can any one help

[ruth513]

Hi wonder if any one can help or advise please my MRI was clear nerve test was fine but im still suffering from extreme fatigue muscle cramps, pain in neck.cold all the time esp hands and feet lots of pins and needles had one infection after another major brain fog and ataxia/vertigo, light and noise  sensitivey  ,chest pains when laying down,my hands lips are dry cracked, sore and bleed, blurred vision lots of floaters i have IBS which is causing alot of pain,very heavy periods and PMT
my b12 was 240 but doctor says this is normal
I Itelephoned doctor  for home visit this morning as fainted last night and now cannot get of the sofa without near fainting get very dizzy lightheaded and fall over i cannot walk in straight line cannot concentrate think im losing a marble each day.have contant pressure in head and cold feeling inside , ringing in ears and heartbeat noise, if i look up i fall if i look down the pain in my neck gets worse and goes down my back
doc said well you have been referred not alot i can do if it gets any worse go to the hospital and that was it
how long am i spose to wait and how much worse can it get
any suggestions please thank you

[ruth513]

hi all a nd thank you all for your help i ended up in hospital yesterday but the good news is i finally got a diagnosis. postural orthostatic tachycardia syndrome (POTS) it feels so good to finally get a diagnosis and to know im not mad and its not anxiety like i have been told on several occassions.been referred to hospital in london for further investigation
now ive got to do some reading myself to find out all i can the nero up the hospital was wonderfull cant thank him enough and of cousre everyone on here

Ruth

[twitchychick]

Have you been tested for thydroid disease? You sound a lot like my sister and she has Graves. Hyperthyroid can cause many of those symptoms as well as Vitamin D deficiency. Don't know if you've already been tested for those. Just some to consider.
Hope you get some answers soon. Please keep us posted!

[ruth513]

hi and thanks
MY nero thought i had peripheral neuropathy hense the nerve test because no feeling in  feet upto ankles and fingers up to palms
gp thought ms because of muscle cramps spasticity in feet postive rombergs test,ataxia etc
i do have low blood pressure and i can feel my pulse race when i stand i do not know if blood pressure  drops when i stand never had this checked
I thought CFS and was alarmed when gp mentioned ms it never crossed my mind
thanks

[COBOB]

Sorry to hear about your problems.  Many of your complaints could be related to MS or another neurologic condition.  B12 = 240 is normal according to most labs, but a growing number of doctors believe it should be above 300.  Dizziness can be caused by many thing including low blood pressure, bradycardia (slow pulse,) ear infections and neurologic disease.  The clear MRI is a good thing, and I'm not sure what you mean by a "nerve test."  

Bob  

[RedFlame]

Hi Ruth,

Sorry you are going through all of this.  i know it's hard to wait regardless of what ever the disease is.

As far as the things you mentioned here, those could be caused by many things.  Have they talked about Fibromyalgia or Chromic Fatigue Syndrome?  

I suggest reading through the health pages we have here.  There are tons of diseases that have to be ruled out before an MS diagnosis.  

http://www.medhelp.org/health_pages/Multiple-Sclerosis/MS-Mimics---Part-I/show/375?cid=36


Hang in there.  Many of us here suffered for years before diagnosis
Red