I hear you! I saw my neurologist yesterday, my MRI showed no change and no enhancement, but I went to him because I was having symptoms, he read the MRI stating demylineating lesion, he said that it could be some other demyelinating disease not necessarily MS. He said since all of the tests came back negative all he had to go on was the MRI. He said my twitching could be from dry eye, (I guess my dry eye is causing my legs to twitch too huh?) He wants me to repeat the Evoked Potential tests to see if he finds something. In the meantime he said that he did not want to "label" me as MS and he referred me to the MS specialist from the practice. He did give me Neurontin for my issues.
I have had it with these doctors.........ugh!!!. Im not shopping for a diagnosis, all I want is for them to find out what is wrong with me and take care of it. Im sure after seeing the MS doctor I'll spend another few years in limbo.
I hope you have good luck with your neuro and getting out of limbo. Docs can be so frustrating.
I'm stuck in limbo too, mostly because there was no change in my most recent MRI. It's not a fun place to be.
Fingers crossed that you doctor is better than mine :)
Laura
Sure sounds like an mri report that should lead to or at the very least strongly suggest a ms dx. Good luck.
And to think, no official dx yet. The MRI results from March stated lesions in a distribution consistent with ischemic disease, and this last one states that the distribution is consistent with demyelinating disease. I wish they would make up their minds already. I don't think HTN would give you spasticity, muscle twinges, balance problems and so on, besides my HTN has been well under control to the point that they lowered my meds. My eye has been twitching for a month now, I don't think this is stress related at all.
Im making an appointment with my neuro tomorrow. He better get me in ASAP
Most of the damage in MS is gray matter which does not show up on MRI which shows white matter damage.
Alex