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Tremors anyone?
Have you lovely helpful people had hand tremors and all over tremors? You know it has happened to me so I want to kno if it happened to anyone.
Both hands, if my hand is in the one particular position that starts both hands to tremble. Like I am holding a spoon trying to take some soup or oatmeal and my hand starts to shake, tremble. I can see down the road item in the spoon may get catapulted across the room...This started in the last 6 months. 4 months ago I had an episode of all over tremble, legs shaking in my pants and shoes. I slowly get to the kitchen and find protein hoping it will stop the shake and also give me something to focus on besides "oh my gosh "there's an increase in MS Activity. Third all over tremor happened today. And as I said the hand tremor is there laying in wait for the just right way I hold my hand that starts this off. Anyone have this happen. Is there something yo do other than call the MD. Thanks to those of u busy people who may take time to share ur experience. Nicky
Both hands, if my hand is in the one particular position that starts both hands to tremble. Like I am holding a spoon trying to take some soup or oatmeal and my hand starts to shake, tremble. I can see down the road item in the spoon may get catapulted across the room...This started in the last 6 months. 4 months ago I had an episode of all over tremble, legs shaking in my pants and shoes. I slowly get to the kitchen and find protein hoping it will stop the shake and also give me something to focus on besides "oh my gosh "there's an increase in MS Activity. Third all over tremor happened today. And as I said the hand tremor is there laying in wait for the just right way I hold my hand that starts this off. Anyone have this happen. Is there something yo do other than call the MD. Thanks to those of u busy people who may take time to share ur experience. Nicky
Oh my gosh. I am so sorry you were treated that way by that awful person!
I agree with you about not truly being "embarrassed" of what others think. My parents did a fine job of raising me not to judge others and not to be bothered by others judgement of me. My whole concern is in an employment setting. I have witnessed people being discriminated against for their physical disability. I have also seen treatment with pity, and finally genuine compassion. I want to experience the latter!
Also, I want to commend you for working in the field that you did. True, you could not been in a better field considering that you had your own limitations. I cannot think of someone who could fulfill that type of job that would be more understanding.
I agree with you about not truly being "embarrassed" of what others think. My parents did a fine job of raising me not to judge others and not to be bothered by others judgement of me. My whole concern is in an employment setting. I have witnessed people being discriminated against for their physical disability. I have also seen treatment with pity, and finally genuine compassion. I want to experience the latter!
Also, I want to commend you for working in the field that you did. True, you could not been in a better field considering that you had your own limitations. I cannot think of someone who could fulfill that type of job that would be more understanding.
COMMUNITY LEADER
Your so right, I definitely wasn't thinking about employment situations and it's potential discrimination when i was explaining my lack of embarrassment, i was thinking about strangers and the unimportant people you bump into through life, basically the general public's or acquaintances reaction to the physical presentation of me.
I've spent my entire life in some form or other, interacting, advocating, supporting, educating and living with people with various physical or psychological disabilities (family, friends, employment, volunteering), so it would probably be very difficult for me to feel embarrassed in regards to my own experience.
I do understand the different issues with employment situations and trying to hide something to avoid questions or speculation from people in my work environment, because it's something i've done too. What you do for a living, career type, environment etc maybe the important factor there, i ended my working life employed in the field of disability, so probably one of the best fields to be in.
I really doubt i would of had the same understanding or experience, if i'd still been working in the corporate world when my tremor became problematic. Though i personally still wouldn't think in terms of embarrassment if it had, unlike when i was still working, what i experience now is simply impossible to hide, apples and oranges and i'm finding it hard to even guess how i'd be or what i'd do if I was in a similar situation as yours, which is definitely more difficult than my none working life.
I have never experienced opinionated ignorance or discrimination whilst in the work force, though I have from outside it, I was once yelled at for being an embarrassment and making a spectacle of my self. It was quite a shock at the time, he either assumed I was off my face drunk as he yelled at me, ironically he held a beer in his hand at the time or he for reasons of his own disapproved of people with disabilities enjoying themselves or wake boarding and i'm pretty sure I was feeling a very different emotion to embarrassment............from my perspective i can't do or be any different, he'd just shown him self up to be an idiotic fool who wasn't worth my time or emotional energy and I had nothing to be embarrassed about, though he most definitely did!
Cheers............JJ
PS i do walk like a boucey string puppet, slurr my words and fall over a lot as well as giggle, so its probably not the tremor that makes 'me' look like i'm off my face drunk :D
I've spent my entire life in some form or other, interacting, advocating, supporting, educating and living with people with various physical or psychological disabilities (family, friends, employment, volunteering), so it would probably be very difficult for me to feel embarrassed in regards to my own experience.
I do understand the different issues with employment situations and trying to hide something to avoid questions or speculation from people in my work environment, because it's something i've done too. What you do for a living, career type, environment etc maybe the important factor there, i ended my working life employed in the field of disability, so probably one of the best fields to be in.
I really doubt i would of had the same understanding or experience, if i'd still been working in the corporate world when my tremor became problematic. Though i personally still wouldn't think in terms of embarrassment if it had, unlike when i was still working, what i experience now is simply impossible to hide, apples and oranges and i'm finding it hard to even guess how i'd be or what i'd do if I was in a similar situation as yours, which is definitely more difficult than my none working life.
I have never experienced opinionated ignorance or discrimination whilst in the work force, though I have from outside it, I was once yelled at for being an embarrassment and making a spectacle of my self. It was quite a shock at the time, he either assumed I was off my face drunk as he yelled at me, ironically he held a beer in his hand at the time or he for reasons of his own disapproved of people with disabilities enjoying themselves or wake boarding and i'm pretty sure I was feeling a very different emotion to embarrassment............from my perspective i can't do or be any different, he'd just shown him self up to be an idiotic fool who wasn't worth my time or emotional energy and I had nothing to be embarrassed about, though he most definitely did!
Cheers............JJ
PS i do walk like a boucey string puppet, slurr my words and fall over a lot as well as giggle, so its probably not the tremor that makes 'me' look like i'm off my face drunk :D
I have intention tremor. When I exercise or get too hot, it all gets worse. When I cool down and rest, it mostly resolves.
I know, right?! Tremors are prevalant in people with MS. This isn't her only fault either... :-(
Supermum,
I just want to elaborate on the embarrassment that I (and perhaps others might be referring to)...
For those of us that work in jobs outside of our homes or families it can be worrisome. When others do not know your condition they can jump to their own conclusion. She must be drunk or whatever....
I think for me, it is more that I don't want my colleague's or clients to think I am a drunk, yet I do not think it is their business to know my medical condition (and possibly have the opportunity to discriminate against me). So it is a tough spot to be in.
Do you tell them your problem or do you let them possibly think you are a drunk? Either way it can end poorly. So we hope no one notices and try to hide it.
I just want to elaborate on the embarrassment that I (and perhaps others might be referring to)...
For those of us that work in jobs outside of our homes or families it can be worrisome. When others do not know your condition they can jump to their own conclusion. She must be drunk or whatever....
I think for me, it is more that I don't want my colleague's or clients to think I am a drunk, yet I do not think it is their business to know my medical condition (and possibly have the opportunity to discriminate against me). So it is a tough spot to be in.
Do you tell them your problem or do you let them possibly think you are a drunk? Either way it can end poorly. So we hope no one notices and try to hide it.
Kelly - I cannot believe your neuro had no interest in your tremors. When I mentioned mine to the neuro the first time he saw me (in the ER to rule out a stroke) he was VERY interested in them. Within one month I was diagnosed with MS and he told me my tremor was due to the MS.
I thought that tremor was common in MS?
Maybe it is time for a new neurologist.
I thought that tremor was common in MS?
Maybe it is time for a new neurologist.
I get tremors or what seems to look like jumping/fluttering fingers. Usually I see it after a shower or using my hands. If I hold my hand a little bit in front of me, palm up, my fingers will just jump all around.
I told my neuro about it and took a video. She just said she doesn't think my tremors are related to MS. She didn't even ask me any details about them - about what they look like, when they happen, and she didn't want to see the video. She's such a good neurologist...
I told my neuro about it and took a video. She just said she doesn't think my tremors are related to MS. She didn't even ask me any details about them - about what they look like, when they happen, and she didn't want to see the video. She's such a good neurologist...
COMMUNITY LEADER
Glad to be of help!
Wake boarding is a water sport, a type of water skiing though snow boarding has a 'similar' board size and ride experience but wake boarding is on water and your towed behind the ski boat like water skiing is. I have a couple of photos on my profile page, not good ones but it'll show you what wake boarding looks like :D
Gravity is the enemy lol if my body is fully supported like it is when i'm laying down to sleep, or sitting in a recliner chair etc then gravity can't cause all its fun and games. So the constant movement from the tremor goes dormant when the arm, leg, head etc is supported or what's called 'at rest'. I 'feel' it even when it's at it's quietest though, hmmm if you touch the washer when its on a fast spin cycle, it'll give you an idea of what i feel and it's sort of like what the tremor looks like too, a continual fast small rippling-vibrating-shaking-tremor-movement.
Now if the washing machine is out of balance, the feeling and action it makes significantly changes and the movement is bigger and more visible, more rumbling and jerky lol which is similar to how I get..... the more physically active i am, the more rumbling out of balance and more visible the tremor is. There seems to be a limit of activity i can do before it becomes really problematic and difficult to work around, finding the balance between resting and doing what i want or need to do is something i'm constantly working on, cause my mind set still thinks i can do anything d'ho :D
A lot of people say their tremor bothers them because of what other people maybe think of them but I've honestly never felt embarrassed or uncomfortable by anything i've had no choice in. I've lived the theory, that this is me in all my glory or not lol the real me and its just not my problem if someone, (no matter who they are) possibly thinks less of me because of how I look, move, sound, walk etc etc i've kind of always bought into the idea, how I feel about my self is more important, because you can never control someone else's thoughts, well it seems to work for me anyway ;)
Technically i've yet to be 'officially' dx by a neurologist, I've got decades long medical history consistent to RRMS, clinical signs of both brain and spinal lesions, chronic number of MRI lesions showing up in the white matter and deep white matter etc. I put finding an MS neuro and making it official on hold for the time being, so i'm not on a DMD and i honestly have genuine doubts that the DMD's would be beneficial to 'me' now........which isn't helping me towards getting in the right head space to change it!
Tremors are very difficult to treat, and unfortunately the available treatment options 'so far' don't have a good researched record of success, so far i'm handling it and I wear weights when it's at its worse which i do believe helps.
"Treating tremor
Tremor is considered by physicians and other health professionals to be one of the most difficult symptoms to treat. To date, there have been no reports of consistently effective drugs for tremor. Varying degrees of success have been reported with agents such as:
the anti-tuberculosis agent, isoniazid (INH);
the antihistimines Atarax® and Vistaril® (hydroxyzine);
the beta-blocker Inderal® (propranolol);
the anticonvulsive medication Mysoline® (primidone);
a diuretic Diamox® (acetazolamide); and
anti-anxiety drugs Buspar® (buspirone) and Klonopin® (clonazepam).
Weights and other devices can also be attached to a limb to inhibit or compensate for tremors. An occupational therapist is the health professional who can best advise about assistive devices to aid in the management of tremor."
http://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Tremor
Cheers.............JJ (aka just janice)
Wake boarding is a water sport, a type of water skiing though snow boarding has a 'similar' board size and ride experience but wake boarding is on water and your towed behind the ski boat like water skiing is. I have a couple of photos on my profile page, not good ones but it'll show you what wake boarding looks like :D
Gravity is the enemy lol if my body is fully supported like it is when i'm laying down to sleep, or sitting in a recliner chair etc then gravity can't cause all its fun and games. So the constant movement from the tremor goes dormant when the arm, leg, head etc is supported or what's called 'at rest'. I 'feel' it even when it's at it's quietest though, hmmm if you touch the washer when its on a fast spin cycle, it'll give you an idea of what i feel and it's sort of like what the tremor looks like too, a continual fast small rippling-vibrating-shaking-tremor-movement.
Now if the washing machine is out of balance, the feeling and action it makes significantly changes and the movement is bigger and more visible, more rumbling and jerky lol which is similar to how I get..... the more physically active i am, the more rumbling out of balance and more visible the tremor is. There seems to be a limit of activity i can do before it becomes really problematic and difficult to work around, finding the balance between resting and doing what i want or need to do is something i'm constantly working on, cause my mind set still thinks i can do anything d'ho :D
A lot of people say their tremor bothers them because of what other people maybe think of them but I've honestly never felt embarrassed or uncomfortable by anything i've had no choice in. I've lived the theory, that this is me in all my glory or not lol the real me and its just not my problem if someone, (no matter who they are) possibly thinks less of me because of how I look, move, sound, walk etc etc i've kind of always bought into the idea, how I feel about my self is more important, because you can never control someone else's thoughts, well it seems to work for me anyway ;)
Technically i've yet to be 'officially' dx by a neurologist, I've got decades long medical history consistent to RRMS, clinical signs of both brain and spinal lesions, chronic number of MRI lesions showing up in the white matter and deep white matter etc. I put finding an MS neuro and making it official on hold for the time being, so i'm not on a DMD and i honestly have genuine doubts that the DMD's would be beneficial to 'me' now........which isn't helping me towards getting in the right head space to change it!
Tremors are very difficult to treat, and unfortunately the available treatment options 'so far' don't have a good researched record of success, so far i'm handling it and I wear weights when it's at its worse which i do believe helps.
"Treating tremor
Tremor is considered by physicians and other health professionals to be one of the most difficult symptoms to treat. To date, there have been no reports of consistently effective drugs for tremor. Varying degrees of success have been reported with agents such as:
the anti-tuberculosis agent, isoniazid (INH);
the antihistimines Atarax® and Vistaril® (hydroxyzine);
the beta-blocker Inderal® (propranolol);
the anticonvulsive medication Mysoline® (primidone);
a diuretic Diamox® (acetazolamide); and
anti-anxiety drugs Buspar® (buspirone) and Klonopin® (clonazepam).
Weights and other devices can also be attached to a limb to inhibit or compensate for tremors. An occupational therapist is the health professional who can best advise about assistive devices to aid in the management of tremor."
http://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Tremor
Cheers.............JJ (aka just janice)
I started getting tremors well over a year ago. At first it would only occur if my shower was too warm or I got overheated & my right leg would always be the first to start. I now have a tremor of my trunk (sometimes my head) which really makes me look like I'm drunk, a postural tremor in my limbs & an intention tremor which I've had for some time now. I have always thought it's worse on my right side but maybe it's because I am dominantly right handed.
I have found many things can make my tremors more pronounced like heat, fatigue & stress. When I first started getting an all over tremor feeling I thought it may be low blood sugar but I have checked & this is not the cause. I don't get the overall tremor feeling that often so it doesn't impact on me as much. I don't have any tremor when I'm sitting or laying with support to my body.
I hope this helps & to know you are definitely not alone. :-)
Karry.
I have found many things can make my tremors more pronounced like heat, fatigue & stress. When I first started getting an all over tremor feeling I thought it may be low blood sugar but I have checked & this is not the cause. I don't get the overall tremor feeling that often so it doesn't impact on me as much. I don't have any tremor when I'm sitting or laying with support to my body.
I hope this helps & to know you are definitely not alone. :-)
Karry.
I have hand tremors also. Mine is an intention tremor (it happens when I am actively doing something). I have recently cut my hair and changed/decreased how I do my makeup because of it. I too worry that others will think I am a drunk!
They started about 1 1/2 years ago and I just ignored them. Turns out they are from the MS that I was just recently labeled with.
As for the all over shaking, this has happened to me a few times. It was always after I had been active (exercised or had been heavy duty cleaning my house). My hands, arms, and legs were trembling so badly I could hardly walk. Each time I thought maybe my blood sugar was just low (I am not diabetic though).
Eating did not help, in fact I was shaking so badly I could barely get food to my mouth. It scared the crap out of me the first time. Now I just go with it. They seem to go away after about an hour of just laying down.
I am not sure what this is about. So I guess I second this question.
They started about 1 1/2 years ago and I just ignored them. Turns out they are from the MS that I was just recently labeled with.
As for the all over shaking, this has happened to me a few times. It was always after I had been active (exercised or had been heavy duty cleaning my house). My hands, arms, and legs were trembling so badly I could hardly walk. Each time I thought maybe my blood sugar was just low (I am not diabetic though).
Eating did not help, in fact I was shaking so badly I could barely get food to my mouth. It scared the crap out of me the first time. Now I just go with it. They seem to go away after about an hour of just laying down.
I am not sure what this is about. So I guess I second this question.
Hey JJ- I wasn't sure if ur name was JJ because I have seen the letter J used as a parting thingie in an email. I thought it was part of a smiley face or something of that nature. My daughter in law signs an email using J. Her name is Michelle.
Anyway ur post above, about tremors, was spot on and very helpful. And such a sense of humor u are blessed with.
For u, not being able to stop moving sounds pretty exhausting-understatement of the year-r u able to sleep? Perhaps a waterbed? Kind of kidding but not. I don't know what a wakeboard is :(. Kind of sounds like a driver test that u had and crashed into a "dummy" ? Guessing we hav a bit of a language barrier....But, I am with u on holding and dropping sharp knives...my kids r older so I am no longer cutting hair or ears. Things leap from my hands on a regular basis..glasses, cups, dishes. Do u take MS meds? I do not..several months ago I started a muscle relaxer..helps all around but esp. Head, neck,body pain everpresent. Pain meds plus muscle relaxer= better pain controll.
Thanks u for your friendship! Thanx too for information about the diff kinds of tremors and URL for MS info. It is 10am here in USA, Boston Massachusetts. Ok, it's 9:50 am to be more accurate. Thanx again, Nicky
Anyway ur post above, about tremors, was spot on and very helpful. And such a sense of humor u are blessed with.
For u, not being able to stop moving sounds pretty exhausting-understatement of the year-r u able to sleep? Perhaps a waterbed? Kind of kidding but not. I don't know what a wakeboard is :(. Kind of sounds like a driver test that u had and crashed into a "dummy" ? Guessing we hav a bit of a language barrier....But, I am with u on holding and dropping sharp knives...my kids r older so I am no longer cutting hair or ears. Things leap from my hands on a regular basis..glasses, cups, dishes. Do u take MS meds? I do not..several months ago I started a muscle relaxer..helps all around but esp. Head, neck,body pain everpresent. Pain meds plus muscle relaxer= better pain controll.
Thanks u for your friendship! Thanx too for information about the diff kinds of tremors and URL for MS info. It is 10am here in USA, Boston Massachusetts. Ok, it's 9:50 am to be more accurate. Thanx again, Nicky
Hi Ess, I am with u about one good thing about getting old (will turn 68 next month) is caring less about what other may be thinking about u.
I will call the neuro and I am overdue for seeing him. Thanks for telling me about ur experience, sounds like u have been dealing with it for quite a while.
Keep u posted, Nicky
I will call the neuro and I am overdue for seeing him. Thanks for telling me about ur experience, sounds like u have been dealing with it for quite a while.
Keep u posted, Nicky
Thanks for sharing ur tremor experience with me. It always feels better to kno u r not the only shaker in the world ( I thought it was an MS issue, but wasn't positive.) . I am sure u already try not to care what others may be thinking about u, but I know what u mean...I wonder what my neighbors must think when I take the dog out in the back yard and I am unbalanced ! I figure they may think I have hit the bottle. I go out there wearing sweatpants under a nightgown, covered by a big shirt and then my coat...very bag lady :) thanks for writing.
Nicky
Nicky
COMMUNITY LEADER
Hey Nicky,
For me the tremors started about 3 years prior to my big bang of 09, it started off being only visible intermittently eg fatigue, heat etc but somewhere along this journey it stuck and i haven't stopped moving from head to toes for a couple of years now. When It was invisible and it was just the feeling of the tremor, which is really really hard to explain. lol It's visible now and i'd mainly describe it as a small rhythmic ripple with a little jerk that keeps repeating none stop but it escalates with activity, so the more I do the more pronounced it gets.
I throw things, stab my self whilst eating, poke the kids or hubby in their eyes, scare the bejeebers out of son when i'm clipping his hair, I nearly cut his ear yesterday, ohhhh so close lol I have to move with conscious thought to minimise the mishaps, it's not an exact fix it but if i don't i'll usually do something i didn't intend to do eg throw the knife i'm using across the kitchen lol
Technically i can still say i wakeboard though after my last epic test dummy crash i'm not sure anyone will let me but anyhooo......I usually splat like someone doing a dead faint, it's because my strength has totally run out. Whilst i'm floating in the water i really can't move (dead fish impersonation) i've got nothing left but as soon as i'm back in the boat or back on land, the tremor starts rumbling and this is probably when it's been at its worst.
Strange feeling to be immobile in the water and then unable to stop moving when i'm fighting gravity again on land, water is peace land is um..... no comment lol
"The two most prevalent forms of action tremor in MS are:
* Intention Tremor - tremor presents during target directed movements. Tremor amplitude increases during visually guided movement towards a target.
* Postural Tremor - tremor presents while voluntarily maintaining a position against gravity."
http://www.msaustralia.org.au/sites/default/files/ataxia.pdf
Cheers..............JJ
For me the tremors started about 3 years prior to my big bang of 09, it started off being only visible intermittently eg fatigue, heat etc but somewhere along this journey it stuck and i haven't stopped moving from head to toes for a couple of years now. When It was invisible and it was just the feeling of the tremor, which is really really hard to explain. lol It's visible now and i'd mainly describe it as a small rhythmic ripple with a little jerk that keeps repeating none stop but it escalates with activity, so the more I do the more pronounced it gets.
I throw things, stab my self whilst eating, poke the kids or hubby in their eyes, scare the bejeebers out of son when i'm clipping his hair, I nearly cut his ear yesterday, ohhhh so close lol I have to move with conscious thought to minimise the mishaps, it's not an exact fix it but if i don't i'll usually do something i didn't intend to do eg throw the knife i'm using across the kitchen lol
Technically i can still say i wakeboard though after my last epic test dummy crash i'm not sure anyone will let me but anyhooo......I usually splat like someone doing a dead faint, it's because my strength has totally run out. Whilst i'm floating in the water i really can't move (dead fish impersonation) i've got nothing left but as soon as i'm back in the boat or back on land, the tremor starts rumbling and this is probably when it's been at its worst.
Strange feeling to be immobile in the water and then unable to stop moving when i'm fighting gravity again on land, water is peace land is um..... no comment lol
"The two most prevalent forms of action tremor in MS are:
* Intention Tremor - tremor presents during target directed movements. Tremor amplitude increases during visually guided movement towards a target.
* Postural Tremor - tremor presents while voluntarily maintaining a position against gravity."
http://www.msaustralia.org.au/sites/default/files/ataxia.pdf
Cheers..............JJ
I have essential tremor, which shows itself in my hands, and to a minor extent in my voice. This isn't an MS thing, as it started suddenly when I was in college, and MS didn't arrive till many years later. I've never had all-over tremors.
I used to be very self-conscious about my hands, and too, worried what people would think. Now with MS, I lurch occasionally because my balance is kaput. However, one good thing about getting old is that you realize that people will just have to think what they choose to, and no big deal. I also know that most of the time they aren't thinking about me or really noticing anyway. So age has its compensations :-)
But Nicky, why not just call the neuro? That's what they're there for. There are meds that often calm the MS tremors.
ess
I used to be very self-conscious about my hands, and too, worried what people would think. Now with MS, I lurch occasionally because my balance is kaput. However, one good thing about getting old is that you realize that people will just have to think what they choose to, and no big deal. I also know that most of the time they aren't thinking about me or really noticing anyway. So age has its compensations :-)
But Nicky, why not just call the neuro? That's what they're there for. There are meds that often calm the MS tremors.
ess
I have quite bad hand tremors and occasional all over ones, right hand much worse than left. I can't remember exactly how long it's been going on but I think it has been since early 2012. I do have a good size lesion in my right cerebellum which I'm guessing might be responsible.
I'm really self conscious about them as I worry that people will think I've been hitting the bottle.
I'm really self conscious about them as I worry that people will think I've been hitting the bottle.
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