Aa
and lastly...my possible thyroid problem...
Of course I never have just one thing going at a time...my Mom says I am trying to get it all over with before I get old and she may have a point!
I have been having pain in the front of my neck off and on for a few years now. It is not in the muscle and my throat looks normal according to the doc. I have been having speech problems for a while related to MS but this is an actual loss of my voice (off and on) for about the last two-three months. I am on inhalers for asthma and chronic bronchitis but the doc doesn't think that they are the culprit. I have been dealing with brittle nails that break constantly with very little pressure and I have had a lot of constipation. Of course weight gain and fatigue are also a concern so my doc sent me for a chest x-ray, blood work and an ultrasound of my Thyroid Gland.
So....just thought I would let you know what is happening with me...sure wish I could tell you I have been doing a lot of fishing instead of being sick, sick, sick...I am so sick of being sick!!!
Apparently spring is on the way...it's melting here lots today but we are scheduled to have a snow storm by Wednesday with lots of heavy wet snow...ahhhh the joy of living in Alberta! he he
I am seeing a dietician regularly now and while I haven't lost any actual weight, the cholesterol is down and my heart is beating well so I have to get on the exercise wagon (darn slippery that wagon...I keep falling off!) and start walking the dogs and doing what is best for me...getting healthy for the fishing season! Can't wait!!!
Lots of hormonal hugs...he he
Rena
I have been having pain in the front of my neck off and on for a few years now. It is not in the muscle and my throat looks normal according to the doc. I have been having speech problems for a while related to MS but this is an actual loss of my voice (off and on) for about the last two-three months. I am on inhalers for asthma and chronic bronchitis but the doc doesn't think that they are the culprit. I have been dealing with brittle nails that break constantly with very little pressure and I have had a lot of constipation. Of course weight gain and fatigue are also a concern so my doc sent me for a chest x-ray, blood work and an ultrasound of my Thyroid Gland.
So....just thought I would let you know what is happening with me...sure wish I could tell you I have been doing a lot of fishing instead of being sick, sick, sick...I am so sick of being sick!!!
Apparently spring is on the way...it's melting here lots today but we are scheduled to have a snow storm by Wednesday with lots of heavy wet snow...ahhhh the joy of living in Alberta! he he
I am seeing a dietician regularly now and while I haven't lost any actual weight, the cholesterol is down and my heart is beating well so I have to get on the exercise wagon (darn slippery that wagon...I keep falling off!) and start walking the dogs and doing what is best for me...getting healthy for the fishing season! Can't wait!!!
Lots of hormonal hugs...he he
Rena
Karen,
Ess is absolutely correct--I didn't see your post. Please do post in your own thread. I am so sorry for the hideous pain your in! My dear you have gone through the ringer, haven't you?
Anyway, I'm looking forward to seeing your post . . .
Rena,
All your symptoms sound like thyroid to me. I remember my thyroid being tested at one time, and no one found the problem. It gets me to wondering about the testing done on me so long ago (I've had the classic thyroid problem signs for a long time). By the time the problem was found, I had a moderate to severe hypothyroidism. I am still perplexed how this was overlooked. So you never know . . .
Deb
Ess is absolutely correct--I didn't see your post. Please do post in your own thread. I am so sorry for the hideous pain your in! My dear you have gone through the ringer, haven't you?
Anyway, I'm looking forward to seeing your post . . .
Rena,
All your symptoms sound like thyroid to me. I remember my thyroid being tested at one time, and no one found the problem. It gets me to wondering about the testing done on me so long ago (I've had the classic thyroid problem signs for a long time). By the time the problem was found, I had a moderate to severe hypothyroidism. I am still perplexed how this was overlooked. So you never know . . .
Deb
Karen, you didn't offend anyone and you're not rude!!
I'm just suggesting you start a new post so more people will read it. This one is about Rena and her issues, and it's possible that everyone who has comments on it has already posted, so no other members are now reading this thread. That happens every day, with all threads.
The more folks who read your post, the more will comment, and the more likely you are to get help, or at least comfort.
I hope you get relief soon. Hang in there.
ess
I'm just suggesting you start a new post so more people will read it. This one is about Rena and her issues, and it's possible that everyone who has comments on it has already posted, so no other members are now reading this thread. That happens every day, with all threads.
The more folks who read your post, the more will comment, and the more likely you are to get help, or at least comfort.
I hope you get relief soon. Hang in there.
ess
Hello,
I am so sorry for being rude. That is the way I feel I was. I am not that kind of person. I just am suffering and need help and it seem so far away. I have suffered for a long time now and it just seems like I will always be this way.
My son, Bryan, is such a sweet kid and has had so much patience waiting for mom to come back to the way she was. He is only 12 and such a good kid. He helps me when I need it and I have to say gives me grief too. What 12 yr. old doesn't. He just wants and needs attention. I used to tickle him all the time and make him laugh. I try to do it every once in a while even though it nearly kills me...I just try not to show it. He knows I am in pain and it is just hard on him. I hate for him and my family to see me this way. I have always been a go getter. A person with endless energy that has always been put to good use. Now, I stay in bed most of the time bc my muscles are so painful and I have some parts of my legs that are just gone. On top of that, they are so week that I can't even raise my arms above my head bc it feels like someone is pulling my muscles out. I think it may be MS and I am getting checked for that.
I did have an ACD & F in my C5-C6 and ever since then I have been in agony. For the first two mos. I thought it was just healing and I can tolerate pain pretty well, but my right arm started to burning in the muscle. MY NS told me it was my C5...Okay..But wasn't that where he done my surgery? It makes me feel like I have a failed fusion. I can't touch the area bc it is still sore to this day and I had it done in Feb. '06. That doesn't sound right? Does it? I now have these lymph nodes that stay swollen in that area and won't go away even if I take antibotics(have taken 4). The one on the left has gone down, but the one on the right has gotten bigger and now has some type of head on it. It doesn't sound good. I think I am going to get an appt. w/an Oncologist. Do u think that is a good idea? OR maybe a Dermatologist?...no..I don't think that is going to do it personally. I did have my lymph nodes swell up under my right arm(in my pit area).
I am so miserable and take meds for pain like Fentany, Norco and I take Neurontin(just switched off of Lyrica) and Xanax(only a need to take basis, bc I am scared of this one).What do u recommend that I do? Oh, the doc that I am seeing now, a NL, has put me on Topamax, but he took me off of it bc I told him that my skin was really burning more than usual. I felt like I had a severe sunburn on my whole body. I still have burning and he did say that the mg. was so small that he didn't see that it could be the prob. but still took me off. I was hoping I could take it bc my headaches have come back now with a vengeance...OHHHH I just wish I could find what is causing all of this. If u can help in any way or anyone else that reads this post..it would be greatly appreciated.
I want to thank you ess for writing to me and helping me out on the writing.. I just get started to tell everything and my hands get ahead of me...Lol..:)
You guys take care and I am sorry if I offended anyone earlier. This med. that he has switched me to has seemed to make me more irritated. I am going to give him a call and see what he recommends that I do and also what he found in my bloodwork that he took last Fri. and what he saw in my CT Scan that he got a copy of. Say a prayer for me please. I will do the same. Take care now and always...GOD BLESS...Karen
I am so sorry for being rude. That is the way I feel I was. I am not that kind of person. I just am suffering and need help and it seem so far away. I have suffered for a long time now and it just seems like I will always be this way.
My son, Bryan, is such a sweet kid and has had so much patience waiting for mom to come back to the way she was. He is only 12 and such a good kid. He helps me when I need it and I have to say gives me grief too. What 12 yr. old doesn't. He just wants and needs attention. I used to tickle him all the time and make him laugh. I try to do it every once in a while even though it nearly kills me...I just try not to show it. He knows I am in pain and it is just hard on him. I hate for him and my family to see me this way. I have always been a go getter. A person with endless energy that has always been put to good use. Now, I stay in bed most of the time bc my muscles are so painful and I have some parts of my legs that are just gone. On top of that, they are so week that I can't even raise my arms above my head bc it feels like someone is pulling my muscles out. I think it may be MS and I am getting checked for that.
I did have an ACD & F in my C5-C6 and ever since then I have been in agony. For the first two mos. I thought it was just healing and I can tolerate pain pretty well, but my right arm started to burning in the muscle. MY NS told me it was my C5...Okay..But wasn't that where he done my surgery? It makes me feel like I have a failed fusion. I can't touch the area bc it is still sore to this day and I had it done in Feb. '06. That doesn't sound right? Does it? I now have these lymph nodes that stay swollen in that area and won't go away even if I take antibotics(have taken 4). The one on the left has gone down, but the one on the right has gotten bigger and now has some type of head on it. It doesn't sound good. I think I am going to get an appt. w/an Oncologist. Do u think that is a good idea? OR maybe a Dermatologist?...no..I don't think that is going to do it personally. I did have my lymph nodes swell up under my right arm(in my pit area).
I am so miserable and take meds for pain like Fentany, Norco and I take Neurontin(just switched off of Lyrica) and Xanax(only a need to take basis, bc I am scared of this one).What do u recommend that I do? Oh, the doc that I am seeing now, a NL, has put me on Topamax, but he took me off of it bc I told him that my skin was really burning more than usual. I felt like I had a severe sunburn on my whole body. I still have burning and he did say that the mg. was so small that he didn't see that it could be the prob. but still took me off. I was hoping I could take it bc my headaches have come back now with a vengeance...OHHHH I just wish I could find what is causing all of this. If u can help in any way or anyone else that reads this post..it would be greatly appreciated.
I want to thank you ess for writing to me and helping me out on the writing.. I just get started to tell everything and my hands get ahead of me...Lol..:)
You guys take care and I am sorry if I offended anyone earlier. This med. that he has switched me to has seemed to make me more irritated. I am going to give him a call and see what he recommends that I do and also what he found in my bloodwork that he took last Fri. and what he saw in my CT Scan that he got a copy of. Say a prayer for me please. I will do the same. Take care now and always...GOD BLESS...Karen
Hello, Karen. I'm so sorry about what you're going through. I don't know whether Rena or Deb has seen your posts here. You'd be better off starting a new thread so that more people will read your information. When you do, please make short paragraphs with lots of 'white space,' as they are much easier to read. A lot of us have eye tracking problems.
I hope you find relief from your pain soon. It must be awful to be confined to bed. Best wishes to you.
ess
I hope you find relief from your pain soon. It must be awful to be confined to bed. Best wishes to you.
ess
You know it is a sad world when u can't find a solution to what ur going thru. I am in such pain right now and I am wondering if I could even die. Yes, that is the way I feel. I am hurting from head to toe and don't understand what is going on in my body.
I feel so welcomed here. Where is the love...where is what I feel for others. All I know is I would love to be fishing too, but unfortunately there is something seriously wrong here. I suffer from debilitating headaches...like I have right now. I have numbnes,pins/needles in arm and legs. I have gait problems. I have incontinency problems. Pain is taking over my life and I need desperately to find solace. I remember when I sent my medical record to the Mayo Clinic and I got a call alright...one to tell me that I am too chronic for them. How in the hell...forgive me Lord. to you get too chronic. Doesn't anyone out there even want to give a person hope for the future or do they just want to shatter their dreams and hopes to have a normal life in the near future. I just want someone to at least try. It seems so harse and I will tell you of the last NL I went to. He seemed all a person could want in a doc. He was personable and would ask questions.He seemed to be the one who was going to help me. I was so wrong. He ran two test...one MRI of my lumbar and one Cat Scan of my head/neck. When I went to him for the second time he talked to me and seemed to really care. I had hopes that he was going to lead me to the NS who would do surgery if necessary and correct what was done wrong, but he just told me that what I had was probably permanent. Now, why would he do that? How could he shatter my dreams of one day living without all of this pain. I mean the pain I am in there is no life. I live in my bed. WHat a life. I am blessed though. I do count my blessings and know that even the way things are....they could be worse. I thank God every day for my good moments and cherish each and every one. I remember how it felt to hold that rod and reel..and to catch that big catfish...tightlining. I loved it.My boys loved it too. Now, there is no fishing going on around here and I feel if I was well we'd done been a thousand times.
I am sorry for all the pain others experience for I know it is absolute torment. I just know in my heart that there is hope for me and the docs that I have seen just don't want to put in the time. I can be repaired and they just done go there. WHY? I have to tell you when I called to see that great NL I was telling you @ above...make an appt. DO you know what they told me? They said that he had exhausted all of his resources...Now, what in the hell does that mean? I don't get it. I understand the INS. crisis right now and am sure it has all to do with it and that is totally unfair to the people who can be fixed and can have a life. Obama's health care bill...he can cram it for all I am concerned. It is just wrong what he is doing to the people who have Medicaid. Now, I have Cigna from my hubby's work place and told them that I knew what it was...the Ins. that I had. They said that it had nothing to do with it...FOOOOY!
All I can say is don't give up. There is someone out there for u and will help u. I think and I hope that the one I am seeing now is one of them.
I must stop bc I can't see the screen good. My eyes are so blurry and my head doesn't look like it is going to stop hurting any time soon. So, I will keep all in my prayers and hope u do the same 4 me. I fervently believe in them and have the faith that they work. It is just up to God when they are answered...He will answer mine..I know it..I just have to be patient until then.
You all take care and always GOD BLESS... Karen
I feel so welcomed here. Where is the love...where is what I feel for others. All I know is I would love to be fishing too, but unfortunately there is something seriously wrong here. I suffer from debilitating headaches...like I have right now. I have numbnes,pins/needles in arm and legs. I have gait problems. I have incontinency problems. Pain is taking over my life and I need desperately to find solace. I remember when I sent my medical record to the Mayo Clinic and I got a call alright...one to tell me that I am too chronic for them. How in the hell...forgive me Lord. to you get too chronic. Doesn't anyone out there even want to give a person hope for the future or do they just want to shatter their dreams and hopes to have a normal life in the near future. I just want someone to at least try. It seems so harse and I will tell you of the last NL I went to. He seemed all a person could want in a doc. He was personable and would ask questions.He seemed to be the one who was going to help me. I was so wrong. He ran two test...one MRI of my lumbar and one Cat Scan of my head/neck. When I went to him for the second time he talked to me and seemed to really care. I had hopes that he was going to lead me to the NS who would do surgery if necessary and correct what was done wrong, but he just told me that what I had was probably permanent. Now, why would he do that? How could he shatter my dreams of one day living without all of this pain. I mean the pain I am in there is no life. I live in my bed. WHat a life. I am blessed though. I do count my blessings and know that even the way things are....they could be worse. I thank God every day for my good moments and cherish each and every one. I remember how it felt to hold that rod and reel..and to catch that big catfish...tightlining. I loved it.My boys loved it too. Now, there is no fishing going on around here and I feel if I was well we'd done been a thousand times.
I am sorry for all the pain others experience for I know it is absolute torment. I just know in my heart that there is hope for me and the docs that I have seen just don't want to put in the time. I can be repaired and they just done go there. WHY? I have to tell you when I called to see that great NL I was telling you @ above...make an appt. DO you know what they told me? They said that he had exhausted all of his resources...Now, what in the hell does that mean? I don't get it. I understand the INS. crisis right now and am sure it has all to do with it and that is totally unfair to the people who can be fixed and can have a life. Obama's health care bill...he can cram it for all I am concerned. It is just wrong what he is doing to the people who have Medicaid. Now, I have Cigna from my hubby's work place and told them that I knew what it was...the Ins. that I had. They said that it had nothing to do with it...FOOOOY!
All I can say is don't give up. There is someone out there for u and will help u. I think and I hope that the one I am seeing now is one of them.
I must stop bc I can't see the screen good. My eyes are so blurry and my head doesn't look like it is going to stop hurting any time soon. So, I will keep all in my prayers and hope u do the same 4 me. I fervently believe in them and have the faith that they work. It is just up to God when they are answered...He will answer mine..I know it..I just have to be patient until then.
You all take care and always GOD BLESS... Karen
Hi Rena...missed you. :0) I wish I was fishing with you all.
take care, hope you feel better soon
terry
take care, hope you feel better soon
terry
Hi Rena...nice to see you online.. it just doesn't stop does it.. I know that feeling.
I hope all the best for you hon
take care
wobbly
I hope all the best for you hon
take care
wobbly
Hi Rena Dear!
You think any of the new meds you started the past yr. could be causing any of this? Just a thought.
I wish you were fishing. I wish I was fishing. I wish we were all fishing together!!!!!!!!
Miss you sweety. When are these tests lined up for?
-Shell
You think any of the new meds you started the past yr. could be causing any of this? Just a thought.
I wish you were fishing. I wish I was fishing. I wish we were all fishing together!!!!!!!!
Miss you sweety. When are these tests lined up for?
-Shell
Hi guys,
I thought I would write to you two to see if u could give me some advice. I am so miserable and can't seem to get dx. I am so frustrated and depressed. I had an ACD & F on my C5-C6 back in '06 and I have suffered ever since, but I don't understand bc I sometimes feel it's related then I think it could be something else.
I have put on 80 lbs. since my surgery or should I say since they put me on Lyrica. I also had ESI's(Epidural Steroid Injections) for the pain. The only thing I can't put together is that after surgery I just had arm pain(rt) and my shoulder was tight and had neck pain. The ESI's went well until the last one, when they decided to go down my T's and even the nurse made a comment on "why is he going there when all her problems are in her C's?"..Ever since then, even while on the table right as he told me to sit up real fast I noticed my hands and feet were numb. My hubby thinks that he hit something to cause all of the pain that I am having now, but I don't know. I do know that the numbness never went away and the pain has intensified terribly.
I just have all the symptoms and I mean all of them 4 MS and I wondered if u guys would answers a question or two. I have this knot that is in my neck. It, at first I thought was just lymph nodes swollen, but I have taken so many rounds of Antibiotics. Now, I can rub this knot( it is just on the one side and it seems to be lower than where the lymph node area is) and it feels hard and it hurts to rub it. I felt of it tonight and it feels like a peeble inside my neck. My neck HURTS so bad. IT feels so tight and stiff...painful. Is this connected to MS in any way that u know?
Another thing is that my body is burning all over. I mean like I have a really bad sunburn. I even felt like my breast were on fire once...literally. It is like my veins are on fire too. What up with that? It used to do it just when I scratched now it just BURNS...Ouch!!
Oh, I do have to tell u @ this too. I have muscle that look like they have been carved out of my legs. It actually looks like someone took a knife and cut a portion of muscle out of my legs and it is in both. It is painful too. I am so miserable and I am sorry 4 interrupting your discussion and I hope that if u two have no idea @ this that someone will see this and reply to it. I have been down for so long and need to get back into life again. I have two sons that need me so much and I want to take them FISHING. Yes, I LOVE 2 fish. I miss it, but I can't raise my arms above my side bc it hurts. I thought maybe it was my thyroid too, but it seems they say it is fine. I don't know? HELP
My thanks to anyone who can help give me an idea to what this is. Could this be a failed fusion, a SCI , or MS...heavy sigh....
You take care and I would love to chat too if that is okay. I need to vent @ this and maybe someone will help us.
I thought I would write to you two to see if u could give me some advice. I am so miserable and can't seem to get dx. I am so frustrated and depressed. I had an ACD & F on my C5-C6 back in '06 and I have suffered ever since, but I don't understand bc I sometimes feel it's related then I think it could be something else.
I have put on 80 lbs. since my surgery or should I say since they put me on Lyrica. I also had ESI's(Epidural Steroid Injections) for the pain. The only thing I can't put together is that after surgery I just had arm pain(rt) and my shoulder was tight and had neck pain. The ESI's went well until the last one, when they decided to go down my T's and even the nurse made a comment on "why is he going there when all her problems are in her C's?"..Ever since then, even while on the table right as he told me to sit up real fast I noticed my hands and feet were numb. My hubby thinks that he hit something to cause all of the pain that I am having now, but I don't know. I do know that the numbness never went away and the pain has intensified terribly.
I just have all the symptoms and I mean all of them 4 MS and I wondered if u guys would answers a question or two. I have this knot that is in my neck. It, at first I thought was just lymph nodes swollen, but I have taken so many rounds of Antibiotics. Now, I can rub this knot( it is just on the one side and it seems to be lower than where the lymph node area is) and it feels hard and it hurts to rub it. I felt of it tonight and it feels like a peeble inside my neck. My neck HURTS so bad. IT feels so tight and stiff...painful. Is this connected to MS in any way that u know?
Another thing is that my body is burning all over. I mean like I have a really bad sunburn. I even felt like my breast were on fire once...literally. It is like my veins are on fire too. What up with that? It used to do it just when I scratched now it just BURNS...Ouch!!
Oh, I do have to tell u @ this too. I have muscle that look like they have been carved out of my legs. It actually looks like someone took a knife and cut a portion of muscle out of my legs and it is in both. It is painful too. I am so miserable and I am sorry 4 interrupting your discussion and I hope that if u two have no idea @ this that someone will see this and reply to it. I have been down for so long and need to get back into life again. I have two sons that need me so much and I want to take them FISHING. Yes, I LOVE 2 fish. I miss it, but I can't raise my arms above my side bc it hurts. I thought maybe it was my thyroid too, but it seems they say it is fine. I don't know? HELP
My thanks to anyone who can help give me an idea to what this is. Could this be a failed fusion, a SCI , or MS...heavy sigh....
You take care and I would love to chat too if that is okay. I need to vent @ this and maybe someone will help us.
Hey Deb! Thanks for responding so fast my dear! Sorry to hear you have been having to deal with these problems for soooo long and having such horrible side effects! I am about70 pounds overweight but that has been creeping up over the years and every other time I had my thyroid checked it checked out fine so I don't know if this is the problem or what. I know that my last major weight gain started after my Solumedrol and Prednisone treatments. I will let you know what the results of the tests are and hopefully they can help me.
I have lived here all my life so I am quite used to and rather like the snow...especially when I don't have to drive in it too much like now cause I am unemployed and I don't have to shovel it...he he!! I just like to look at it and wonder at it's beauty...I know I am going to probably get flack over a statement like that but it is beautiful! I am sure you and the rest of the residents of Texas would get used to it. We have our share of accidents here too...people forget how to drive in it every fall and don't bother to slow down and many other's end up paying for it.\
Anyway, I will let you know how the results come back and maybe we can share our thyroid stories along with our MS stories!! ha ha
Lots of hugs,
Rena
I have lived here all my life so I am quite used to and rather like the snow...especially when I don't have to drive in it too much like now cause I am unemployed and I don't have to shovel it...he he!! I just like to look at it and wonder at it's beauty...I know I am going to probably get flack over a statement like that but it is beautiful! I am sure you and the rest of the residents of Texas would get used to it. We have our share of accidents here too...people forget how to drive in it every fall and don't bother to slow down and many other's end up paying for it.\
Anyway, I will let you know how the results come back and maybe we can share our thyroid stories along with our MS stories!! ha ha
Lots of hugs,
Rena
Hi Rena! It is so good to hear from you! I am glad to hear that your cardio visit is not showing anything (so far anyway) and your cholesterol levels are down--that is a relief! It is too bad your cardiologist isn't also a neuro . . .
I have had thyroid problems for years. I don't have a goiter--just an underactive thyroid gland. It has caused many problems. Not only have I gained weight, but it caused my heart rhythm to be irregular. It also caused high blood pressure and high cholesterol. Also, the constipation was horrible. I had one bout that took up to two weeks! Very serious issue. My nails were also brittle. All of these symptoms went away with the medicine. The fatigue, well, is still present after starting medication. :( The Provigil does help though. :)
I can't imagine living in a place where it is always snowy. Texans do not know how to drive on the stuff. If it was like that all winter, our life expectancy would be cut in half. LOL
Hugs,
Deb
I have had thyroid problems for years. I don't have a goiter--just an underactive thyroid gland. It has caused many problems. Not only have I gained weight, but it caused my heart rhythm to be irregular. It also caused high blood pressure and high cholesterol. Also, the constipation was horrible. I had one bout that took up to two weeks! Very serious issue. My nails were also brittle. All of these symptoms went away with the medicine. The fatigue, well, is still present after starting medication. :( The Provigil does help though. :)
I can't imagine living in a place where it is always snowy. Texans do not know how to drive on the stuff. If it was like that all winter, our life expectancy would be cut in half. LOL
Hugs,
Deb
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