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Avatar universal

Update had neuro visit

Just as an update.  I saw expert Boston neurologist.  Had a fairly good exam.  He assured me that I did not have MS.  He felt my unilateral facial numbness (3 episodes, first with double vision) were a classic migraine equivalent presentation.   I've never been a migraine sufferer, but as he explained, as we age (I'm 52), the migraines may not involve pain, but because of neuron network mix- up, may present as sensory.  He reviewed my report of non-contrast MRA/MRI and states it is normal: no vascular problems or lesions(he did not look at CD copy).  He didn't comment on my previous 7 day vertigo w/vomiting, intense itching, and I didn't get the chance to talk about any other sx.  He wasn't impressed with elevated inflammation markers(CRP,ESR). He thinks my right sided leg weakness and numbness, my perineal  numbness (is a nerve root problem stemming from my known lumbar degeneration changes.  He didn't seem concerned about my Vit D deficiency (I have been on 50,000 u weekly for 7 months), and my current levels has gone from 10 to 16.  He stated that he sees about 3 patients everyday that he feels present with migraine equivalent (ME) and left it at that.  He offered EMGs, but I declined, since the pinprick tests seemed fine to me.  I'm about 90% confident that this may be the problem, and I'm going to go on an anti-migraine diet.  Time will tell.  I will track sx, eat healthy, continue my yoga, and get on with life.  If any other concerning sx persist, I'll check back with him, as he suggested I do.  This was my first neuro exam.  I wanted to post this for anyone else undx'd and worrying about sx.

  Forward the best.  One step at a time.  Blessings to all of you here on this forum, as you are all wonderfully supportive. I'm going to check out the migraine forum as well.

SeekingSolace
4 Responses
198419 tn?1360242356
Hi Seeking Solace,

Sounds like you had a good visit. I'm glad you are going to try the migraine diet and I hope you see improvement. I wish you well in your future, and like you say one day at a time, but with a plan :)

Take good care of yourself and thank you for updating us :)
-Shell
429700 tn?1308007823
With the migraines and elevated CRP you may have a rheumatological disease.  If you haven't explored this option, you may want to.  If you have, you may benefit from seeing a neurologist that specializes only in headaches.  My neurologists that treated my MS did not have the same level of expertise to help me with my migraines.  
Avatar universal
Thanks for replying.  All my sx are quiet at the moment (yeah).  Initially I had an ANA which was negative.  I'm watchful waiting at the moment.  Love the support here.  Blessings, SS
2112931 tn?1335098402
Hi SS, I had many migraines over the past few years but last year I started getting migraines with aura. I just turned 50 this month. Last April my GP ordered an MRI due to some dizziness, balance problems, and visual disturbances. That's when they discovered lots of brain lesions. The neuro thinks it's MS. I had a negative LP. They also tested me for many other things.

Since my migraines have gotten worse my neuro gave me propranolol and it stopped them almost completely!  I've only had 2 headaches since June!  

I will have another MRI in May. I'm really curious to see if there will be changes. Time will tell, I guess.

Sandy
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