast.  New primary sent me to new neuro to get more MRIs done and possible treatment as I cannot get into university group until well into next year.  I was diagnosed, on paper, with MS last month.  

This new neuro evaluates me and states that he cannot do much else for my migraines...He has little else to offer that I have not tried.  Okay, well...That was pretty much a given to me from others.  He offers me no script for pain medicine.  Just effexor to lose weight.  My BMI is around 25-26 [fluctuates from <25 to around 26, usually].

He then asks to see my MRIs as he is leaving.  My primary told me to bring them and the reports to the office.  He saw the reports beforehand.  He asks only to see my last MRI.  As he is standing in front of the door he is holding the films against his knee as he looks towards the floor at them.  He then holds the films to the room light.  He asks me why I had them done.  I told him because I strained my back at work and arthritis and herniated disk was found.  When I was contemplating surgery, more pictures were run and lesions appeared on the cervical spine which were considered possible demyelination.  So, I was advised to bring them to him.

He asked me where I went to school.  I told him and he says, "Really!?!".  He asks me another question of what other work I have done and schooling.  I told him I did research at the medical school.  I worked for a top doctor in the school who suggested I go to medical school and agreed that he and other doctors would give me a strong positive referral.  I told the neuro I decided to hold off because my migraines had just started and I was having problems.

He tells me something like, "Lucky you that you did not put yourself through all the bull #$%#".  He then says, "Your problem is you know too much for your own good".  

Then, he walks out the door.  He tells me nothing.  He never came back.

Now, I simply answered his questions.  I did not go crazy really talking about anything to him.  I tried to do just as he asked and answer what he wanted to know.

I then asked his assistant (his demanding wife--[which even the physician referral made admonishment to me about]) if he wrote anything about the MRIs in my chart.  She said, "You do not fit the clinical picture for MS".  She said, "They tend to overread those things."  She was not in the room with us throughout any of the exam.

He never asked me about tremors, tingling, any past problems such as falling and foot drag or anything more after looking at the pictures.

I feel as if I was put back to square one.  I was so sick with migraine and sooo exasperated after that.

I am unsure how I offended him.  Once I told him what my neuro-opth said about my eye exam and some of the problems with my eyes.  I do not know what I did to that man.

I guess he is telling me that I am somaticizing.  My diagnosing neuro said that he thinks the other neuros knew it was MS and did not want to tell me because most of them do not want to tell or state it.  

This neuro's actions just blew me away.  I tried leaving his examination and decision to be objectively his own.  Any comments?

Got anything to toss my way?

Happy Holiday!
19 Responses
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Avatar universal
Hi, Nette!

Good to hear from you!  I found this neuro was one of these question, question, question guys.  I realize that neurology can be very complex; however, it seems that sometimes, the physician gets so involved with all the questions that they believe need to be asked that they forget to simply address the person as a human being first and ask the patient why he or she feels that he/she is needing to see them, as well as the patient's perspective of his/her symptoms, illness(es), etcetera and the impact of the above on the patient's life and well-being.  This guy was so concerned about my migraines he never even discussed the MRI results with me or the fact that I wanted more MS testing.  So, I left very disappointed, feeling less knowledgeable and proactive of my health, and questioning the physician's thoughts.

He kept asking me how many days a year I have headaches.  What he meant was how many days a year do I feel pain in my head.  When I asked him if I was to include the days I have opthalmic migraines without pain he explained that he asked me how many days I have a headache.  When I realized that he meant how many days did I actually have observable pain in my head he seemed agitated.  I explained it was my understanding that I had been previously diagnosed as also having migraines without head pain as there are such types of headaches.  He explained that a headache means that your head aches.  I told him I was told differently by other neuros and I apologized.  He says, "Oh".  Perhaps that was why he told me I knew too much for my own good.  Who knows?  I laugh when I read the reflex notes as "normal" when I know my reflexes have been all over the place and he did some of them two or three times because they were not normal--at least on his first try.

Another time that really stands out in my mind was when I was saw a top doctor.  That neuro seemed to be empathetic at first stating that they had family members who also suffered from migraines and that they themselves sometimes would get them so badly that they had to go to bed and could not even talk.  So, about a year or two later when I stated that a medication trial did not work for me, the neuro accused me of not taking the medicine.  I then proceeded to ask the neuro if they ever tried the medicinal therapy themselves.  When they said, "Yes", I asked them when that was.  Then I asked them if the medicine worked for them (as I remembered the neuro stating that they were getting headaches "after" the date of the medication time trial period that they stated they were on the medications).  The neuro admitted that the medications did not work for them, either.  So, I then asked them why it was okay when the medication did not work for them; but, when it did not work for me that I was accused of not taking the meds as instructed?  I asked the neurologist did they still get headaches?  They then admitted that they did and that none of the meds seemed to work for them either.  I told them I felt sorry for them; but, that there was their answer.  [I thought, "Physician, heal thyself".]

I was never accused of such a thing, again.  The physician had seemed to imply that they were getting weary of treating my headaches.  I told them that if they were tired of treating them, that they ought to try living with them!  The physician had been much more responsive to me after that!

So, I hope your new neuro is more responsive to your needs and what you are seeking in your appointment with them.  I would be sure to take a list of questions that you have and a log of your symptoms, meds, history, etc.  I find it so much easier to deal with some of these doctors like that.  I find doctors often take more personal time with the patients if there is someone else along, also.

Isn't it great that we have all these wonderfully supportive people on this forum?  We certainly are our own support group and special family among ourselves.  I hope that you and everyone had an enjoyable Thanksgiving and that everyone will have an even better upcoming holiday season and new year.

Again, may God bless us each and everyone!!!

Thank you for sharing with me!!!
Helpful - 0
307874 tn?1242755798
You know, I thought I was the only one that had trouble with neuros.  I was thinking maybe they just didnt like the way I looked or smiled or something like that.  They just seem to look at you with a look that says. "Im so smart you should not be in my presance."  The first neuro I went to called me into his office. Told me to sit.  Started writing asking me questions like my age.  Would actually argue with me and say I did not ask you that - I said.  I would get so mixed up I just wanted to walk out of there.  I was sent because they thought I had a small stroke and was still having numbness and weekness and other stuff.  He kept asking me questions about doing a sleep study. For three months I listened to the same questions.  I finally went back to my dr and they got me in with another neuro but my appt is not untill jan. 29th.  i wish I was like T-Lynn and grab him by his bowtie.  This was great stuff.  Im sorry you had to go thru this.  We should all go on strike or something maybe the bonfire would be better.  Thanks, Lynette
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Avatar universal
Theres many possibilities,but this one would take them by surprise.

That attorney needs slapped.

T
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Avatar universal
I never really gave that one a thought... I did tell them I may take them to civil action; but, I have to legally do it this way first, as I understand it.  Their attorney laughed in my face and told me to go "Ahead".  

I never ever thought of a lien directly.  This is something I will have to look into.  Thank you SO MUCH for your input!!!

God bless you!!!
Helpful - 0
Avatar universal
After reading about the legallity of the toxic exposure  and the facility not disclosing its origins have you considered petioning the courts and putting a lein against the facility.This is a legal proceedure and I done this against a major department store where I originally hurt my back.Boy did I get a settlement and they were all to willing to agree with me.

Just a thought.To put a lien against someone is actually a cheap way to go and it gets you answers and their stock holders get very angry when this occurs.Its actually a cheap way of getting what ya need.Okay more devious.But efficient.If a lien is put against them there hands are tied and it ties up there assets.

T
Helpful - 0
Avatar universal
Hi!  Good to hear from you! !!  I hope that you are feeling much better!!

How was your Thanksgiving?  I have always loved the heat until the last few years...I was going to move to Florida, actually, many years ago but could not do it do to my divorce.  The judge would not even let me move out of state for medical school.  Then, years later when my son is older and I had a possibility to go near my home to a top medical school in the country my health went crazy.  Oh, well, such is life.  At least I did not go and run up a lot of tuition bills that I could not pay due to my health.  But, I have to admit medicine and playing music and sports is where my heart desires have always laid.  But, my tremors have kind of nixed that.

I get a lot of enjoyment talking to you here.  I am so glad that your little boy is alright.  Those little guys...You have to keep your eyes on them at all times it seems:  and we know that that is not always possible.  Thank goodness we have a good Lord watching over us!!!  And, Kudos for having such a thoughtful son!

What does your little boy look like?  You can write me a message back, if you'd like.
Have a very lovely day and thank you!
Helpful - 0
306827 tn?1279028740


It's very hot here, so it won't take me long to start a lovely fire. In your neuro's honour. OMG. A friend of mine has had a similar experience where the doc was very put out that she had done any research or was taking any action on her health's behalf, told her she needed a holiday, and was a hypochondriac. My friend walked out.

My little boy tried to set fire to a pile of cardboard (which was only there briefly, due to a delivery) at our back door yesterday RIGHT near the gas cannister for the barbecue. Stole matches from the top of the fridge. He actually got the cardboard alight.

See - he was thinking of your neuro!!
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Avatar universal
Thank you for your validation and support!!!  No, I am not in Florida, but I wish I was today as it is freezing here.

It just makes me wonder what kind of training these doctors are getting in medical school.  I realize that there is more and more to learn about, now; but, that is why we have these so-called specialists.  It seems that so many go incorrectly undiagnosed for years and are just given "depressants or anti-anxiety pills" because it is all in their head.  Well, I can certainly understand the difficulties of being able to diagnose someone; but, not following through with adequate medical care or advice can be "doing harm" if it allows a person to degrade even further.  Lack of validation certainly does not help one's psyche or medical condition.  It is so great to have people here like you here on the forum so that we can continue to support each other.  Everyone's comments has greatly helped me.  Thank you so much for your validation!!!
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Avatar universal
Hi,
  I read your recent 'horrendous' account from visiting that @%**! Neurologist!!  I've had a similiar experience and at the end of the discussion,(one-way; of course!-HIS!),--I told him exactly how I felt with regard to other's I've read about and their "MS" diagnosis going un-diagnosised! for two or more years!!=--Just because NOONE (DR.S) would correctlly READ the 'past' MRI"S!!  Well, it's really not your fault,--I don't know what's wrong with some of these Dr.'s these days but,--they are sadly lacking in proper manners and the ability to 'properly diagnosis' someone!!  Hang-in there!! It's definitely NOT your fault and I could still tell you MORE horrifying experiences I've experienced going to these,--so called..."Neurologists!!" --But,--I won't!!
P.S.  Are you sure you're not in Florida???(HAHA!)--I am!!
Sincerely,
ballet1
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Avatar universal
Yes, my sweetie is doing better.  He is finally getting some rest at the moment.  It was a shaky Thanksgiving; but, today is much better.  With all the blood in his one eye he said that he is going to tell the next person that makes a comment about his eyes that he got it taking on five guys (that looked kind of like the person being sarcastic).  

I told him that I was going to take him with me to that doctor's office to get my paperwork if they remember not to mail it.  He was going to tell them he got this from the last people he had to take on for not treating me well.

Oh well.  At least we are a little better in that we can at least find a little sarcastic humour, however sick it is.

Thank you so much for asking!
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Avatar universal
Yes, I talked to Osha several times.  They even faxed rules and regulations and gave their name for the judge.  But, at trial the judge refused entry of their information when presented.  It should not have made a difference as our state Worker's Compensation supposedly adopted the OSHA regulations.  The Commissioners under the governor are supposed to make sure that the employee's OSHA rights are upheld, but the Commissioners did nothing and that is why I am in the Appeals Court.  It is such a mess I cannot get anyone to help me.  I have tried the law school, legal assistance, disability resources, social services, civil courts, probate courts, advice from the state's legal department, the bar association, many attorneys, and legal assistance.  Noone seems to want to deal with it.  They tell me that they do not know how to deal with it.  There has never been a precedent like this in the state, supposedly.  And there are other cases of what appears to be toxin-induced brain damage that attorneys are having difficulty with.  There are no doctors in this state that specializes in this form of medicine.  The few toxicologists are in the ER and do not see patients on the outside.  As the company would not provide the information when I was sent to the ER from work, they did not/could not treat me.  The lack of information was written in the chart and presented to the court.  But, even that did not seem to make any difference in the decision.  

The attorneys want more information from the doctors.  The doctors want more information from the company.  The court's are unable or unwilling to enforce the subpoenaes that they signed.  I was advised that I will have to appeal to win because of the way the laws are. Again, every court keeps telling me it is the others courts responsibility to enforce the signed subpoenas and depositions.  

Attorneys do not want to mess with my case if I have MS as they say that if I have MS that that is all genetic and I should just stay home and pay my bills.  Easy for them to say!    It is especially frustrating when the doctors have written letters to the court requesting the information for my treatment and to be able to more definitively state causation.  The doctors think that my problems could be related to the exposure.  Even with MS almost every article says that there usually has to be some environmental factor that triggers it as only 2% of the people believed to be genetically susceptible get it.  Of course, I realize that all not is known and that viruses appear to play a big role.  I also had work-related disease exposure, but CSF testing for them has been negative so far.

The law says that in illness the responsibility falls upon the last employer to whom you were exposed and illness recognized.  I had yearly check-ups prior to the exposures that were great and even MRIs.  Of course, I have to trust that the doctors knew what they were doing up to this point.  And with or without my lesions, everyone should be entitled to this information.  And now, my past employer is stating that they do not know what happened to my occupational health file.  What a mess.  I told them that I think that that is violation of my HIPPA and privacy rights, also.

The loophole is that OSHA regulations cover the "employee".  Shortly after letting the company know that I was having problems and requested the information, I was laid off.  Once you are no longer employed you are no longer protected by OSHA as you are no longer an employee of that company.  That is part of my argument in court.  Our state's Workers' Compensation basically has defined an injured employee as an employee injured while performing their duties and has further delineated that their rights to workers' compensation does not cease when employment ceases irrespective of the cause, even death.  So, I am arguing that since the feds did not stipulate the definition of employee and our state, which has incorporated the OSHA laws into its WC system, has stipulated an employee retains his WC rights after leaving a company's employment, I should still be entitled to those rights after being laid-off.  And actually, I recently found out I could have fought the lay-off in court.  But, that is in the past.  The way the courts are allowing this, any employer could just lay an employee off after something happens and could get away without telling them the information requested and OSHA's and the employee's hands are tied.  

Also, as I was the only employeed assigned to do testing in that new laboratory, the company never had to report the injury or any incidents or accidental releases to OSHA unless I was killed as the law states that they are only required to report the accident if two or more employees are hospitalized at least a day as a result of it.  So, even though the hazmat teams were called and several people evacuated, OSHA never had to have a formal report of it.  Also, OSHA only keeps reports for a maximum of three years.  So, how could most environmental disease related to exposure be traced?  What loopholes for the employer!

The chemicals to which I was exposed came into my work area from surrounding areas of which I am unfamiliar.  I am not sure that they even had a good enough grasp of their environment to have been safe or give me the information that I need.  But, I had found so many structural defects since my exposure and I found out that almost everyone there had complained in writing to the company concerning the environment.  Unfortunately, some of the chemicals were being funneled into the ventiliation system over my desk from other areas.  And then there were the hazardous research chemicals coming through breaches in my lab's structure and other sources.  It was a mess.  Another lady was fired because she had rashes and problems and had complained right before I did.  She was only there a very short time.  She supposedly told them that she knew that they were aware that they had a problem and was trying to cover it up.  They walked her out.  I cannot even get my judge signed subpoenas answered to get any contact information for these people.  

In essence, I have tried to fight the system to improve it:  but, I fear I am about to fail as I believe the end is near for me legally.  At least I will have gone down trying to make an improvement.  I think with some help along the way I could have made a significant difference for the employees in this country.  I cannot even get the legislatures in the state on board.  So, hopefully I can get my story to the federal candidates for some promised changes after the next election.  But, I am not holding my breath.  Several people including officers have told me that I am being white-washed for political reasons.  I tend to believe that that is true.  I am not trying to get lots of money from this.  But, I could get disability financial help from WC to help with some of my medical needs.  Whatever that outcome, I should still be allowed my exposure information so that I can be medically ascertained and treated now and in the future.  It is all so ridiculous and frustrating...And so the saga continues.

Thank you for corresponding back with me!
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Avatar universal
You ladies have such a sense of humor--Ha!  I love the way you take action.

2 for 1.  Somebody ought to have an end of year sale, don't you think?  Maybe I could even get some kind of a rebate for a free MRI or something.

I kind of did something like you did, T-lynn with my OB when I was pregnant.  He kept telling me he would come back and answer my questions and then would not come back into the room.  So, at one visit I wrote all my questions really big across several pieces of paper and taped them to me in such a manner that he could not examine me without attending to the papers first.  He was so shocked when he lifted that little paper sheet that they give you...He answered my questions after that and was even apologetic after my caesarean for not having been as communicative as he should have been.

[more to follow--I got too wordy, sorry]

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Avatar universal
Heather you crack me up!!!!!!!!!!!

I'm not a red head but my mother is so I have that gene.I told my first neuro,actually I grabbed him by the tie and ask him if he ever listened to his patients or was he always an egotistic jacka**.He told me he came from from the Mayo Clinic,I told him I could understand why he still wasn't there.That got his attention.

Needanswers,I can understand your frustrations,have you ever thought to call OSHA and get there help,buy law ever facility is to have a listing of all chemicals and their bio sheets are to be made available to the employees.

I hope your significant other is feeling better

I like Heathers idea a crematory,maybe we can get a 2 for 1 special a husband and wife team.

T
Helpful - 0
195469 tn?1388322888
I think the word I wanted to use was appauld.  Not plural.  Geesssshhhhh!  
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195469 tn?1388322888
Don't use the feathers...I have SO much wood out back that I can start the bon-fire to put this bas***d on.  I cannot believe this guy.  I would have told him right in front of him, sir, "I would very much appreciate you NOT using foul language around me.  Do you understand?"

I am a natural red-head....I can have a bad temper...I would have walked out of his office and told him to...well you know what i would have told him.

And as to his wife...what made her an expert about MRI and radiologists?  Does she have some type of degree?  What a wackie couple....

Bon-fire BIG TIME.  BIG, BIG, BIG, time........... The heck with a bon-fire...how about the local crematory?

I am appaulded at this guy.

Heather
Helpful - 0
Avatar universal
I hope you have all had a wonderful Thanksgiving!!!  

Thank you so much for your input and support!  My doctor that diagnosed me suggested that I go to the MS center at the university but I cannot get into until next spring (at the earliest).  My new primary and the hospital doctors suggested I see another neuro in the meantime as my migraines are so intense and it was suggested by the neurorad that I get more evaluation done.  Looking at the c-spine it appears that there may be additional lesions in the upper thoracic spine.  There has never been an MRI of the thoracic done, either.  It was thought that I may also have had transverse myelitis with my recent lesion and sometimes that has a predeliction for the thoracic spine.  So, it seemed wise to try and get this testing done while I was having this increase in symptoms.  

Perhaps it would give more information towards my treatment.  I was hoping to get a second openly objective opinion that would constructively support my medical condition(s) and treatment.  Also, my new primary and this doctor are affiliated with another good MS center whose head doctor is also an acquaintance of my eye physician.  We were hoping I could get in sooner this way.  

I felt whether he was in agreement with the diagnosis or not he should have discussed the films and his clinical findings with me.

Yes, I do believe that he was dismissive before I was even examined.  

I was having difficulty with the office paperwork due to my migraine, vision, and memory problems and his wife seemed quite irritated about it all.  You would think that a neurologist's office of all places would be one of the more understanding as people come to them with all sorts of brain dysfunctions and physical limitations.  I could not bring my significant other with me to help as he recently had three laser surgeries on his eyes and had steroids injected the day before.  He had an adverse reaction after the injection and went blind.  They had to go in with syringes and remove some fluid as his pressure supposedly approximately quintupled.  He has regained much of his vision, but they stuck his one eye-ball at least seven times and hit a vessel which also bled.  So, he could not assist me in anyway at all.  He was quite ill himself.

And then they all wonder why we get depressed.  The hospital neuroradiologist said that she thought I had some kind of strange non-viral type damage to my CNS.  I asked her after that statement if she thought that this could be due to my chemical exposure (which I had not told her about).  She said, "Yes, very possibly; but, I would have to know the chemicals".  I explained that that was what I was in the Appeals Court to try and obtain.  The corporate attorney had the judge convinced that I should just be able to get into a neuro and get a complete assessment and have my case ready in thirty days.  I explained that it takes a long time to get into these physicians and get tests done and diagnosis confirmed.  The head judge just said, "Too bad.  That's your problem".

I should have been able to have this information by law.  I do not want this to continue to be the precedent for everyone in the future.

It is just so frustrating to try and take care of our health without all the outside attitude.  You have really helped me today.  Thank you for your concern and consideration and support!!!  Thank you so much....  
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Avatar universal
This appointment had to of been a nightmare.

The neuro that diagnosed you,why is he not treating you or was this for a second opinion.

As far as this DR stating that you know to much for your own good is off the wall,most DRs. like there patients informed,especially after you have been DX'd with a disease.

This neuro was dismissive before you even entered his office.

Call and request a copy of his clinical notes,then write him a letter and bluntly tell him how you feel about the appointment and about his antics.

He definately needs roasted along with his wife.

T
Helpful - 0
222135 tn?1236488221
I'll save our feathers too - well need lots of kindling for THIS bonfire!
Unbelieveable - that's all I can say (and for me to be speechlessis no small feat)

Penn
Helpful - 0
231441 tn?1333892766
So sorry about your experience.  Weenie roast needed for this one AND his wife.
You need a new neuro!

S
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