I am so sorry you are having all this added trouble. I will pray that you get more answers and more importantly some relief.
Oh no..I'm sorry to hear what you are going through...it must be a canadaian thing..hehehe...I'm getting the same rigamaroll?? here in Vancouver BC... my older Daughter lives in Edmonton and love fishing too in the river.
I have been only seeing my own GP for the last 6 months...I don't want to see any specialist unless I have too..they are just so frustrating. the way they treat you is so terrible. I do have to have a sleep study next Thurs..and say the specialist a couple of days ago..he was just too busy to answer my questions...boy oh boy.
So, here we go again. I'm still waiting for the c spine MRI, bugging my GP as too why it's taking since Sept and I haven't had a date booked yet? Or my colonoscopy?? Haven't heard a thing? So I wait in pain, taking more Tylnol 3... guess they will tell me next that I take too many..hahaha...
Well, Rena, hang in there...I know that there aren't too many of us from canada on here? I've seen a few....and I guess it's just a long to get answer in any province.
I'm here for you to lean on...just hang in there and wait it out...Hopefully we will have some answers this year...it's been two and a half for me...
I was really hoping you would get the answers you needed when you went to the doctor.
But, you just gotta love the medical system! It's a pain in the butt thinking they "might" give you some hope or perhaps some answers, only to come out of there with nothing but more questions!
Don't give up, girl! You are our rock.
I understand your frustration with all of this ****. But you will get the answers you need in time.
Isn't that want we all want is the "answers"? So few of us get them until the doctors are good and ready to get around to actually doing their job instead of seemingly just passing the time. The gotta pay for that new "JAG" somehow, right?
Sorry for the sarcasim. But, thats the way I have been feeling about all of this as I am sure many other people here have.
Just ranting over here. lol
The neuopathic pain (if that's what the doctor's think it is) can be helped by some things like Neurontin. If this pain also includes spasms, there are excellent medications that can help with those.
There is no reason anyone should ever have to suffer needlessly in todays' world.
It does sound like your doctor is doing all the right tests to find out what is causing your chest discomfort and your swallowing problems. Thank goodness.
I hope you get some relief and soon.
The problem is, is that I am already on Neurontin 1600mg/day and that along with the Tegretol 1200mg/day are the two drugs they are reducing my doses of...that is why they want to try that antidepressant for the neuropathic pain once the anti-seizure meds are reduced. I asked her what to do in the meantime for the neuropathic pain and she just shrugged her shoulders and said to wait and see what happens...I figure that she should just throw me in a pit of fire ants, at least then I would know what is coming!
MY HEART BREAKS FOR YOU AS I KNOW THAT THE NEUROPATHIC PAIN IS HORRIFIC IN DEALING WITH.
I RECENTLY HAD A EMG/NCS AND IT CAME BACK OKAY,SO THEY HAVE ATTRIBUTED THE PAIN IN THE RIGHT SIDE TORSAL TO THE MS.
I HAVE FOUND NEURONTIN TO BE HELPFUL BUT WHEN IT FLAIRS UP,IT DOESN'T SEEM TO HELP AND USUSALLY MY MS IS IN REMISSION.
OF WHAT I KNOW OF THE CANADIAN HEALTH SYSTEM,THEY SEEM TO DRAG THERE FEET WHEN IT COMES TO TESTING.
I HAVE TROUBLE WITH BALANCE,BRAIN FOG AND MEMORY PROBLEMS.MY SPEECH CAN BECOME AN ISSUE.
I NEVER THOUGHT THAT MY MEDS WERE AN ISSUE,AND I TAKE 7 A DAY AND SOME MULTIPLE TIMES.
HAVE YOU SEEN A NEURO-OPTHOMOLOGIST FOR THE DOUBLE VISION?I HAVE A SMALL PRISM IN MY LEFT LENSE THAT HELPS.
FOR THE SPASMS THERE ARE MEDS TO HELP THEM
I WISH I HAD MORE ANSWERS,I CAN UNDERSTAND YOUR FRUSTRATIONS,I FEEL IF MY MS IS IN REMISSION THEN WHY DO I HAVE THESE SYMPTOMS AND MY NEURO SAID WITH EACH RELAPSE SOME RESIDUAL SIDE EFFECTS CAN BE LEFT.
AT LEAST YOUR GP IS LOOKING INTO FURTHER TESTING
I HAVE HAD THE BARIUM SWALLOW,NOT A BREAKFAST OF CHAMPIONS ,BUT DID COME BACK NORMAL
THE WHOLE TESTING PROCESS GETS AGRAVATING
SENDING YA HUGS