I just had an emg study and came back abnormal. Dealing with leg weakness and a lot of back, leg, and feet pain. Not sure if the tests can identify ms, but I do know ms affects the brain, as in slow motor skills and spinal cord. At times my mind reflexes don't match my movements at the same time. At times I hurt so bad and want to not move and sleepy and exhausted.
Hi Ive been reading your comments as today I had aNCS and EMG ( after 16 months of asking for the tests ) I had an MRI last year that showed one small lesion and a CT scan. Lumpar puncture was normal. I also had an Acetylcholine antibody test for Myasthenia Gravis- the furst test was positive but when it was repeated it came back negative. I have to wait two weeks for todays test rsults and Im totally fed up of limboland. I have a son with Ehlers Danlos and two members of my family with scoliosis and droped foot ( i also have a droped foot) has anybody any idea what I could have wrong? Btw It all started with the Shingles virus that went undiagnosed and I ended up very ill with ADEM
Thanks for that suggestion Heather! I'll look into that. What symptoms did you have with the Morton Neuroma?
My therapist did say that the part of the ball of my feett (can't remember what it was called... something starting with an "m") curves out vs curving in. Also don't have much fat padding there anymore.
Thanks again.
Take care, Pat :)
To be totally sure that you don't have a thing called a Morton's Neuroma in your foot, the best thing to do is get an x-ray of your foot. Morton's Neuroma's are benign tumors. All my one foot problem was a Morton's Neuroma all along. Very easily removed through surgery. After all the testing I had to find out why my foot hurt like that and it was a neuroma the whole time.
Just a suggestion...
Heather
Oh yeah, I forgot to mention that I've had the EMG/NCV testing and I was normal as well, but my neuro did say that I have ulnar nerve entrapment based on my symptoms and exam.
Pat :)
That's interesting about your feet as I have very similar symptoms.
I have gotten a bilateral "stinging and throbbing" on the bottom of my feet, particularly the middle 3 toes for over a year. It would initially happen when I did my walking for exercise. When I sat down, it would go away. It has been increasing to when I stand for quite some time, I'll get it.
I don't have the burning, cold spots, or twitching, but had a brief period of them being numb (for a day or so). It doesn't happen in a hot shower. I sometimes get it if I'm standing and it's warm outside (like if I'm watering the grass). When I get off my feet, it goes away. I never get it while sitting. Mine is always in the same spots on the bottom of my feet too.
I do have lumbar spine issues and have symptoms from that. My therapist mentioned possible plantar fasciitis (I have other symptoms of that), but I'm not sure on that one.
I'm curious as to what else causes it like the MS nurse mentioned. I too have had my thyroid checked (just had another check, but no results yet) and no diabetes. My LP is negative as well, but I do have 3 brain lesions. All other tests (evps, etc.) have been normal as well. My MRI has been stable over the last year. Still in limbo.
My neuro told me that the LP results can be negative in early MS. He is still following me and I'm still a "possible MS" even after a stable MRI. Some lesions are too small to be picked up via MRI, so a "normal" MRI doesn't rule out MS.
Have you had any evoked potential testing? That could be useful in picking up any lesions that an MRI doesn't find.
So sorry you're in limbo. It truely does stink!
Take care, Pat :)
There seems to be quite a few ladies on here without a diagnosis, some with similar symptons to me, in particular the tingling in heat, and hot showers, some that I chat to have had this for years, so is there just maybe some things that just can't be explained?
I thought L.P. had a very high record of detecting ms.
Because I have had clear mri's as well as neg L.P. does that lower my chances of having ms or doesn't make any difference????????
Thanks again
Yes it does, thanks.
I have in the last few years had single episodes of dizziness and face pain.
Then last June had it all togeter with tingling, numbness, burning, cold spots, twitching.
The tingling lasted about 6-7 months in the same spot in both feet, then left, but returns in hot shower, when walking, driving car, and if even if I'm sitting in the shade but put foot in the direct sunlight, it tingles straight away.
I had mri brain and whole spine last June, no contrast, then repeat in December, no contrast, then last Feb of this year with contrast, all clear, as well as a neg L.P.
I have really researched all my symptons this last year, and everything steers to ms.
A ms nurse told me many things make tingling appear with heat, but could not tell me what. I have had high levels of thyroid antibodies since 2004, but my thyroid is fine, so it is not a thyroid problem, and I have been checked for everything else.
This is a remitting - relapsing bilateral neurological problem with me, yet still no diagnosis due to clear tests. What else if anything could make tingling appear and in the same spot always apart from ms?????????
Thanks for your input, and help, it's very much appreciated.
The NCS do NOT diagnose MS. They are used to diagnose peripheral neuropathy. When they are positive is is evidence that that nerve problem is NOT MS. So they can add evidence against MS. Does that make sense?
Quix
I HAVE FIGURED THAT A NCS IS A ROUTINE TEST WHEN IT COMES TO DIAGNOSTIC TEST RULING OUT DISORDERS.
ITS VERY USEFUL WHEN A PATIENT PRESENTS WITH NUMBNESS,TINGLING IN LIMBS.
MS IS A POSSIBILITY,BUT OTHER DISORDERS ALSO MUST BE RULED OUT ALSO.
JUST A TEST ON THE ROLLER COASTER TO A DIAGNOSIS
T-LYNN
So if mine was normal that means I don't have PN.
Then I could still have ms???????
A NCS HELPS DETECT PERIPHERAL NEUROPATHY,CARPAL TUNNEL.
DISORDERS OUTSIDE THE SPINE CORD.
T-LYNN