Two new MSers.....

[Lulu54]

In the past week or so I have been witness to two new people being diagnosed - the first was an adolescent male - 15 yrs old - and his mom being told that he has MS.    The other was today when a researcher at work who is doing an MS study told me that his 40-something brother in law just had a c-spine MRI done, they found 4 lesions, labeled it MS or TM,  and are scanning his brain soon; it has already been listed  as demyelinating disease on his records.  The news of both of these just kind of felt like a punch to the stomach -perhaps it is because I hadn't anticipated either one.    

It brings me to wondering - I know as people with MS we move in circles closer to this disease but do you find yourself hearing more cases of MS than before?  I sure do and often wish I didn't.


just wondering and reflecting,
Lulu

[TheLightSeeker]

10. Disconnection from Spirit and Nature.
9. The End of Food (alarmingly decreasing food values) Read the book!
8. Enviromental chemicals, toxins and poisons.
7.  Inadequate physical activity.
6. Contaminated/Chlorinated/fluoridated drinking water.
5. Standard American Diet.
4. Unresolved emotions and traumas. Chronically elevated stress levels.
3..Heavy metals/mercury fillings.
2. Vaccinations.
1. Underlying Pathogenic Infectious Conditions.
  My own list and not necessarily in order of importance.
  There are about 275.000 - 385.000 MS sufferers (diagnosed)
   in N. America.
  And who knows how many undiagnosed or mis-diagnosed.
  Blessings to all.
  Niko
  

[jensequitur]

Not to be alarmist, but this article on Bisphenol A is pretty damning...

http://en.wikipedia.org/wiki/Bisphenol_A

[jensequitur]

Yup, I'm beginning to wonder (again) if it's environmental - caused by something we're eating, or something we're eating with, like teflon.  They found high levels of BPAs in canned food just recently.  Things like soups are especially high.  

I wonder why they never tested canned food before, or if they did and hid the evidence.  I hate to think like that, but with the news about Monsanto, I'm feeling pessimistic.

[Jacksmom516]

As I am newly diagnosed - two days ago - I did find that while going thru the process I encountered several people with MS.  I work on the weekends as a demonstrator for dog food and met two people very recently who are regular customers of my dog food who have the disease - very sad

[sllowe]

Haven't been hearing of more myself. But, personally feel the more advanced dx techniques used, the more we'll continue to see :( It sure is sad though.

[tingletingle]

In my new MS life, I  should add, there isn't a day that goes by that I don't run into people with some sort of disability. I never ever did previously ( I must have but my selfishness proved a successful foil). Yesterday, I was helping a man with a not so hidden prosthetic arm, and then talking to a lady who had overcome cancer. I have discovered fibromyalgia, hashimotos disease, Raynauds disease, Friedreichs ataxia and the list goes on and on.  Sometimes I disclose my condition, and sometimes I don't depending on the day I'm having or the circumstances.

Reflecting on the many people I have met in this short time, I think the more serious the condition being dealt with by the individual then the more grounded, without pretence or affectations, that they appear to be.

Appearances can be so deceiving. It is so rewarding to discover all these people who are suffering in some way just like me and how they cope with everyday tasks and people. I thought about making up special badges or a stamp to hand out in recognition of these new magic moments.

The most amazing MS connection, apart from some here, was sitting on a plane one Sunday morning next to a newly arrived tourist. To our amazement we discovered we were both Christian and then with MS. What are the chances I pondered? Pretty good, the answer came back.

Blessings
Alex

[HVAC]

There is not a day that goes by I do not run into someone with MS or someone who has someone close to them with MS. People ask what my service dog is for.

Alex

[tingletingle]

Hi Lulu,
Yes, isn't it sad to hear of new cases especially since we know the absolute turmoil that the dx will cause them physically and emotionally. The regular utube videos by Montel of newly diagnosed are so emotional for me to watch because they put a face to the disease.

I haven't come across anyone newly dxed in my real world life but I have  four friends that recently undertook neurological testing without any success since my dx.

They say this phenomenum of seeing more people with MS is related to brain's razz where for example you think you are buying a uniquely coloured bright yellow VW beetle only to find a dozen people the next week driving around in the exact same vehicle . I guess it all depends on what we are looking for. I think I can hear a song coming on.

Blessings
Alex