chat

[motherg7]

Is there a chat group for folks with PPMS?

[motherg7]

Hmmm, they asked me to post 'best answer' and I'd love to but unsure of how to navigate the site.  I'm thinking I might need a tutorial of sorts.

[motherg7]

I went to MSWorld on Facebook but would be interested in hearing about other chat groups and forums for PPMS.  It just felt like everything related to RRMS and it didn't seem to apply to all my questions.  I just read your  post about the difficulty with 'inspirational stories' and loved it!  It felt absolutely honest and struck a chord of truth.  Thank you!  I feel alot less guilty.

[Lulu54]

Just wondering if you found the chat rooms to talk about PPMS and life in general?  If not, let us know and we can send you some other links.

[motherg7]

Thanx Alex!  That's exactly what I was looking for.  I'm not the most computer savvy so starting a thread, or anything for that matter would be intimidating.  I'm going to check out MSworld :)

[HVAC]

I think if you google MSWorld  it has a link to a PPMS. I have PPMS as do several others.

Alex

[Sumanadevii]

Just an idea.  There are enough PPMSers here that you could begin a thread to chat back and forth.  When it begins disappearing just bump it back up.  I do think PPMSers have many things to talk about that is much different than those of RRMS which most of the board carries as a dx.

I hope you give it a try.  Some would priobably welcome it.  Hope so anyway.  I think the support would be wonderful,

[Lulu54]

Welcome.  There are no chats here on MedHelp - that feature is not available on anyt of the forums here.  We do have several members of our community who hve PPMS, and I know they welcome the opportunity to share information with others.  There are chats run through the NMSS sites.

I hope we see you around,
Lulu