aching

[LATW]

Is aching part of MS? I feel like I have been exercising too much. My legs, my arms, my back all ache like I have over done it. My arms and legs get tired really fast. When I chew food my jaw gets tired quickly. No pain. I have wondered if FMS is my problem but I have no pain or trigger points. I am worse after I have been sitting for a while. If I am on my feet too long I get an awful squeezing in my back that comes around my ribs. I have heard of the MS hug but mine does not come all the way around my stomach. Just terrible pressure or squeezing around the center or my back to my ribs.

But I am wondering about aching. Trying not to drive myself nuts here because I know this could still be a long drawn out process of wondering. Especially since I don't have a leg or arm that has completely gone. However, the eye specialist did tell me the coming and going of funny sensations I told him about plus the ON sounded to him like RR MS.

L

[Heather3418]

It's totally apparent that the huge stress both of you are going through, is coming from what Zilla calls, "Doo-Doo" doctor's  

As I have said in posts I have made before...if it was one of their loved ones sitting before them with all these symptoms, would they still say it's all caused from STRESS?  I don't think so......

To bad you can't really get a referral from Dr. Oz,.That man is one of the most compassionate doctors I have ever heard about.  Please tell Craig that I am 54 and I show very little brain atrophy.  (minimal, as the MRI report states) So if atrophy is seen at his young age, (and he is young, as you are also) I would suggest that it's probably due from brain matter damage that has caused this loss of brain tissue.  

It is true however, that all of us have brain atrophy to some degree as we grow older.  But in the absence of any disease process, I do not think that brain atrophy would be seen in someone at age 50.  Precious Quix would probably be able to state this with more medical knowledge than I ever could.

When my now deceased father was first seen for dementia after a stroke in his 70's, his CT scan showed little brain atrophy.  Of course, remembering that CT certainly cannot see the brain as well as MRI.  He was not able to have an MRI due to his implanted pace-maker and a defibrillator.

The "care" (and I use that term lightly) that Craig has received is deplorable.  I can only imagine that you and Craig feel like pulling your hair out. Elaine, I wish there was SOMETHING that I could actually do to help you and Craig.  I have followed Craig's medical history closely for a long time and have always felt that he is getting the short end of the stick from these doctor's.  Speaking of sticks....I guess you know where I would like to place that "stick," where the sun doesn't shine; with some of his doctors.  Sorry folks, I didn't mean to sound so crude.  It's frustrates me to no end, when I read what Elaine and Craig go through. And of course all of you that go through the same thing.

I offer you my prayers that Craig AND you, will get the break that both of you deserve.  I mean, enough is enough, already.....I'm sure you feel the same way.

Big ((((HUGS)))) to you both.  I think of you two, often...

Heather

[monotreme]

I so agree.  I went for two years with thyroid disease, gaining weight like a pound a week, hair falling out.  falling asleep when I sat down.  I am a nurse, knew something was wrong, But the doctor said it was stress and all I needed was a job.  I have six kids.  And we homeschool so then the doctors really jump on that real fast.  Anyway, I finally went to another doctor and he said I had thyroid disease all that time.

I saw Dr. Oz on Oprah once.  he said that when doctors do not know what is wrong with a patient, they have two choices.  they can either be honest and recommend you see another doctor.  Or they can blame your symptoms on stress.  he said that unfortunately, too many doctors take the easy road and blame it on stress.  

And to think that Craig has gone to three neuros who have told him that everybody gets brain lesions when they turn 50 (he just turned 50) and everyone gets brain atrophy when they turn 50.  Of course stress was blamed too.  But everyone gets brain lesions and atrophy???  I don't think so.....

So keep on looking for answers!!!

Elaine (and Craig).  And yes, Craig has pain in his feet every day that feels like needles are sticking into him.

[LATW]

I know. It is a very frustrating situation. From what I read on the MS boards I visit ours is a very common experence. We are either stressed or in need of a head exam.

This may sound weird but the people who present with symptoms and the MRI to support a MS diagnosis are way ahead on this roller coaster. Too many of us are left guessing and feeling like we are crazy. This only delays treatments that could help in the long run. : (

L

[LATW]

Isn't is weird that there are so many doctors who feel the kids are the cause of our problems? I just don't get that.

I had an uncle who was told his chest pain was due to stress. He had a heart attack and died 3 weeks after having seen the doctor, he was 42 years old. : (

It would be better if the doctor would just say he/she does not know and NOT blame stress.

L

[mokibear]

I am undiagnosed as of yet but aching was an early symptom for me. I have since then progressed into the fun muscle spasms, but when they aren't there the aches come back. I get the aching mostly in my upper part of my legs.

Your neuro was an idiot not to investigate further. Having children does not mean that your problem is stress related. That sounds like sheer laziness on her part not to look deeper. I was told by one idiot that I needed a psyche assessment and that nothing was wrong with me. I don't even have kids for him to blame. Now I have my new neuro saying it is neurological so that idiot is one of the ones I will be writing to.

I hope you get some answers soon.
Moki

[CtResident]

Nodding here: not related to MS specifically, but dr's who are condescending. I would have gyn issues (endometriosis) and one dr. found out I have twin autistic girls. It's as if a spark of enlightenment lit him in the rear. It's STRESS, I should have a glass of wine and my problems will be over. Umm, NO. I will never for a moment blame my girls for the status of my uterus. I am sick of stress being the catchall phrase.

He'd love to find out that I willingly and happily stay home with my kids.

Off soap box.

I hope you feel better with your ON pain and get some resolution soon!

Suzanne

[LATW]

It is good to know others are feeling the same things. That gives me a better idea of what I need to tell the doctor. I made a time line for the first neuro but she already had her mind made up when she heard I have 7 children.

I didn't bother to tell her four of them have disibilities. I was worried my appointment would end right then and there. I went in with ON and other problems. I was told I was one of those "good parents" who does not take time for herself.

The suggestion of this neuro was #1 a good exercise program; #2 get away from my kids more often.  I thought, ok, but what about the ON? My kids could not have caused that. I am busy, but not stressed. I do not want to be away from my family. That would stress me more.

I think the doctor didn't know what was going on so she had to find something to say. I felt like an idiot for even going to see her. Now I see I was not the idiot.

L

[Jazzyfizzle]

Oh yes I am the same LATW.   I second the congrats!!



Jazzy

[Momzilla]

Well, you're RIGHT!

[LATW]

Thanks!! We think so! : )

[Momzilla]

Beautiful grandbaby!

Congratulations!

Zilla*

[LATW]

Oh yes, I am 44 and feel like my body is much older. You would never know by looking at me though. I have been told I look like I am still in my 30's. I don't think that helps me any when I go in to the doctor and complain. They look at me like I have 3 eyes or something.

This ON is getting their attention though. I do have pain, but I have thought it is arthritis pain in my hands. But then I don't have any swelling or joint redness....so, who knows. My feet are awful in the morning. They DO hurt until I get some tylenol in me. Tylenol is not the best, but that is all I have right now.

I have had bouts of TN. That is where I have my pain, in my head and face.

L

[grannyhotwheels]

That's how I am when I first wake up in the mornings.  I ache all over and feel like I'm about 103 years old.  (I think that's what they would feel like)

After I take my meds and move around for a while it will usually lessen some.  The thing is I constantly hurt.  Sometimes it's an achy feeling but most of the time it feels more like needles sticking me.  Other times it's like when you hit your elbow and just grit your teeth until it goes away.  Well, mine will usually last a few hours or so.

Enough about my pain, again, yes I do have achy feelings.

I'll be praying,
Carol