I don't know which other diseases cause the burning you feel, but definitely MS does. I get a lot of burning feelings. My neuro tried to attribute my burning feet and legs, especially the right, to diabetes (they ALWAYS think diabetes with this symptom), but I'm not diabetic and blood tests prove that.
I am not diabetic either and have had many test for it! This is just a wave of heat running from the top of my ankle area down the top of my left foot that only last a few min and has happened three times this week!
I have not been dx with MS, however have had many different episodes over the past 5 years. The reason I am posting is, I have had the same feeling of warm water running over the top of my ankles, and then down my foot. In fact the first time I felt it, I looked down to see if I actually had water running over my foot. It has happened many times, doesn't seem to matter whether or not I am standing or sitting. I have had brain MRI's that have all come back normal, except for a venous angioma, which I was told causes no symptoms. I am having a MRI of the C-spine in a couple of weeks. I have had weird symptoms ranging in cognitive problems, pins and needles in hands and feet, and many more. I did tell my neurologist my symptom about the warm rushing feeling over the foot, he didn't seem like he new what I was talking about.... I have many autoimmune disorders in my family, and am being watched closely. Let me know what you find out, and good luck to you!
I get a burning feeling in my shoulders, its very painful, I never could describe it until someone else with MS said they get this burning feeling almost like a sun burn would feel, thats what mine feels like, I used to tell my husband it was almost like someone rubbed a chemical on my neck and shoulders and its burning the skin off. I like the sunburn description better. I am a diabetic and its not related to my diabetes at all my Dr said its my MS. The other day I was doing a lot of stuff for a graduation party and my left leg was numb and my left foot had that same burning feeling it lasted about 2 hours and them went away. I am not sure if this is what your talking about but thats been my experience with the burning.
You know that I am speaking from what sounds reasonable to me when we talk about your symptoms and diagnosis. I can't speak with any authority. But, it appears to me that if there was this one-time episode of damage in the ADEM, then you wouldn't be getting new symptoms this late in the game. Obviously you have been overheated before and these symptoms did not appear. But, now they are.
I thought ADEM is supposed to stay static or gradually improve. That would mean no new symptoms and that the ones you have would be the same or improve. New symptoms ocurring when overheated now (but not before) are new symptoms.
Does this make sense? I want it to because I think it is important.
I have had the tingling before, and my neuro explained it as residual nerve damage. But I have definately never felt this warm sensation that I felt run down my foot three times this week. This does raise a red flag to me, and now I am wondering if this may be MS.
I found out from the Rheumy, who had a copy of one of my MRI's from a year ago and she said that it was not just the brain and brainstem, but also of the C-spine. The report read that there was no lesions in the brainstem or the entire C-spine. I had previously thought that the entire C-spine was not included, but I guess I was wrong.
It has been a little over six months since my last brain scan, and it is time for a new one, but since I am starting with this new neuro on July 29th, I will have to talk to him about all of this. But I am going to tell him of all of these new things when I see him.
Last night still another weird thing, I was having that buzzing in my ears again, that I haven't had in quite awhile, and noticed that it stoped when I quit touching my right leg. I was cutting my toenail on the right foot at the time.
When I noticed that the buzzing in the left ear stopped when I quit touching my right toes, then I started touching my right leg in different places to see if the buzzing in the left ear came back, and it did!
When I touched anywhere on my right leg or foot the buzzing in the left ear started again and quit when I stopped touching the right leg. That was weird. But like I said above, it seems that all of the symptoms have ran from the top of my head(my scalp) to now my feet, in that order.
Are you familar with the Miller Fisher Syndrome? It is a rare varient of the Guillian Barr Syndrome and the symptoms decend in the reverse order of GB syndrome. But would it take this long for the symptoms to move from the head to the feet? I don't know!!!
I can't wait to get to this new doctor, and I hope he is good!!! Meanwhile I am writing all of these new weird sensations down to take in with me!
I forgot to ask you what you think of the theory that my old neuro used to explain these things. Saying that any demyelinating disease that destroys Myelin could cause these heat/stress related sensations. Do you think this is possible that ADEM since it damages the Myelin, could cause residual symptoms just like MS?