last neuro apppt

[lydia231]

I just returned from my neuro appt.  The doctor said my tests came back normal, so he does not know what is causing my symptoms.  He reffered me to a Rheumatologist, but does not find anything to indicate ms.  He says the white spots in my brain are probable age related.  I wanted to thank everyone for answering so many of my questions.  I did not know anything about ms until I started reading the posts here.  I wish you all well, and will pray for a cure for such an awful disease.

[lydia231]

Thanks for your comments. My husband has the same family doctor that I have recently started seeing. That is the doctor who originally sent me to be screened for ms.  Yesterday my husband had a doctor appt. and the doctor asked how I was doing.  My husband told him the neuro said the lesions on my mri was probably due to aging.  My family doctor said he was suprised by that because lesions usually do not appear in a person of my age (49).  He also made a statment that he feels there is something physically wrong with me and is glad I am going to see a Rheumatologist.

I don't know why, but when my husband told me that the doctor is supporting me and not just brushing me off, it kind of gave me a second wind in pursuing the possibility of having ms.

I phoned a neurology clinic that has specialists in ms.  I had phoned them before and they were going to order my records, but I haven't recieved a call back.  Anyway, I am going to schedule an appt. with them and find out what they say.  

I may have posted a confusing message earlier. When I wrote what is written on my mri.  I have six or seven brain lesions.  It is strange, when I was at my doctor's office (GP and neuro)  I saw the mri of my brain on the computer and the person who had read it wrote " migraine, ms, or mini stroke as possible reasons for the lesions.  When I asked for a copy of the report I did not see that written. I also asked for a cd of my scans and when I view the brain mri, I do not see the one I viewed at the doctor's office.  I don't think I have seen someone else's scan, but was wondering if anyone could explain why there is a difference in what I viewed at the doctor's office and what I recieved in the cd and report. I know this is long winded, sorry for the long post.

[Lulu54]

Lydia, you best hang around here.  We have lots of suggestions for searching out other answers as well.  We're not just about the MS folks.  

Besides, as Alex has pointed out, it sometimes take more than one or three or even seven neuros to get the final answers.

Listen to your body and do what you need to find answers.

Fewer visible lesions is not unusual early in the course of MS - lesions come and lesions go is another of Quix's brilliant health pages.

http://www.medhelp.org/health_pages/Multiple-Sclerosis/Lesions---Can-they-Disappear-A-Hypothetical-Case-Overview/show/566?cid=36

See you around,
Lulu

[HVAC]

Lydia,

  Is this Neurologist a MS Specialist? I had a Neurologist, another Neurologist who thought I had MS but was leaving the area send me to, say I did not have MS, but I did. My PCP sent me to an MS Specialist even after this doctor told her flat out no way is it MS. It took over a year of tests with the MS Specialist but he finally diagnosed it as MS. I do not know if you have MS all I am saying is if the Rheumatologist is a dead end try another Neurologist. You do not have to leave this forum many folks stay on.

It is normal to feel discouraged. I almost threw in the towel after the one Neurologist but a Neuro Opthamologist she sent me said you can't just ignore this it is serious.

Hang in there. Most of us have been where you are and it is very disheartening.

Alex

[Audrey_M]

Yet another Limbo Lander being referred to a rheumatologist!

That's my next step as well, but my PCP does want a second opinion from another neuro.

I looked at your home page and see that you are relatively new here, with only a few posts and not much background to go by, such as symptoms and their duration, age, blah, blah, blah.

It is encouraging to read that your last MRI showed fewer brain lesions. Maybe you will find the answer with a different specialist.

Good luck to you!