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conversion disorder diagnosis

After three years of hell and every test known to man and at least 10 doctors, I've been diagnosed with conversion disorder which I know is false. The only abnormal results have been high lymphocytes, one single o band, vitamins d and b deficiency, costocondritis, gastritis, and white matter lesions they say are caused by age. I'm 45.  Symptoms started with burning, tingling, weird smells, shooting pains in head and fingers, and muscle atrophy. Now my feet hurt and give out on me, my eyes feel like there is grit in them and get blurry, have shooting facial pain, and my arms go numb. Anyone have a similar experience or can recommend anything helpful?
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667078 tn?1316000935
I know you are going through a rough time. What you describe does not sound like MS. Most MS starts with something called optic neuritis which is one eye. It shows up on MRI and when the optometrist takes a picture of the back of the eye. The other eye condition is double vision. If your problem is neurological it will show up on a neurological exam. That is reflexes and eye tracking, etc. Any GP can do one. If it is normal a neurologist can't help. Your other issues are too scattered for MS.

They said I was going through was psychological. I went to a psychiatrist and he said what I had was neurological after looking at my MRI report. My neurological exams are abnormal.

Alex
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987762 tn?1331027953
COMMUNITY LEADER
I'm sorry for what's been happening to you, but I also don't think it could be from a neurological condition like MS. Whilst you may totally disagree with being diagnosed with 'conversion disorder', I genuinely always believe it is in your best interest to get your mental health fully and appropriately assessed and absolutely know that for sure!

I had a read of your other posts, looking to see if you'd ever mentioned any abnormal clinical signs (neuro exam), other symptoms, abnormal test results etc seeing if there was anything that may help point you in some direction...

" 2.5 years ago I woke up with acute muscle atrophy, enlarged veins, left side paralysis, photosensitive, phantom smells, and blurry vision."

It's not possible for 'acute muscle atrophy' to happen over night but if your veins were enlarged, and a reduction of limb size eg swelling, there 'might' actually be a vascular explanation that may have been overlooked.

To be honest, once mental health is put on your medical records for causation, you really should seriously consider exploring CD as a legitimate causation. It may be absolutely wrong and the assessment will help clarify that but 'if' the diagnosis is correct, CD is treatable, and the main point of diagnosis is getting the correct treatment to improve life quality in my humble opinion.

Cheers............JJ
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13457751 tn?1430051803
Multiple Sclerosis is a chronic, often disabling disease that attacks the central nervous system. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. Symptoms and progression are unpredictable and vary from one person to another , Learn more here from this video https://www.youtube.com/watch?v=vRSxTPbzKNg
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13457751 tn?1430051803
Multiple Sclerosis is a chronic, often disabling disease that attacks the central nervous system. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. Symptoms and progression are unpredictable and vary from one person to another , Learn more here from this video https://www.youtube.com/watch?v=vRSxTPbzKNg
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