my Vancouver trip

[candy158]

Heh guys, I just wanted to say, that I am Happy and Sad about my appt. in Vancouver.   I got what we wanted, we do have RRMS , and YES they have put me on Copaxone, and I start it when the nurse will come and help up learn what to do.  

So, we are happy, but sad that now we have to do the needle thing, and a little apprehensive that it might not work.  So, we will wait and see.   The Dr. told me it could take 6-9 months to see if it will work, so we are praying it will be ok....

Thanks for all your good thoughts, and we have many mixed emotions again.

(hugs) to all,
Candy

[rendean]

Dear Candy,
I am so glad you got the RRMS diagnosis!!! The treatment, Copaxone,  gets easier each time. Hopefully you will see results in that 6 to 9 month period!

I'm pulling for you to get back to "you" in 6 months and feel better to play with those grandbabies!

With hugs, prayers and good thoughts,
ren

[Lulu54]

Now you also understand first hand that bittersweet moment of realizing you really do have MS, even though you have known it for quite some time.  I hope you will take lots of time to process this and find a comfortable spot to keep on living life to its best.

Welcome to the club that no one wants to belong to -

hugs,
L

[doublevision1]

I understand the mixed emotions, Candy.  It's hard now, but it does get easier in time.  I hope the Copaxone helps to get things under control.  You've been feeling badly for so long; hopefully this will help you turn the corner.  You'll be surprised how quickly the shots become a part of your every day routine like brushing your teeth.  If it stings at first, which it probably will, know that this too improves with time as your body adjusts.

Will UBC continue to follow you or will you return to your neuro in Victoria?  What did the UBC neuro think of the care you've been receiving?

[supermum_ms]

Hey Candy,

I'll also add my congratulations your out of limbo land and commiserations you actually have MS. Give your self time to get your head around this news, its not uncommon for people to experience a roller coaster of emotions in their first year after dx, so please remember to be kind to your self!

HUGS..........JJ

PS fingers crossed the Copaxone is the one for you, and things settle soon.

[rendean]

Sorry about my first message. I'm not glad you have RRMS but that they were thinking SPMS at one time then no diagnosis so I guess I meant that I'm glad you are  finally on the right road and we all will  be there to hold your hand.

ren

[Mike_Shuswap]

I'm pleased for you. You sound like you have the right attitude.

Don't worry about the needle thing too much. The anticipation is usually worse than the needle.

Take care

Mike

[Guitar_grrrl]

Candy(((hug)))-Well, I'm glad you've gone from SPMS to RRMS, officially, so at least there are treatment options.  The needle thing isn't so bad, and it becomes as routine as brushing your teeth.  Good luck on Copaxone!  Sending good thoughts!

[candy158]

YOU GUYS ARE THE BESTEST !!!!!!!!!!!!!!  thanks so very much for your continued supporr through these last 4 years, I could not have found a nicer place to bounce stuff off of, and not feel dumb about it... simple or as complicated as it might have been, you were always there.......


Doublevision, I will be just going to Vancouver now, unless there is somereason that I have to be in the hospital or something.  When I told her that I felt like the MS clinic in Victoria was pushing me out the door( and not to gently either  LOL), she said, " ya know what, I think they were"

So, that goes to show that what she thinks about what was happening over this long process.  I have another MRI booked, so will see how long that takes,

I am blessed to have you all in my life, thanks.... and will keep you posted when the nurse comes to show me what to do........ wish me luck *****

love and hugs to all,
Candy

[Rena705]

So sorry to hear you got "the diagnosis" !!  It is really hard at first but it will get easier once you accept it and start to feel better I am sure.

I am in Alberta like Doublevision so if you have any questions regarding things Canadian I may be able to help.

I have SPMS but know a bit about RRMS and have been here a long time so please feel free to message me anytime.

I wish you the best of luck with the Copaxone and I hope you feel better soon!

Lots of Hugs,
Rena

[maxthecat43]

Give yourself time to process.  I am happy you are finally able to start treatment.  One day at a time, right?

(((HUGS))),
Tammy