multiple sclerosis please help need answers

[kelbell2]

i have posted 2-3 discussion in different forums and have had little or no response, am i doing something wrong here !!!! Wanted to ask a question, have been sick for many years, many years poor and no insurance - kids came first, yes that is right, didnt take care of myself, i am reminded of this every day.

ok-went to neuro last week, havent seen one in 12 years or so, have seen every other specialist there is, after exhausting 6 year search for what is wrong with me, (all is good with me other than recent blood test revealed positive ana and high crp)  (inflammation)

Neuro seems to think i could have MS and i am afraid so too, i will be honest i went straight to the National MS society and this forum when i got home from the doctors office, who dont these days, I could have written their symptoms list and then some- please tell me what you think-i am going crazy and until someone can confirm that i am not i wont rest. I have been sick for so long and told i had fibromyalgia or it was in my head i could scream-

CAN ANXIETY CAUSE THE PROBLEMS BELOW OR IS THE NEURO ONTO SOMETHING...

about 15 years ago i started having stiff neck, migraines, severe bouts of depression and fatigue-had emotional problems as i was in a bad bad marriage for 17 years !!! The above mentioned problems were there and came and went over the years adding severe pain in feet (tingling, numb, burning, throbbing itching) (i weighed 110 lbs.)  

i was also having some female problems and contributed the above to stress and female problems- also according to an MRI i had 4 bulging disc - have had sciatica and pinched nerve once.

fast forward a few years (i am having major memory problems) about 6 years ago after bouts of the above you can add the following, they have either came back or become more severe and/or i have developed new symptoms, i know you are not doctors here goes, i can be ok one day and be in severe pain the next .................

the heat i produce from exercise makes me sick  being outside in this fine alabama heat and humidity kill me
i often feel like i have fever-no fever, my body temp is messed up or something-often have head in the oven feeling
neurothapy in feet-(dx neuro)  

i am not diabetic and yes i need to loose some weight as i have put on 50 lbs. in last 6 years, --my feet hurt so bad on the bottom i can hardly walk somedays (most days)
severe fatigue, flares of some sort-
brain fog- really bad-to the point i dont drive much anymore
pain, burning, crawling sensations, electric like jolts in my arms, legs, ect.
stabbing pain in head- scalp crawls and feels like it is on fire in the sun  

buzzing in right ear and ear pain
face goes numb, lips, bite tongue and cheeks constantly
twitches  itchingggggggggggggggg  - especially face -

frontal and rear neck pain - also rear neck pain that causes severe migraine
nausea, ibs, (BAD)

i use to have to go to hospital and get cathed to get urine off my bladder now it flows freely, i have no control of it, last year it was my bowels ?

right side is prob weaker than left, i use to be really strong and fit and now i am weak

pain in front of neck runs under my jaw line

heart palpitations, shortness of breath sometimes

sexual disfunction, just leave that there

stiff and sore when i wake up-
insomnia - even with sleep meds
i either sleep for months at a time or dont sleep more months-never sleep good at anytime

stabbing pain in head and face
buzzing in ear

a little paranoia ????????????????

my lips flutter and it is not voluntary ? Trimingeal nerve ????

did i mention i pee all over myself, i mean i can stand up out of bed or wake up in the am and i am covered - have to constantly change clothes-yes the neuro is going to check my kidneys thursday

i am sure i forgot something but could this be advanced progressive stages-i am sure i have forgotten something as i cannot remember anything. my whole life has changed, i cannot do anything i did before

oh i forgot, tremor-mostly you cant see them but i can feel them, they dont hurt, and sometimes you can see them in my right hand-my right side seems to have been effected by whatever.

i am really worried about this-i can be right in the middle of a conversation and go blank, this is very embarrasing. I can literally think of something knowing i need to write it down reach for pen and paper (right beside me) and have forgotten already what i was going to write down. i often find myself in a room and i dont know why im in there and am usually in the wrong place that i intended to be.

i cannot do any work because of severe pain by end of day or by the end of the day i am exhausted and this can be even with little activity

DOES ANY OF THIS RING A BELL-I KNOW NO CASE IS TEXT BOOK, BUT MINE SEEMS TO BE-OR AM I CRAZY LIKE SOME PEOPLE HAVE SAID

sorry for all caps - my vision is very blurry, this is new and by the way i can look at a color sometimes say it should be yellow and i know that it is yellow but in my eyes it is white, i often see colors that arent there and my eyeballs are killing me every morning i wake up-

in the last year i have aged 10 years in appearance and people have made comments i look swollen all the time and/or i look different, im exhausted, mentally and psyically-

help please   very anxious and dont know why other than pain and disappointment ! have no money problems, in a great marriage, good kids, all is good except my health i am 44 years old and i feel 64-my 74 year old mother is in better shape than me-i know i am babbling but i am in shock, i thought i had lupus or something-rheumy says i dont-NOT ra, sjogrens, thyroid is fine, no more female problems, had total hysterectomy and blood hormone levels are fairly good, i do have carpel tunnel in right and left ?

[Milliepede]

Best wishes for a great MRI,

Blessings, karen

[kelbell2]

Kyle this is me exactly thank you so much, this is why I wondered if I was the crazy one or what. I know this pain is real, i know i cant feel my right leg and foot off and on all day. I know the base of skull is hurting so bad everyday i could scream. I cant even left my shoulders over my head at this poiint to put on a shirt.

If anyone might have an answer for this, around June I had an MRI of my neck because of the pain. I can literally move my neck and hear and feel bone grinding. Why would my neck MRI show nothing, i just find that so odd. Anyway, i think i told yall that the doctor told me he was getting an MRI of my back and neck, he wrote the order wrong and all they did was my neck, i just found that out about 2 months ago.

I am picking up a copy of all my records today that i can if they are not too expensive, have a good day

Thank you so much, off to get that MRI of the brain i havent gotten in years.

[Milliepede]

JJ, you hesitated to mention what I myself was thinking! I thought you were thoughtful and kind.

I still find myself at times beyond my stress threshold (usually because of work) and find myself getting frantic. That brings on worsening cog fog, swallowing issues, pain... Well, I think it makes everything worse.

Getting a dx of anything that's life-altering is not easy. Finding ways to deal with it is a project in itself. Each to his own with that one but it needs to work.

I'm grateful for this forum and all the people here. Blessings to us all. Karen

[Milliepede]

Kyle, you hit the nail on the head with Dr. Google! The internet makes it so easy for us to rule things in or out.

Kelly, I know how hard the financial strain can be. And I know how it feels to become consumed with finding answers. It's no fun and everyone has to find their own way to deal with that. Medically, you must be comfortable with your doc. Sounds like this new one is exploring options. That's a good thing.

Praying you have a good MRI and the results put you further along the dx path. Keep calm and carry on! Lol

[kwarendorf]

Hi KB

The road to an MD diagnosis is rarely straight and narrow. Because MS attacks the central nervous system symptoms can appear virtually anywhere.

I went through 20 years of various, seemingly unrelated, symptoms. I spent the bulk of those 20 years chasing individual symptoms, when they got to be too annoying. This wasn't very often and no one was thinking MS.

In August of 2011 that all changed. All of the symptoms appeared at the same time and a bunch of new ones joined the party. Thankfully I was quickly referred to the right neurologist and diagnosed with SPMS.

MS can connect many dots. The key is finding the right neurologist! It sounds like you may have done that. There will be lots of blood tests, MRI's and maybe even an LP. If you have had all these done before, he/she may want their own.

Try to stay calm, and try and stay away from Dr. Google :-)

Kyle

[supermum_ms]

Could you please explain what 'you' mean because I would interpret....

"I obviously have some neurological problems and when I posted the first book i wrote i guess i was misleading, i am not having all of those symptoms at once they have come and gone thru the years or a new one has come."

as meaning, your older sx's have completely gone away, never to return and then something new happens for awhile and then that goes away never to return and then something new happens for awhile etc etc

If that's about right, what exactly are your current sx's that the neurologist is thinking could be MS?

Cheers..........JJ