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WELCOME EVERYONE TO THE MS FORUM!
WELCOME TO THE MS FORUM!
You'll find that this place is great place to land if the diagnosis of MS has brushed your life. We are large, but very intimate and supportive, group of people that span the entire spectrum from people who have had MS for a while, to the newly diagnosed, to people who are approaching a probable diagnosis, to those with symptoms who are concerned that they might have MS. We also have people who started out thinking they might have MS but were diagnosed with an one of the MS "Mimics." They have stayed around for the friendship and to share what they have learned.
There are a lot of ways to use this forum.
One of them is to go the the "Health Pages," (which are not the "tips on being healthy" that they sound like). You'll see the link to the Health Pages in the upper right hand corner. These contain some of our favorite pieces of information on many different aspects of MS. You find many of your technical and medical questions answered in thoses Pages.
We invite you to just join in. If you've never communicated on a forum before, it may feel awkward. You'll be more comfortable the first day! There are no topics that are too weird, "silly," or delicate to be asked here.
We have areas to write a journal, which can be private, public, or available only to those people you have added as friends. You can communicate privately with anyone on MedHelp through your "Inbox." You can also send a quick public "note" to anyone by hovering over their name.
You can lurk here without posting, and we are a great "read."
Please go to "My Profile" if you have created one. This is in on the top line of all the pages and is indicated by a red heart. You will see see the different things, like photos, journal notes, and messages, that are available to you.
On the first page of your journal, I invite you to write up your "story" - whether it be of your experiences with MS or of diagnosis, or your frustrations of not having a diagnosis. Write about whatever it is that brings you to a place of support, friendship and information. By being on the first page of your journal you will give us a place to go and learn about you as we respond to your posts and questions.
But, mostly, join us and be a member of our community. You'll never regret it!
The following posts are from members of our forum that wanted to add their voices in welcome. I hope you read them.
Quixotic1 (Quix)
You'll find that this place is great place to land if the diagnosis of MS has brushed your life. We are large, but very intimate and supportive, group of people that span the entire spectrum from people who have had MS for a while, to the newly diagnosed, to people who are approaching a probable diagnosis, to those with symptoms who are concerned that they might have MS. We also have people who started out thinking they might have MS but were diagnosed with an one of the MS "Mimics." They have stayed around for the friendship and to share what they have learned.
There are a lot of ways to use this forum.
One of them is to go the the "Health Pages," (which are not the "tips on being healthy" that they sound like). You'll see the link to the Health Pages in the upper right hand corner. These contain some of our favorite pieces of information on many different aspects of MS. You find many of your technical and medical questions answered in thoses Pages.
We invite you to just join in. If you've never communicated on a forum before, it may feel awkward. You'll be more comfortable the first day! There are no topics that are too weird, "silly," or delicate to be asked here.
We have areas to write a journal, which can be private, public, or available only to those people you have added as friends. You can communicate privately with anyone on MedHelp through your "Inbox." You can also send a quick public "note" to anyone by hovering over their name.
You can lurk here without posting, and we are a great "read."
Please go to "My Profile" if you have created one. This is in on the top line of all the pages and is indicated by a red heart. You will see see the different things, like photos, journal notes, and messages, that are available to you.
On the first page of your journal, I invite you to write up your "story" - whether it be of your experiences with MS or of diagnosis, or your frustrations of not having a diagnosis. Write about whatever it is that brings you to a place of support, friendship and information. By being on the first page of your journal you will give us a place to go and learn about you as we respond to your posts and questions.
But, mostly, join us and be a member of our community. You'll never regret it!
The following posts are from members of our forum that wanted to add their voices in welcome. I hope you read them.
Quixotic1 (Quix)
I am an absolute believer that Lyme disease is a mimicker of MS. However, I am one who was tested for MS, but it turned out to be Lyme disease. Please know that the Lyme disease tests are currently under review because so many come up false negatives. I am CDC positive for Lyme but it took 1 1/2 years for that diagnosis to come. If you have tested for Lyme and come up negative, this does not mean you do not have Lyme. There are other ways of telling whether someone truly has MS or Lyme. One of those is that a Lyme patient will go through what is called a Herxheimer reaction when they take antibiotics that kill the Lyme bacteria. This means that when the spirochetal bacteria die from the antibiotics you actually get more severe joint pains and other symptoms because they believe the bacteria releases a toxin at that time. Keep this in mind next time you take penicillin, doxycycline or that line of antibiotics. If you get sick on those but aren't having your typical allergic reaction, you may be having a Herxheimer reaction which means Lyme, not MS.
Also on a SPECT scan of your brain, Lyme disease will show improvement after treatment with antibiotics. Ticks are also transmitting more than just Lyme disease now. They are transmitting other bacteria like Babesiosis, Ehrlichiosis, Bartonella, etc., so you may test negative for Lyme but you can still have one of these other infections that so many physicians are not testing for. Only a Lyme Literate Physician can properly diagnose and treat you for Lyme disease. ILADS.org is the best place to find information on Lyme disease.
Don't overlook Lyme disease. I think one day we are going to find out that many MS patients actually had Lyme disease. Alan MacDonald, a great pathologist who was studying Lyme disease found that 7 of 10 Alzheimer brains that he received from the Harvard brain bank had the bacteria Borrelia Burgdorferi, the Lyme disease bacteria. That's pretty compelling. It's worth looking into. Lyme disease causes serious and debilitating pain when it is untreated and it is fatal.
Also on a SPECT scan of your brain, Lyme disease will show improvement after treatment with antibiotics. Ticks are also transmitting more than just Lyme disease now. They are transmitting other bacteria like Babesiosis, Ehrlichiosis, Bartonella, etc., so you may test negative for Lyme but you can still have one of these other infections that so many physicians are not testing for. Only a Lyme Literate Physician can properly diagnose and treat you for Lyme disease. ILADS.org is the best place to find information on Lyme disease.
Don't overlook Lyme disease. I think one day we are going to find out that many MS patients actually had Lyme disease. Alan MacDonald, a great pathologist who was studying Lyme disease found that 7 of 10 Alzheimer brains that he received from the Harvard brain bank had the bacteria Borrelia Burgdorferi, the Lyme disease bacteria. That's pretty compelling. It's worth looking into. Lyme disease causes serious and debilitating pain when it is untreated and it is fatal.
Welcome to the site. I have been a member for a while, but never make it on. I'm trying to get information about MS for my husband, But love this site, cause we meet new friends and get some answers we need we can find answers. Hope to have more time to be on site.
I am a 31 year old woman and half of my tongue is numb....not completly but enough that is it anyoning.
I saw my primary and she did some office exams...llike touch your nose then my finger...I wasnt able to touch her finger correctly with my right hand.... when standing completly still with my eyes close....I began to slowly lean over to the right side and I did not notice it until I was off balance.u know stuff like that and on the right side of my body is different then the other.
I feel like I have a extra layer of skin on the right side so although my right side is not numb it is different. My MD said that she doesnt think its bells palsy (which I had about 5 1/2 years ago) So I am a worried. She did mention aneruisum and MS. I am very worried.... I would perfer bells pasly over anything else. My MD has order an ekg, blood work, MRI for my head, neck and brain and an echocardiogram. Anything else you would recommend??
Please respond with your medical thoughts on what you think.
I saw my primary and she did some office exams...llike touch your nose then my finger...I wasnt able to touch her finger correctly with my right hand.... when standing completly still with my eyes close....I began to slowly lean over to the right side and I did not notice it until I was off balance.u know stuff like that and on the right side of my body is different then the other.
I feel like I have a extra layer of skin on the right side so although my right side is not numb it is different. My MD said that she doesnt think its bells palsy (which I had about 5 1/2 years ago) So I am a worried. She did mention aneruisum and MS. I am very worried.... I would perfer bells pasly over anything else. My MD has order an ekg, blood work, MRI for my head, neck and brain and an echocardiogram. Anything else you would recommend??
Please respond with your medical thoughts on what you think.
Hi, all. This is Heidi and I was recently diagnosed with MS, but it's suspected I've had it for a very long time.
All of my lesions are in the cervical spine only at C-4, 5, 6, and tiny ones at C-7. I have suffered in pain since reacting to Levaquin, a flouroquinolone antibiotic. I had L'hemittes sign since my early 20s, not knowing what it was. A physically stressful domestic event in 2004 set off spasms and pain in my trunk. After the levaquin event in 2007, every kind of tingling, burning, stabbing pain took over my right side. Symptoms contine worsening in 2009. Many doc visits and response to Gabapentin got me to a neurologists, where after months of tests and MRIs the MS-specialist neuro gave me a definite MS dx.
I will use this site to learn more about the condition. I have been given a 6 month reprieve on starting the modulators (although it was recommended I start ASAP), I swim 4-5x wk and am in great shape, but pain is a constant in my life. Thanks for all the insights here, esp on the MRI details. -h
All of my lesions are in the cervical spine only at C-4, 5, 6, and tiny ones at C-7. I have suffered in pain since reacting to Levaquin, a flouroquinolone antibiotic. I had L'hemittes sign since my early 20s, not knowing what it was. A physically stressful domestic event in 2004 set off spasms and pain in my trunk. After the levaquin event in 2007, every kind of tingling, burning, stabbing pain took over my right side. Symptoms contine worsening in 2009. Many doc visits and response to Gabapentin got me to a neurologists, where after months of tests and MRIs the MS-specialist neuro gave me a definite MS dx.
I will use this site to learn more about the condition. I have been given a 6 month reprieve on starting the modulators (although it was recommended I start ASAP), I swim 4-5x wk and am in great shape, but pain is a constant in my life. Thanks for all the insights here, esp on the MRI details. -h
Hi! My name is Martha and I got diagnosed with MS in 2006, it has gone from MS, to probable MS, to "I dont know what is wrong with you". I was feeling fine for about 2 years, but this summer all my symptoms came back with a vengance and frustration is now setting in. I am hoping to find a new neuro so I can get some definite answers and seriously considering going back on Copaxone.
Nice to know I am not alone out there!
Nice to know I am not alone out there!
I would like to you with you. I do not even that society sick in the SM is so numerous, very aug ciesze that here for you I. yet I do not know what and how it works. I will teach aug friend. wybaczcie errors.
Chciałbym się z Wami przywitać . Nie myślałem nawet ,że społeczeństwo chorych na SM jest tak liczne,Bardzo sie ciesze ,że tu do Was trafiłem .jeszcze nie wiem co i jak działa .Uczę sie poznaje .wybaczcie błędy.
Chciałbym się z Wami przywitać . Nie myślałem nawet ,że społeczeństwo chorych na SM jest tak liczne,Bardzo sie ciesze ,że tu do Was trafiłem .jeszcze nie wiem co i jak działa .Uczę sie poznaje .wybaczcie błędy.
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