Aa
Vestibular, but...
No, I don't have a vestibular butt, but I do have vestibular vertigo--if that's how you say it. And, perhaps my butt is a bit vestibular -- I do know how to shake it --or rather, it is a little shaky.
Anyway--I went to the newest neuro this morning. What shall I call this one? We'll have to see. He was nice. He determined that the vertigo I'm ahaving is vestibular, not related to the brain, and I agree with him due to it being so positional. It bothers me most when I turn on my swivel char at work, and when I scroll down on my computer. He says this is usually vestibular in cause. It will resolve soon and has gotten so much better and I'm not worried about it.
He examined me a bit, my gait, balance (poor), leg strength (left leg was weakish.), and I told him I had zaps and tingling in the left side of my face.
But I was kind of teetering on being a basket case in there today. I was very shaky and nervous. I told him I thought maybe it was just my nerves, and I was thinking of just letting the diagnosis go, and moving on. I had spent way too much energy and time on all this. It was time to just stop and accept my symptoms and move forward.
He sat down and started writing a prescription for MRIs for the brain and cervical spine with and without contrast. He said that he knew I was frustrated and angry with the medical profession for not figuring out what was wrong with me. He said he knew I was tired of feeling the way I feel without knowing what's wrong. He knew I was scared I was going to end up in a wheelchair because of my leg weakness, and he was, too. We need to find out what's wrong, what happened so I don't end up in a wheelchair.
I'ts going to take some time, because mine is a complicated case. He's going to have to repeat some tests the other doctors have done, and he may even have to do an LP. All these symtpoms probably fall under one diagnosis, but it is going to take time for him to figure out what that diagnosis is. I have to give him some time.
Then he got up and pulled three tissues out of a box and it was my cue to cry, which I did.
He's good.
Zilla*
Anyway--I went to the newest neuro this morning. What shall I call this one? We'll have to see. He was nice. He determined that the vertigo I'm ahaving is vestibular, not related to the brain, and I agree with him due to it being so positional. It bothers me most when I turn on my swivel char at work, and when I scroll down on my computer. He says this is usually vestibular in cause. It will resolve soon and has gotten so much better and I'm not worried about it.
He examined me a bit, my gait, balance (poor), leg strength (left leg was weakish.), and I told him I had zaps and tingling in the left side of my face.
But I was kind of teetering on being a basket case in there today. I was very shaky and nervous. I told him I thought maybe it was just my nerves, and I was thinking of just letting the diagnosis go, and moving on. I had spent way too much energy and time on all this. It was time to just stop and accept my symptoms and move forward.
He sat down and started writing a prescription for MRIs for the brain and cervical spine with and without contrast. He said that he knew I was frustrated and angry with the medical profession for not figuring out what was wrong with me. He said he knew I was tired of feeling the way I feel without knowing what's wrong. He knew I was scared I was going to end up in a wheelchair because of my leg weakness, and he was, too. We need to find out what's wrong, what happened so I don't end up in a wheelchair.
I'ts going to take some time, because mine is a complicated case. He's going to have to repeat some tests the other doctors have done, and he may even have to do an LP. All these symtpoms probably fall under one diagnosis, but it is going to take time for him to figure out what that diagnosis is. I have to give him some time.
Then he got up and pulled three tissues out of a box and it was my cue to cry, which I did.
He's good.
Zilla*
Good for him, and you too. Not knowing is the worse thing we can imagine. If we know, we can deal with it. We are so used to taking card of others before ourselves, as wives & mothers, or just caregivers in general. It's time for you to take care of you. This doc knows migraines don't cause weakness. Good for him. Sometimes I really wonder what they are teaching in Med and Speciality schools. I've figured out the "Golden" years, means for the doctors, not us!. Yes, I'm down tonight too. Found out today I have chronic sinusitis, put me on month of antibiotics and Prednisone, and cortzone nasal spray, ordered CT scan in a month, and found a fairly severe deviated septum. The only way of curing that is surgery. Oh goody. Have to cure sinisitis first. I'm just falling apart! I don't remember breaking my nose! LOL....Best wishes, leak all over us if need be. Take care friend.Maggie
YAY you found a good one. Oh sweety I am really pleased to hear this, even though I know you have to go through so much more, tests and stuff, but he sound supportive.
Please ask him if he travels around the world, in particular, Australia, in particular Adelaide South Australia LOL.................(wink)
Please ask him if he travels around the world, in particular, Australia, in particular Adelaide South Australia LOL.................(wink)
That sounds like a good doc to me. At least he's aware of how beaten down some practitioners of medicine can make their patients feel. And at least he's ordered you some freaking MRIs. Good grief.
E
E
It goes both ways, Doni. I owe you a private message. We're here to lift each other up. Thanks for doing it for me!
We'll hang tight together!
Zilla*
We'll hang tight together!
Zilla*
I am so glad you have finally found someone who will listen to you and is interested in helping you find a dx.
You do sound exhausted though. Take care of yourself and know we are all here and you can cry on our shoulder any time.
Love ya,
doni
You do sound exhausted though. Take care of yourself and know we are all here and you can cry on our shoulder any time.
Love ya,
doni
I'm so glad to hear from you! I feel like leaking again!
No, I swear, I was talking more of the "Let's chalk all this up to migraines and move on" and HE said, "I know you're worried about ending up in a wheelchair. I am, too."
Something else: Last time he said that I don't have an active disease. So, I said, "Well, if you don't think I have a disease, then, I'm not going to worry about more testing."
He said, "I want to make SURE you don't have a degenerative disease. We have to find a diagnosis for you. This vertigo is going to go away. It's the leg weakness I'm concerned about."
Whew.
Love ya back,
Z*
No, I swear, I was talking more of the "Let's chalk all this up to migraines and move on" and HE said, "I know you're worried about ending up in a wheelchair. I am, too."
Something else: Last time he said that I don't have an active disease. So, I said, "Well, if you don't think I have a disease, then, I'm not going to worry about more testing."
He said, "I want to make SURE you don't have a degenerative disease. We have to find a diagnosis for you. This vertigo is going to go away. It's the leg weakness I'm concerned about."
Whew.
Love ya back,
Z*
This sounds hopeful. I know you've been down the hopeful road before with Dr. B. Then he turned out to be a very attentive, very nice, considerate wacko. But, you are at the end of your current rope and he did perceive this. Yes, his handing you the tissues was his "Okay, gal, let her rip!" If he sees MS patients, then he is accustomed to teary, frightened and frustrated people.
As you described his interaction with you, did he actually say something about "I don't want to see you end up in a wheelchair either." Or did he just nod sympathetically as you said it?? Because migraines won't do that. At least someone is directly addressing "your" fears. I'm thrilled about the new MRIs and you know how I feel about the LP. You haven't really had one. The one in the ER last summer does not count AT ALL.
I am pleased that you were able to express your frustration and get some tears of relief. It sounds like this is the guy to take you to the goal. I was going to say, "go all the way", but DH probably wouldn't like that. Be careful about telling people you leak....we all thought you were housebroken.
Love ya, Quix
As you described his interaction with you, did he actually say something about "I don't want to see you end up in a wheelchair either." Or did he just nod sympathetically as you said it?? Because migraines won't do that. At least someone is directly addressing "your" fears. I'm thrilled about the new MRIs and you know how I feel about the LP. You haven't really had one. The one in the ER last summer does not count AT ALL.
I am pleased that you were able to express your frustration and get some tears of relief. It sounds like this is the guy to take you to the goal. I was going to say, "go all the way", but DH probably wouldn't like that. Be careful about telling people you leak....we all thought you were housebroken.
Love ya, Quix
It's funny how when we finally get someone that seems to want to help us...that's when we lose it the worst! I did the same thing at the end of the appointment with my neuro that I have now and I hope for you this neuro stands up to the plate like he makes it sound he will.
The relief and exhaustion and hope all combined are enough to make any of us break down and darn it...we deserve it! We try for ourselves along with everyone around us to be the tower of strength...to show no fear but deep down inside we are terrified! When there is the slightest smidgeon of hope all of the other emotions come crumbling down and we cry and we cry and we cry some more...why not...this is our life!! And it feels SO MUCH BETTER to relieve that stress...like the Hoover Dam bursting out of our chest...BOOM!!!
We are here for you honey and for as long as it takes we will let you cry on our shoulders...but it sounds like there is FINALLY hope so I think a few of those tears should be tears of joy! Best of Luck honey!
Lots of Hugs,
Rena
The relief and exhaustion and hope all combined are enough to make any of us break down and darn it...we deserve it! We try for ourselves along with everyone around us to be the tower of strength...to show no fear but deep down inside we are terrified! When there is the slightest smidgeon of hope all of the other emotions come crumbling down and we cry and we cry and we cry some more...why not...this is our life!! And it feels SO MUCH BETTER to relieve that stress...like the Hoover Dam bursting out of our chest...BOOM!!!
We are here for you honey and for as long as it takes we will let you cry on our shoulders...but it sounds like there is FINALLY hope so I think a few of those tears should be tears of joy! Best of Luck honey!
Lots of Hugs,
Rena
Thanks for writing, ess. I'm glad to hear from you.
I keep trying to convince everyone I'm not a crier. I don't think I am; I never have been. But lately I'm a leaker. I leaked today, and it felt good. I may leak on my way home from work today. Yes, I will plan on it. A warm, wet leak will do me good. I may even sob, and not tell anyone.
Yes, this guy is an MS specialist. I know someone in his office. He treats mostly MS patients. His other special interest is migraines, so he sort of fits me like a glove. I seem to be an awkward fit for some reason. He was very kind today, and I appreciated that.
I feel like I'm just flailing about now. Floundering. Faltering, to use an alliteration for you! He was very perceptive and empathetic. He's had a lot of experience I think, especially as an MS specialist with frustrated patients.
How are you feeling lately in light of your diagnosis?
Zilla*
I keep trying to convince everyone I'm not a crier. I don't think I am; I never have been. But lately I'm a leaker. I leaked today, and it felt good. I may leak on my way home from work today. Yes, I will plan on it. A warm, wet leak will do me good. I may even sob, and not tell anyone.
Yes, this guy is an MS specialist. I know someone in his office. He treats mostly MS patients. His other special interest is migraines, so he sort of fits me like a glove. I seem to be an awkward fit for some reason. He was very kind today, and I appreciated that.
I feel like I'm just flailing about now. Floundering. Faltering, to use an alliteration for you! He was very perceptive and empathetic. He's had a lot of experience I think, especially as an MS specialist with frustrated patients.
How are you feeling lately in light of your diagnosis?
Zilla*
I just read your post. I was going to respond to you. Sounds like we both are in melt-down mode. Keep your chin up, Stacey. We have to be getting closer.
Zilla*
Zilla*
Does he have a twin bother that's also a neurologist in Oklahoma? sorry, had to ask
Stacey
Stacey
Hey, Zil! I know you don't know whether this is good news or bad, but really, it's the good variety. If the vertigo is vestibular, the chances that it will totally remit are much better. I'm glad it's improved considerably just now.
As to the doctor, who cares how many you go to, as long as you get the answers you need. This one sounds like a keeper. Is he an MS specialist? Absolutely stay with all the tests, wearisome though they have been thus far, with little in the way of concrete results. Maybe things were just beginning to percolate last round, and now more definitive findings will show up. Do you feel you got a thorough neuro exam? Your case is indeed complicated, and maybe this Sherlock can unravel it.
Above all you sound tired. That's so understandable after all these months. It's good that he could see you're at the end of your rope. That's one comforting thing about being a woman---if you need to cry, just cry. We don't have always to maintain that stiff upper lip. Sometimes enough is just plain enough.
We're here for you, gal. Just as you're always here for us, with your support, your cheer, and your zany sayings and doings. So please just hang in there a while longer and let's see what develops.
ess
As to the doctor, who cares how many you go to, as long as you get the answers you need. This one sounds like a keeper. Is he an MS specialist? Absolutely stay with all the tests, wearisome though they have been thus far, with little in the way of concrete results. Maybe things were just beginning to percolate last round, and now more definitive findings will show up. Do you feel you got a thorough neuro exam? Your case is indeed complicated, and maybe this Sherlock can unravel it.
Above all you sound tired. That's so understandable after all these months. It's good that he could see you're at the end of your rope. That's one comforting thing about being a woman---if you need to cry, just cry. We don't have always to maintain that stiff upper lip. Sometimes enough is just plain enough.
We're here for you, gal. Just as you're always here for us, with your support, your cheer, and your zany sayings and doings. So please just hang in there a while longer and let's see what develops.
ess
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