What's going on?

[Momzilla]

Hi, Everyone~

I'm sorry I've been so hit and miss on the forum.  I have been feeling so strange and fatigued.  I have either a new dizziness, or a more pronounced dizziness that is making me feel awful.

I called my pharmacist to see if the dizziness may be due to my new medication, Verapamil, which my neurologist prescribed for my new diagnosis of hemiplegic migraines, after my May hospitalization due to severe weakness.  I don't really agree so much with the diagnosis, because the weakness wasn't just on one side, and I don't fit the criteria, but I have been taking the medication so I seem compliant.

The pharmacist said dizziness is the second most common complaint of Verpamil, due to blood pressure getting too low, and suggested I skip a dose (last night) and 'rechallenge' this morning, by taking another dose.  I did.  I also pooped into the pharmacy and checked my blood pressure, which was normal.  I am on a fairly low-ish dose of V, which is used 'off-label' for migraines. It is approved for high blood pressure.

I'm just so fatigued again, and I don't know why.  My numbness and tingling on my left side is still going strong, as well as in my right foot.  I am using a stool again because my legs fatigue so easily, and I wonder if I'm getting ready for another episode. Or if the last one never ended.  In the hospital, they treated me with Solu-Medrol.  I wonder if that helped well for a while, and then things got rolling again.

My husband and I were sitting in the bleachers at our 7 year old's baseball game today.  His All-Star game.  A big one!  If it hadn't been an important game, I would have considered staying home and napping.  We had a graduation party to attend, as well.  But it was a biggie, so I went.  I was exhausted, and I looked over at my husband, and said, without thinking, "This is NOT migraines."  He said, "You're OK," as if to say, "I know you're not crazy."  I guess I thought he was in denial all this time, but I think deep down he knows this can't be complex migraines.  It would just be good to have one of my doctors agree.

I'm sick of this.  Sick. I know many of you in Limbo know what I mean.  I know many of you with a diagnosis know how frustrating this is.

There isn't a moment of the day that my left side isn't feeling weird.  I just don't have any hope that my doctors will do anything or listen to me.  I know you can't really offer anything but support.  I guees I just wanted to get it out.

Zilla*  

[Momzilla]

Youch, that IS bad!  Take cover!

It really was cute -- one you can share with the kids, too!

Yes, we are a pair, aren't we?  In need of all kinds of special therapies... At least we're not all RIGHT!

I hope you're hanging in there, SB!  I am if you are!  Stay away fro the railroad track,

Love ya, too!

Zilla*

[slightlybroken]

Here you are pooping in pharmacies and me with my sexy white stockings and needing SX therapy LOL. What will they do with us? I'm sorry you are feeling so bad. I wish I could do something. This road is long and hard but know we are here for you. Hopefully there will be some bathrooms along the way.

Want to hear a lame joke...Well too bad! You said you have problems on you left side. ME too. Well there was a guy that was worse off than the both of us.

There was this guy that lived close to me and he was walking down the railroad track not paying attention. A train came by and hit him. It was horrible. It literally tore his whole left side off. But he's all right now!

I know that was bad! Did ya get it?...Sorry. I'll leave before people start booing & throwing eggs and tomatos. Talk to ya soon.

Hoping you'll feel better soon!!
Love Ya :)

[Momzilla]

I'm afraid it's mail-order meds for ME from now on....

Tee hee,

Zilla*

[Momzilla]

My little guy's team won the game!  He was SO excited, but as I've told you guys before -- he is a showman.  The part he was looking forward to most, was getting the medal put on his neck after the game.... With the look on his face, you'd have thought he was being knighted by Queen Elizabeth....

I'm glad you made it to the Great Lakes yesterday.  I could tell you were here, because it was supposed to storm all day, but it was sunny instead!  I thought to myself..."T must be here!"

I'm sorry I missed you.  I'll look forward to our hash browns!  Make it snappy!

Love,

Zilla*

[ohwild]

so i got it wrong lol you really did poop, i sent a message to quix saying i thought you meant popped into the pharmacy lol, now hold hold hold lol
ooops
hugs
CJ

[Momzilla]

Oh, my gosh!  You all had me laughing out loud at the dining room table this morning at my hubby's laptop!  My teenage son had an overnight guest, and we were casually having bagels, and I was too embarrassed to say why I was laughing so hard.  I was snorking!  And I couldn't stop. The more I tried, the harder I laughed.  And I couldn't explain.  My son just said, You have to know my mom.....

Yes, Quix, you're so right about the subtle fecal nuances...One mustn't rush these harsh realities on the unsuspecting public.  Next time, I'll be bound to bring a newspaper or magazine, and take my time.

Thank you , everyone, for pooping in to give such mild, overnight comfort.  You're all the best!

You all really did make me laugh and that makes everything better, doesn't it?  And just the fact that you take the time to say a few words to perk me up always means so much.  Thank you, all.

I suppose I'm wondering if it's possible that these parasthesias I'm having are just a part of what started in May.  I do feel like things resolved pretty well, and my docs noted no weakness at my exams following my release from the hospital (just very slight weakness in left leg).  But, I was on steroids (I shall have to read the epic), and I wonder if, after I was done with the steroids, the symptoms simply returned.  

The parasthesias are the worst I've had, the weakness is noticeable to me only if I'm trying to exert effort, like carry a lawn chair any distance (only left arm -- much different than right).  And when I stand a while.  My muscles feel fatigued.  

Like I said, I know there's not much you can tell me.  I just need to tell people whom I know will listen -- unlike any of my doctors.  You guys are great.

Poop-Z*

[southygirl]

Just got up and read posts. hope you feel better soon.

lots cuddles from theresa.

[mokibear]

I just pooped on for a few minutes and saw your post.

I'm sorry you are feeling so rough Zilla. Limbo land sure has it pitfalls. The frustration alone can do us in. Know that I'm with you in thought and praying that this is a short lived bout for you.

Hugs
Moki

[Heather3418]

Oh sweetheart....I wish I had a magic wand to wave over your head and make all of this disappear.  You are one heck of strong woman to go through all of this, day in and day out, while the doctor's continue to call it "migraines episodes."  It's so hard to believe with all this evidence and non-evidence that they are still blaming this on migraines.

I hope that you haven't pulled all that beautiful hair out of your head yet.  If it had been me, I would be bald, sitting in a padded room in a straight jacket.  You are one amazing woman for what you endure.

Endure it all, on the shoulders of your friends.  I wish there was more that I could offer, when all you want is true answers.

Sending all my love and mega hugs,
Heather

[sllowe]

Thinking of you Mama-Z.  Praying and wishing this away for you though knowing it's a long shot.

Couldn't be happier about you speaking those words to your hubby, and he simultaneously acknowledging right there beside you.  You needed that.

Take the time and rest you need to gear up for the next round sweet-pea.  I know you will be calling them out on the ring for a re-match when you are good and ready! Give it some time, it will come.

Love you bunches,
Shelly

[essdipity]

You're on the merry-go-round again. That is so bad and I'm so sorry. In the short run I know it could hurt your job search and your wonderful family vacation. In the long run it will mean just more aggravation and pain until finally, FINALLY they get it right. I so much hope that's soon. If David's really convinced, that's to the good. So keep on keepin' on, girlfriend.

But meanwhile, no pharmacy-pooping, okay?

Love,
*

[young at heart]

ZILLA,

SWEETIE, SO SORRY YOUR FEELING SO BAD AGAIN.

QUIX HAS GIVEN YOU GREAT ADVICE ABOUT CONTACTING THE NEURO, ESPECIALLY A WRITTEN FAX.

DANG DIZZINESS ISN'T GOOD FOR ANY OF US. YOUR HUBBY IS VERY SUPPORTIVE.

HOW DID THE ALL-STAR GAME GO---BOY DO I MISS THOSE DAYS, MY SONS 17 NOW AND BOY HAS TIME FLOWN.

I WAS IN MICHIGAN YESTERDAY ( PLEASE DON'T FLING THE HASH BROWNS AT ME) IT WAS A LAST MINUTE DECISION, WELL PUT IT THIS WAY I WAS TOLD I WAS TAKING A DAY OFF WITH OUT A CHOICE, WENT AND ATTENDED A GRADUATION PARTY IN IMLAY CITY. I HAD ABOUT AN HOUR TO GET READY.

GEEZE THEY COULD OF GIVEN ME A FEW DAYS NOTICE, BUT WAS PROMISED A RETURN TRIP FOR A HASHBROWN BREAKFAST IN YOUR NECK OF THE WOODS.

I HOPE YOU FEEL BETTER TODAY,  WELL WHO WON THE GAME ?

SENDING YOU HUGS

T-LYNN

[Quixotic1]

I'm sorry, 'Zilla for my earlier lame attempt at humor.  I can see that you really are fed up with all of this nonsense.  I can see that the V could cause a dizziness and maybe a fatigue.  BP meds are notorious for both of those.  The return or worsening of tingling and weakness, not so much.  I'm glad DH is clearly behind you and not in the doubting mode you were afraid of.

Yes, we all love you and pray that this will be brief and less severe.  You should let your neuro know that you appear to be slipping into another of the "migraine episodes" and report the dizziness, severe fatigue, paresthesias and weakness.  Ask what you should do.  I would fax this to him in a note so that he has it in writing.  Carefully document how long all of this is happening over and how long you felt better.

I can only imagine how it is to still be losing time out of your life and unable to enjoy this time with your family.  We love you and think of you all the time!  You have always been a backbone for us, our Funny Mom, and this is time to let us hold you in our hearts.  But, I still don't recommend pooping in the pharmacy.

Big (((((HUG)))))

Quix

[ohwild]

Hey there what you been doing! I really feel for you ,you are going through one hell of a roller ride there and I really feel for you .sorry i cant be of much help but you have my supprt
Hugs and doughnuts
CJ :)

[Nerve_Wrecked]

Hi Momzilla,

I don't have a lot to say except "I understand", and not much to offer except a big *hug*.

Rest when you can, and try and take care of you!

Christine
(un-dx)

[Super_sally888]

Sorry you're feeling so bad and wish with all my heart things would get better for you. Soon!

Don't give up, whatever you do.  Usually when people know in their heart of hearts that things aren't right (like your so called migraine diagnosis) they are right.

Hang in there friend.


S

[Fluffysmom]

I wish you were feeling better, too.  You are such a delight to have around.  Whoa, actually, if you were feeling really great, we might all be laughing so much we would all be pooping into the forum all the time to pee what was going on!

Honey, even feeling crummy you make us all feel better.  I've really come to care about you a whole bunch, and if there was anything I could do to make your life better I would do it in a flash.

Guess all I can do is send you a blanket of hugs to wrap around you and try to make things a little easier to bear.  A blankie always helps when we're young!  And you are definitely young in spirit (ahem, in years, too :o))!!!

Love,

Kathy

[spastic]

Hey Sweetie, I am so sorry you are feeling so crummy, I don't have much wisdom for you but wanted to lend you a hand or a shoulder to lean on to.  The road of Limbo stinks and there are no good pit stops for a mouth watering burger or a good margarita.  

I wish you well with all my might
And a glowing light
To get you through the night

Love Ya Zilla*

Ada

[wonko]

I almost pooped around reading the above!

I'm not going to respond by adding my own crummy feelings onto yours.  I'm not going to tell you how angry I am for what is happening to me, I'm not going to re-state the billion concerns and  questions I have, I'm not even going to rant about doctors who judge their patients instead of listening to them.

I'm just going to say that I'm here with you, and hope that it's a tiny drop of comfort to you.

(& Don't worry, I'll get to all that other stuff in other posts!)

Take care of yourself, and hope you get to feeling better soon.

[Quixotic1]

I'll comment on this later, having just finished an epic discourse on Steroids (now availabel at all fine booksellers), but I had to speak to you about poopng in the pharmacy.  Yes, we need to educate people that MS is unpredicable, but we should ease them into the fine nuances.  Pooping around is not the first thing we want people to associate with MS.

Will you ever be able to go in there again with your head held high?

Quizzle-britches

[doni54]

I understand completely how you are feeling.  I am sorry that this has hit you again so soon after the last time.

I'm sending you hugs and prayers.

doni