Just keep looking. And yes go to another neuro. I am in limboland as well. I also have wanted to give up, especially when I start to feel better. But my husband keeps reminding me that we both know that it is going to come back and usually worse than the last time. He is what keeps me searching. I am grateful for his support.
You know your body, something is definetly wrong. Sometimes though it does not hurt to take a break from all the tests for a little while. If you need a break take it, just don't give up altogether. Come back and keep searching. It looks like you have a supportive PCP so at least she will help. Good luck on the new neuro.
Thank you for your support. I don't mind the tests, just the lack of clear answers! :o)
My closest support network have big problems of their own, and I would feel very alone right now if not for this community. I'm pretty self-sufficient and good at advocating for myself, but I'm worn out.
Reading about other people's struggles, strengths, successes and caring concern for others is encouraging, even when it's tough to type 'cause my hands are shaky and to read because my vision is a little blurry, a little jittery.
I'm also reminded that I could have things a lot worse.
Thanks, Tahiri, and everyone else, for being here.
I think I forgot to mention that my timeline is in my journal, if anyone is interested in looking at it.
You musn't ever give up on yourself or your quest for answers. I would give you all my strength in a heartbeat in this fight for a correct diagnosis. I know the road of Limbo is a hard one and it is not for the fair hearted. But hang in there, Sweetie. The important thing is you know something is wrong, always believe in yourself and never give up, the LimboMonster is always on the side of the road waiting to suck you in the depths of despair. I have had to slay many a monster in my battle. But in the end when you get the diagnosis that makes sense, the relief you will feel is one of the best feelings you will ever feel, I want that feeling for you. I want it for everybody. A couple of good things about Limbo is it will make you a stronger person, you meet some really great friends, and it will make you a great advocate about your health care.
I am rooting for you all the way, Kathy!!!! I am sending you many, many, cyber hugs!!!
Don't you give up Girl!!
I know it is tiring but you need to keep on pushing for answers. I also know giving up seems like the best answer when you have no energy left to move further. I have been there, but giving up is to easy!!
We are all here for you good days and bad days.
Don't give up hope that there is a answer out there, because there is! I know there is!!
Thanks a lot Ada, you made me cry! Honestly, I really needed a good cry.
Thank you so much; I've heard of a few of the monster's you've slain, and if you have the energy left to encourage me to keep fighting, then I'd better raise up my sword and head back into battle! Wow, strength like yours multiplies so that you can share it with others.
Oh, I was just looking at the picture of your children while you wrote to me (interesting coincidence) and they are indeed beautiful.
feeling the love,
Hugs back at ya', gal. I'm so glad you were here to help pick me up when I was really dragging through the muck.