This could be as simple as a magnesium deficiency. Have you had your magnesium and calcium levels checked? Overall twitching is not related to ms -- I have both, however the twitching issue cleared up almost entirely with magnesium supplements. Given that you have just given birth, it is a distinct possibility that you are depleted nutritionally.
Magnesium is not tested normally, so it's something to ask you gp/pcp about. Was your vitamin D level checked?
Thanks for the reply. Yes had complete work up including vit d (which was almost too high actually). And magnesium was completely normal. I still took mag supplements, but no positive results from it. Calcium normal also. Only thing that's flagged was my folic acid was high.
We chatted about a year ago (see http://www.medhelp.org/posts/Multiple-Sclerosis/ms-or-bfs/show/2484883#post_12092794
) and what i mentioned to you about your anxiety would still be my input today, but i did have an additional related thought i hadn't mentioned before.
Do you take any type of mental health medication? IF you do, it's possible these random muscle fascilations are a side affect, random fascilations-twitching-spasms are very common side effects, so it might be worth considering...
Thanks for the reply. Yes I take zoloft 100 mg. Never had these crazy fascilutaions with it pre pregnancy. .but I know childbirth can change a multitude of things. I just feel if it was a side effect (which I have considered) it wouldn't last over a year I'd assume. My anxiety subsided substantially and still no relief.
And to answer yes it does seem to worse with excersice, mainly my feet.
Also--I mentions BFS to my neuro he said no because I'm not having "true fasculations"...which I strongly disagree. He is head of neuro so I know he's very knowledgeable, but that did make me question his ability to diagnose. He seemed kind of dismissive honestly, and I know its because I was a meir spec on his appointment boom that day. My pcp, on the other hand, thinks it's BFS!
Yes, I've read any ssri can cause twitching. I just have a hard time believing it considering the amount of time I've had it. Side effects are usually not identified as a cause if not better within a few months... I have been on either zoloft or Celexa for 5 years, never an issue. Also the twitching began when on celexa, I then switched to zoloft thinking it was the celexa. No change.
What's the difference in a fasc and twitch? And can bfs still be a possibility? A lot of credible sites I read explain bfs as twitching.
I can't see all my twitches...ie: internal like butt cheeks, stomach, etc...
I do tend to have health anxiety...not hypochondriac just fear of the worst. My right eye is constant but mainly when being scared or blinking hard. I can do it on demand. Strange. But if I get splashed with watee, or if my son throws a toy my direction, it goes haywire. Very irritating. Even when my anxiety is low, twitching never ceases. I just don't want something sinister to be brewing and not aware of it.
I have a lot of twitching - calves, eyelids (especially left) and it feels like other areas too - back and butt. After a recent round of tests (Evoked Potentials, EMG and NCS) didn't show anything the Neuro ran some bloods which show I have a "voltage gated potassium channel antibody". It's thought this may be related to twitching though this hasn't been confirmed, and am awaiting the outcome of a retest.
Goodness what is that? So sorry to hear you're going through this also my potassium was almost low. One point from range.
Have they talked about Benign fasciculation syndrome? If it was MS you would have abnormal neurological exams. Are they abnormal? MRIs are really the only real tests for MS. Occasionally they will do a LP if they really can't prove it is MS. I listened to a MS Specialist talk today. He said Evoked potential, emgs, and LPs are less used. Sorry I have no answer.
It's some sort of neurological receptor...obviously I'd never heard of it until I got the letter from the Neuro but I think it's being pursued by him as a cause of the fasciculations/twitches.
finnsmommy, i genuinely believe you would be much better off focusing your attention towards learning every thing about Health Anxiety, so you have a better understanding of the medical condition you know you are dealing with.
Various behaviours eg googling-reading about, giving the anxiety a voice and posting in condition specific support groups, preoccupied by the presence of fasciculations and seek multiple medical evaluations or questioning validity of medical evidence, compelled to seek out validation of your anxious thoughts but really wanting reassurance that your fine etc etc etc of the medical condition your H/A is focused on, will only feed your health anxiety, escalating your spinning thoughts, hyper focusing your attention more towards your body, worsening and or adding symptoms and cause your fears to escalate.....don't feed your Health Anxiety!
Lets say these twitches are Benign Fasciculation Syndrome (BSF) which is also known as 'muscle twitching syndrome', people with psychological conditions commonly experience and are diagnosed with BSF, as it's often a manifestation of psychological distress (somatization) and or mental health medication side affects. Treating or more appropriately treating anxiety is a major factor in suppressing BSF, since anxiety is one of the major cause of twitching muscles.
"My right eye is constant but mainly when being scared or blinking hard. I can do it on demand. Strange. But if I get splashed with watee, or if my son throws a toy my direction, it goes haywire. Very irritating."
To me you are describing what wouldn't be an abnormal startle and muscular reflex reaction, the physical trigger is the automatic scrunching of your eye lids closed when startled, typically lasting seconds or for as long as it takes you to calm down after the scare if you experience anxiety. btw eyelid twitching is very much associated with mental health, sleep quality/amount etc and if your right eye lid is already prone to twitching, blinking hard, scrunching up your eyes when startled would irritate or exacerbate it and probably explain why you can also do it on demand.
Food for thought..........JJ
Thanks four all your thoughts. I agree to some extent. Although, I don't quite have the mental state you're making me out to have. I'm not being condescending at all. I just think you have the wrong impression. I do worry and sometimes a lot. Although I do not tend to focus my only thoughts on my twitching. I do however tend to worry in general a lot. (Not just my health). Which I'm sure can triggee twitching as well. I just though 1.5 years was a but long...
Hello @finnsmommy. I am a 25yo female and have twitching or fasciculations all over my body (especially legs) for over a year! Doctors say it is caused from anxiety, which i experience a lot! I did a brain MRI though and showed something like "lesions" but i cannot find the term in english since i am greek. They were not pathological though, even after using intravenous fluid during mri, still showed non pathological. I am getting crasy over it, since the twitching won't go away and i am really scared about ms. How are you now? Do you still have these?