Multiple Sclerosis Community
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923105 tn?1341831249

oh no:((( Too scared - reaching out for support

This is like quid pro quo:(.

I had an appointment with my new MS Neuro yesterday, and she told me (after the results of my new MRI) that she wants me to go on Tysabri and that I will be most certainly a  paraplegic in a few months time!  My Neuro actually called me today (Sunday pm ) that's really going something in France!

I posted this very same thread about a year ago, and was so scared - but now with my 3rd Neuro telling me this I guess I'm in trouble here guys..

Everything seems to be shutting down on me, spasms, bladder, bowels eyes and swallowing etc., where else can I turn to apart from my friends here - who know what I am going through.

My D/H is in total denail, my eldest Son Jonathan who left on Friday is horrified (emailed him today to tell him the news)  Etienne (youngest) thinks that I am going to die - even though we have done our best to keep it quiet, but he has seen me and William crying:((  

Oh, please help me forum friends as I am in such a mess.  

I know this post is short, but I really can't type anymore, and I realise that responses will be few and far between because of the weekend, but I just couldn't keep it in any longer.

Love and hugs to all

Debs xx

24 Responses
1386048 tn?1281015933
i'm no expert, so sorry to say i don't have advice, but i just wanted you to know that i have read your post.

i am so sorry to hear of what you (and your family) are going through.

my heart goes out to you and i am sending all love and positive thoughts your way from canada.

xoxo  michelle
1406332 tn?1315966360
I'm sorry you and your family are going through such a stressful time. Don't ever give up hope.

Sending all of you lots of love and prayers from Nebraska!
1396846 tn?1332463110

i can't be of much help either. I just want to say that my thoughts and prayers are with you. Keep your head up and keep fighting. This is such hard news for me to digest so I can't imagine what it is like for you.

I really wish you the best and I am sending many hugs your way.

1260255 tn?1288658164

Hard to imagine what you must be going through, having heard this not once, but twice. If I were in your shoes, I guess that I would sit down with my neuro and talk this through in terms of time, impact, lining up support for me and then my family, so that they understand what is going on. I'd also probably throw in the question "What are the odds this may not happen?"

Given that you have heard this twice, I tired to find some inspirational quotes that might help you at this time:

“A wise man should consider that health is the greatest of human blessings, and learn how by his own thought to derive benefit from his illnesses.”
Hippocrates quotes

"There cannot be a crisis next week.  My schedule is already full."
~ Henry Kissinger

"Be who you are and say what you feel because people who mind don't matter and people who matter don't mind."
~Dr Seuss

"Yesterday is history, tomorrow is a mystery, today is a gift, that's why we call it the "present".

Enjoy your "present" of life to the fullest."

"Whatever the struggle, continue the climb, it may be only one more step to the summit."
~Diane Westlake

"If suffering brings wisdom, I would wish to be less wise"
~W.B. Yeats

"I wanted to be the first woman to burn her bra, but it would have taken the fire department four days to put it out."
~Dolly Parton (don't know why this was in there- my guess is for breast cancer survivors- I included it because it was a LOL for me, especially being a AA cup size).

Sometimes the doctors are right, sometimes they are wrong. I truly wish that they are wrong at this juncture and that you do not end up a paraplegic. If in fact they are right, I hope you find the support you need, both emotionally and physically to deal with that hurdle and if your time and resources allow, put some healing energy from your disability to help others.

My thoughts are with you for the best possible outcome.


Avatar universal
Very sorry to read this post and what your going thru. This disease is so scary and none of us know what the future may hold.

My thoughts to you are to have faith that it is going to be ok. I know this is hard to believe given the info you received, but for myself, that is the only thing that gets me thru the day..and the next..and the next.

I will say prayers up to God to help heal you..even if it is just to keep you from being paralyzed. I will pray for your family to be strong thru this terrifying time.

As someone else said, Dr's can be wrong.

You're in my prayers. I believe that God works miracles every day.
Take care, my friend.

1080243 tn?1262978963
Dear Shermay,

Have just read your post 'Please dont give up hope, this time last year my neuro told me something not un simular and one year on I'm in remission!

I've found if I keep moving and exercise every day I keep the problems at bay.
Nothing is clear cut with this wide spread desease.

You sound like you have a great family so you will have alot of support to get you through.
My husband has MS now and he his having bad days but i encourage him to mobilise  what ever the weather. He now too notices that if he his stationed for lond periods at a time when his dibilitating fatigue sets in he feels like his legs seize up.

So Shermay thinks positive and dont give up you have many freinds here.


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