Aa
open letter about MS and the media
Doctor Radio on XM Radio (subscription service) is holding a special program on MS and Jack Osbourne and Ann Romney and their MS. I have blogged on both of those topics and feel especially angry at how the misinformation is being shared by the mainstream media. Unfortunately I can't call in tomorrow because I am committed to drive a friend to a medical procedure, so I have submitted my comments by email to them, in hopes it makes a difference. Here is what I sent to them and thought I would share my thoughts with you as well-
Hello. I am excited to know that you are doing a program dedicated to Multiple Sclerosis and the recent media attention to this difficult disease. Unfortunately, I will most probably not be able to talk on the telephone on Friday to share my thoughts and questions because I am taking a dear friend for a hospital procedure. I will have to listen to your show later through the app on my I-pad.
If I were to call in, I would want to discuss the misinformation that is regularly put out there by the media about MS. What aggravates me the most is these tv shows and publications go to their medical experts for the interviews, but I have yet to see a NEUROLOGIST speak on any network show about MS. Oncologists, cardiologists, remote surgical experts, and all these other highly trained people know a lot about their fields, but fall short on the facts when it comes to MS.
For example, when Jack Orbourne was diagnosed, I heard the doctor on the Today show proclaim that it is very rare for men to have MS. About 25% of the MS population is male, so I would take it out of the rare category. This expert has a specialty in Oncology.
And how about the headline that proclaimed Sharon Osbourne won't let her son die. People do not die from MS. We might die from complications of the disease, such as pneumonia setting in if we are no longer ambulatory. That is not death from MS. The amazing thing about the new drugs available to us is the majority of us living with MS now have a life span equivalent to our peers, and most of us will remain ambulatory, walking without the need of assistance.
In a different Sunday Morning health segment I was astounded at the misinformation being given by the experts on the show. The talk centered around Ann Romny. Among many things, we were told that her ‘love of horses’ was making her better and her strong faith is why she is doing so well with her MS. I know several people with MS who LOVE horses as well as even more people with strong faith. Hippotherapy is great for people with MS because it increases our core strength and the movement mimics walking for our central nervous system.
Neither love nor spiritual faith is going to stop the mysterious progression of MS. It falls mainly under the category of luck – who is biologically fortunate enough to respond well to therapy. Who is just plain lucky that their MS doesn't get significantly worse. It also involves having the financial means or excellent insurance, to take advantage of the current treatments; this disease easily costs $50-100,000 a year to manage, depending on the drugs being used.
The ‘expert’ on that program also said it was ok to not treat people with MS because the drugs all have side effects. The last I looked, every drug out there has side effects listed and patients should be given the option to decide on their own the risk/benefit value of doing treatment. Even the FDA now recognizes that early treatment, as soon as the signs of clinically isolated syndrome (CIS) appears, a patient should be on one of the disease modifying drugs (DMD). That same person said he felt that Ann Romney would do well with her MS because she has Relapsing Remitting MS and that means she has a mild form of the disease. That’s just wrong, because RRMS can be a very ugly form of MS, and as we age, the majority of us convert to Secondary Progressive MS, with a different disease profile. The area of expertise for this doctor is minimally invasive surgery which is almost funny because MS is a non-operable disease of the central nervous system.
As a member of the MS community, I would like to know why these shows don’t use Neurologists, especially ones trained in MS treatment, to be the spokespeople to talk about this extremely complicated disease? Shows such as Dr. Radio are reaching a limited audience, whereas those network shows are sharing often wrong and sometimes frightening information out there to millions of viewers.
I could go on, but this is lengthy enough and I do hope you will take the time to read it and share my thoughts with the listeners. Yes, MS is scary. Yes, having MS is tough and living with a chronic disease is never easy. But if I have to have MS I would want to have it now, when there are so many treatment options and additional new ones coming soon. It is no longer the disease where we are destined to be in a wheelchair. We are active members of our communities and work hard to make peace with our MS.
We don’t need the hysteria of the media when the celebrities become the focus of attention because of their own diagnosis; we need the public to learn the facts about MS and their help in educating everyone what it is really like to live with Multiple Sclerosis, especially those of us who are often told ‘you can’t be sick, you look so well.’ Facts go a long way to helping people understand what we go through. Thanks again for taking that time today to discuss MS.
Hello. I am excited to know that you are doing a program dedicated to Multiple Sclerosis and the recent media attention to this difficult disease. Unfortunately, I will most probably not be able to talk on the telephone on Friday to share my thoughts and questions because I am taking a dear friend for a hospital procedure. I will have to listen to your show later through the app on my I-pad.
If I were to call in, I would want to discuss the misinformation that is regularly put out there by the media about MS. What aggravates me the most is these tv shows and publications go to their medical experts for the interviews, but I have yet to see a NEUROLOGIST speak on any network show about MS. Oncologists, cardiologists, remote surgical experts, and all these other highly trained people know a lot about their fields, but fall short on the facts when it comes to MS.
For example, when Jack Orbourne was diagnosed, I heard the doctor on the Today show proclaim that it is very rare for men to have MS. About 25% of the MS population is male, so I would take it out of the rare category. This expert has a specialty in Oncology.
And how about the headline that proclaimed Sharon Osbourne won't let her son die. People do not die from MS. We might die from complications of the disease, such as pneumonia setting in if we are no longer ambulatory. That is not death from MS. The amazing thing about the new drugs available to us is the majority of us living with MS now have a life span equivalent to our peers, and most of us will remain ambulatory, walking without the need of assistance.
In a different Sunday Morning health segment I was astounded at the misinformation being given by the experts on the show. The talk centered around Ann Romny. Among many things, we were told that her ‘love of horses’ was making her better and her strong faith is why she is doing so well with her MS. I know several people with MS who LOVE horses as well as even more people with strong faith. Hippotherapy is great for people with MS because it increases our core strength and the movement mimics walking for our central nervous system.
Neither love nor spiritual faith is going to stop the mysterious progression of MS. It falls mainly under the category of luck – who is biologically fortunate enough to respond well to therapy. Who is just plain lucky that their MS doesn't get significantly worse. It also involves having the financial means or excellent insurance, to take advantage of the current treatments; this disease easily costs $50-100,000 a year to manage, depending on the drugs being used.
The ‘expert’ on that program also said it was ok to not treat people with MS because the drugs all have side effects. The last I looked, every drug out there has side effects listed and patients should be given the option to decide on their own the risk/benefit value of doing treatment. Even the FDA now recognizes that early treatment, as soon as the signs of clinically isolated syndrome (CIS) appears, a patient should be on one of the disease modifying drugs (DMD). That same person said he felt that Ann Romney would do well with her MS because she has Relapsing Remitting MS and that means she has a mild form of the disease. That’s just wrong, because RRMS can be a very ugly form of MS, and as we age, the majority of us convert to Secondary Progressive MS, with a different disease profile. The area of expertise for this doctor is minimally invasive surgery which is almost funny because MS is a non-operable disease of the central nervous system.
As a member of the MS community, I would like to know why these shows don’t use Neurologists, especially ones trained in MS treatment, to be the spokespeople to talk about this extremely complicated disease? Shows such as Dr. Radio are reaching a limited audience, whereas those network shows are sharing often wrong and sometimes frightening information out there to millions of viewers.
I could go on, but this is lengthy enough and I do hope you will take the time to read it and share my thoughts with the listeners. Yes, MS is scary. Yes, having MS is tough and living with a chronic disease is never easy. But if I have to have MS I would want to have it now, when there are so many treatment options and additional new ones coming soon. It is no longer the disease where we are destined to be in a wheelchair. We are active members of our communities and work hard to make peace with our MS.
We don’t need the hysteria of the media when the celebrities become the focus of attention because of their own diagnosis; we need the public to learn the facts about MS and their help in educating everyone what it is really like to live with Multiple Sclerosis, especially those of us who are often told ‘you can’t be sick, you look so well.’ Facts go a long way to helping people understand what we go through. Thanks again for taking that time today to discuss MS.
I watched the Fox interview and concur with your comments about it in your original post, Lulu. In addition to the inaccuracies you mentioned, the second doctor who spoke seemed to be rambling and definitely outside of his area of expertise. First, he said MS and ALS are "very similar." Ummm, no, they're not. Second, he said 1/3 of those with MS are paralyzed. This I don't know but that fraction sounds awfully high. Then, he contradicted himself: "she was able to beat this disease" then "it's a chronic disease, it never goes away" then "I hope she will have a great recovery" then "it's a relapsing remitting type" concluding with, as Lu pointed out "this is a mild type and I'm sure she's going to do really well.". Flip flop, flip-flop, oy!
Re: the National Review article, regarding her ability to jog along with the Olympic torch in Utah three years after having trouble walking.......my guess is this is more likely attributed to the relapsing, remitting nature of the disease than to "a miracle." That was a perfect teachable moment squandered.
On balance I think that it's better to have MS in the news than not, and have concluded that there are always going to be some so-called 'experts' such as Snyderman on NBC, the doctors on Fox, etc. who will get wrong what we as patients believe to be important facts. I suppose at least it gets a conversation going, and provides opportunities to rebut such as the excellent effort that Lu undertook.
Re: the National Review article, regarding her ability to jog along with the Olympic torch in Utah three years after having trouble walking.......my guess is this is more likely attributed to the relapsing, remitting nature of the disease than to "a miracle." That was a perfect teachable moment squandered.
On balance I think that it's better to have MS in the news than not, and have concluded that there are always going to be some so-called 'experts' such as Snyderman on NBC, the doctors on Fox, etc. who will get wrong what we as patients believe to be important facts. I suppose at least it gets a conversation going, and provides opportunities to rebut such as the excellent effort that Lu undertook.
The Charlie Rose program is available at
http://www.charlierose.com/view/interview/12442?sponsor_id=1
I haven't viewed it yet, but have heard nothing but good things about this report.
http://www.charlierose.com/view/interview/12442?sponsor_id=1
I haven't viewed it yet, but have heard nothing but good things about this report.
Thanks for the link Lu, I will listen for sure. I agree with your observations. The refreshing exception to the recent round of poor reporting was the Charlie Rose interviews with Dr. Stephen Hauser and other legitimate experts in the field. Charlie Rose himself does not appeal to me, I find he often comes off as a bit of a sycophant with his guests. In this episode, he actually said very little which was great; the experts steered the conversation and provided the facts of the disease, as I as a patient understand them. There was also good information about the direction research is taking, what a "cure" really means (stopping progression through targeted treatments, repairing tissue damage and restoring function, and preventing the disease from occurring in. the first place), improvements in MRI technology, etc.
Im not sure if you can still view the episode on his website or maybe YouTube. If you can catch it, it's worth a viewing, especially by friends or loved ones who would benefit from having a better understanding of the disease.
Im not sure if you can still view the episode on his website or maybe YouTube. If you can catch it, it's worth a viewing, especially by friends or loved ones who would benefit from having a better understanding of the disease.
This discussion sure took a turn that I hadn't anticipated - if you had access to my original blog on this you would find I pointed out this is not about Ann Romney, it is about how when a celebrity announces they have MS, the frenzy to tell the story without verifying the facts continues to be a problem.
The experts who can speak intelligently about MS aren't the people being called on to give the sound bites. That is my issue - if you are going to call these facts, then they should be facts.
For what it's worth, there is no transcription published here that quotes the show verbatim. If you want to listen to it for yourself, you can go to the very public link and listen to the show in its entirety -
http://video.foxnews.com/v/1714450639001/ann-romneys-battle-with-multiple-sclerosis/?playlist_id=930909755001
as always,
L
The experts who can speak intelligently about MS aren't the people being called on to give the sound bites. That is my issue - if you are going to call these facts, then they should be facts.
For what it's worth, there is no transcription published here that quotes the show verbatim. If you want to listen to it for yourself, you can go to the very public link and listen to the show in its entirety -
http://video.foxnews.com/v/1714450639001/ann-romneys-battle-with-multiple-sclerosis/?playlist_id=930909755001
as always,
L
Hi - please remember that although it is fine to discuss issues such as misinformation about MS as well as famous individuals affected by MS, MedHelp does not permit discussions of a political nature. Please be sure you appropriately limit any further posts on this thread.
Patientx, thank you for the link to the excellent article about Ann Romney.
I don’t understand all the hate toward Ann Romney (especially from Canadians?!?). Sure, she and most other public figures (and many private figures) with MS can better afford to treat it than the average MS patient, but that’s not something to fault them for! I’m happy for anyone with MS that is able to capitalize on the resources available to them to minimize the impact of the disease on their life. Such people, including Ann Romney, don’t owe me advocacy work or anything else. Michelle Obama’s father had MS and she is certainly familiar with the disease, but she doesn’t owe me anything along those lines either.
Besides, because all cases of MS are different, Romney or Obama can only speak of their experiences, and surely neither is the foremost expert on the disease.
As for the original topic of the thread … lumping the media into one group is much like lumping all MS patients into one group. TV, particularly any national show, is a different animal.
The object of any TV show is to keep your attention until the next commercial. Information is secondary to entertainment. Folks are complaining about the Today show, for example, but what matters most to NBC is that you were watching, and that you’re likely to watch again. I suggest you simply stop watching. The story of a celebrity with a progressively disabling disease was perceived by show producers as compelling to viewers, even if not 100% accurate. And a neurologist may not have been available to come to the studio on short notice.
Before we can fix the mainstream media, maybe we should commit to reducing the misinformation about MS that’s spread on this and similar internet sites.
For what it’s worth, publishing a transcription of a radio show without the producer’s permission is likely a violation of copyright law.
I don’t understand all the hate toward Ann Romney (especially from Canadians?!?). Sure, she and most other public figures (and many private figures) with MS can better afford to treat it than the average MS patient, but that’s not something to fault them for! I’m happy for anyone with MS that is able to capitalize on the resources available to them to minimize the impact of the disease on their life. Such people, including Ann Romney, don’t owe me advocacy work or anything else. Michelle Obama’s father had MS and she is certainly familiar with the disease, but she doesn’t owe me anything along those lines either.
Besides, because all cases of MS are different, Romney or Obama can only speak of their experiences, and surely neither is the foremost expert on the disease.
As for the original topic of the thread … lumping the media into one group is much like lumping all MS patients into one group. TV, particularly any national show, is a different animal.
The object of any TV show is to keep your attention until the next commercial. Information is secondary to entertainment. Folks are complaining about the Today show, for example, but what matters most to NBC is that you were watching, and that you’re likely to watch again. I suggest you simply stop watching. The story of a celebrity with a progressively disabling disease was perceived by show producers as compelling to viewers, even if not 100% accurate. And a neurologist may not have been available to come to the studio on short notice.
Before we can fix the mainstream media, maybe we should commit to reducing the misinformation about MS that’s spread on this and similar internet sites.
For what it’s worth, publishing a transcription of a radio show without the producer’s permission is likely a violation of copyright law.
Whatever with all of that. This is an MS board, not a political board so I won't respond re; politics or religion. There's lot's of other sites to do that. :-)
My concern here is Multiple Sclerosis. It would be great if an equivalent of Michael J. Fox could be found for MS. What I've discovered is that the roots of misinformation run deep and a lot of people can't/won't shake the notion that MS is something (a) we did to ourselves (b) It's all in our heads (c) can shake off at will (c) endless nonsense.
Having further misinformation being given out by physicians in the media further confuses the public. There needs to be more responsibility in that area.
LuLu's letter was on the mark and maybe we can embark on further distribution to media outlets?
My concern here is Multiple Sclerosis. It would be great if an equivalent of Michael J. Fox could be found for MS. What I've discovered is that the roots of misinformation run deep and a lot of people can't/won't shake the notion that MS is something (a) we did to ourselves (b) It's all in our heads (c) can shake off at will (c) endless nonsense.
Having further misinformation being given out by physicians in the media further confuses the public. There needs to be more responsibility in that area.
LuLu's letter was on the mark and maybe we can embark on further distribution to media outlets?
It is often the commentators who inaccurately conclude what the person with MS just said.
Thanks LuLu. Glad your email was heard. Good work!
Thanks LuLu. Glad your email was heard. Good work!
Who are we to demand that Ann Romney or Sharon Ozborne do this or that? Or minimize the effect MS has had on their lives? Their private struggles? Both families have tons of money and life is easier in some regards. Tougher in other areas. Imagine being in the spotlight with the symptoms of MS.
Ann Romney is a survivor of breast cancer and had a tough MS disease course in the beginning. She has found her balance. Give her a break. The media is spending their time mocking her for "dressage." Some are calling her a liability to the presidency. It's ugly. She has given insightful and informative interviews but politics have gotten in the way of those. She has sat on MS Boards, etc.
I am sure Sharon Ozborne is shocked at her son's diagnosis and is reeling. While Sharon is a bit off beat, I feel for her as a mother and wish the best for her son. People are drawn to her so it's almost a guarantee that she will bring more info forward about MS.
I hope they both will be able to bring accurate information about MS forward with their talents and notoriety as best as they can. I believe they both will, and already have.
Ann Romney is a survivor of breast cancer and had a tough MS disease course in the beginning. She has found her balance. Give her a break. The media is spending their time mocking her for "dressage." Some are calling her a liability to the presidency. It's ugly. She has given insightful and informative interviews but politics have gotten in the way of those. She has sat on MS Boards, etc.
I am sure Sharon Ozborne is shocked at her son's diagnosis and is reeling. While Sharon is a bit off beat, I feel for her as a mother and wish the best for her son. People are drawn to her so it's almost a guarantee that she will bring more info forward about MS.
I hope they both will be able to bring accurate information about MS forward with their talents and notoriety as best as they can. I believe they both will, and already have.
Surprisingly they did discuss my lengthy email and hit the high points. I hope to transcribe the program while it is still available for replay on my iPad app. After midnight it will be gone. They had lots of good comments. Unfortunately for the last twenty ,minutes the horse lover doc was also on air. I was able to hear the entire program while in the car on the drive.
Kudos again to Lulu! That was an amazing letter that I wish would be printied in newspapers and read on the media. MiSinformation hurts us all. I totally agree with all the Ann Romney comments. Not only is she in the perfect position to spread accurate information and educate the public about MS, she should also be advocating for MS research, much like Michael j. Fox does with Parinsons. Most of all I really wish she would read this forum daily and tune into real people struggling with the costs of MS treatment and the reality of people who are not "managing" their MS as well as she is! (LOL)
Cheers,
Deb
Cheers,
Deb
Apparently, horseback riding was the only treatment for Anne Romney. She also saw and was treated by Dr. Howard Weiner:
http://www.nationalreview.com/articles/303215/ann-romney-s-winding-trail-katrina-trinko
http://www.nationalreview.com/articles/303215/ann-romney-s-winding-trail-katrina-trinko
COMMUNITY LEADER
I probably have a different perspective because i dont have a clue who any of these people are, and in my country a persons income or insurance (most people here dont need or have any type of insurance) doesn't affect treatment, I know our system isn't perfect but I still say we are a lucky country to have what we have!
Basically from what i can gather, the issue no matter where you are in the world, is the missinformation on MS, the general public are consistently exposed too. Be it medical programs (we have DR OZ and the DR's running over here), talk shows, TV news or print etc. I was taught that word of mouth is 90% of your business, so to me public exposure gets people talking. Celebs talking touches more people than any of us ever could, good or bad people are talking and that leads to raising much needed funds that assist pwMS and continues the research. I want people to continue to talk, good or bad, we need people talking!
I wont speak for anyone else but from my perspective, incorrect information by ANY medical professional who is in speaking in the public domain, is INEXCUSABLE! I feel these doctors have a moral and ethical obligation to the millions of people (all over the world), who watch their show because people trust and believe everything that comes out of their mouths.
Moral and ethical because these dr's are highly paid for their medical opinion, people watching trust what they are saying is correct, they expect it to be correct, no one would watch it otherwise. By exposing them selves on tv, they should be held to the 'standard' that they have created, and the only way i can see that happening is by mass complaints to the network, basically people power.
I dont know if anything i've said is what your looking for but its my 2 cents lol
Cheers.....JJ
Basically from what i can gather, the issue no matter where you are in the world, is the missinformation on MS, the general public are consistently exposed too. Be it medical programs (we have DR OZ and the DR's running over here), talk shows, TV news or print etc. I was taught that word of mouth is 90% of your business, so to me public exposure gets people talking. Celebs talking touches more people than any of us ever could, good or bad people are talking and that leads to raising much needed funds that assist pwMS and continues the research. I want people to continue to talk, good or bad, we need people talking!
I wont speak for anyone else but from my perspective, incorrect information by ANY medical professional who is in speaking in the public domain, is INEXCUSABLE! I feel these doctors have a moral and ethical obligation to the millions of people (all over the world), who watch their show because people trust and believe everything that comes out of their mouths.
Moral and ethical because these dr's are highly paid for their medical opinion, people watching trust what they are saying is correct, they expect it to be correct, no one would watch it otherwise. By exposing them selves on tv, they should be held to the 'standard' that they have created, and the only way i can see that happening is by mass complaints to the network, basically people power.
I dont know if anything i've said is what your looking for but its my 2 cents lol
Cheers.....JJ
Lulu, and everyone: I wish you could send this too many other media places and Montel etc. It's so true that the information going out to the public is not correct, as we know here, that everyone's situation and symptoms etc are different.
some have pain, some can't walk without assistance, some have RRMS, PPMS which is so different then what is put out to the media.
Why don't they have regular people with MS all different stages etc of MS on a show with Neurologist that specialize MS on these shows and tell how MS effects people differently, financially, medically, etc.
It really frustrates me as family and friends don't hear the real truth about this disease. Please someone out there listen to us.
My heart goes out to all of us that don't get heard.
wobbly
some have pain, some can't walk without assistance, some have RRMS, PPMS which is so different then what is put out to the media.
Why don't they have regular people with MS all different stages etc of MS on a show with Neurologist that specialize MS on these shows and tell how MS effects people differently, financially, medically, etc.
It really frustrates me as family and friends don't hear the real truth about this disease. Please someone out there listen to us.
My heart goes out to all of us that don't get heard.
wobbly
I do dressage and yes it is great for MS. The difference is I have nice people who let me ride their horses because I could not afford to otherwise. I also have to chores to ride. On hot days I have to work around the barn before and after. She has barn help who do all that for her. She even has people to warm her horses up and cool them down. Even with my cancer I am lugging my own saddle, getting the horse from the field, tacking her up, and bathing her afterward. Her riding arena is probably air conditioned. Her horse live better than I do.
Unlike Ann I have to choose between the Cost of Cancer care and MS care. I am having to let my Neurologist go. I bet she never has to make such a heart breaking decision. Not does she and her husband not care that people like me have to make such decision. They would think it is some how my fault. I even have to turn down some cancer care. I am at risk of losing everything even with health insurance. She will never know such hardship. There is no way she could look me in the eye and relate to me even though we share MS, cancer, and the love of riding. Simply because in her world people who work hard and pay there taxes do not end up in positions like me. through costly health care.
Alex
Unlike Ann I have to choose between the Cost of Cancer care and MS care. I am having to let my Neurologist go. I bet she never has to make such a heart breaking decision. Not does she and her husband not care that people like me have to make such decision. They would think it is some how my fault. I even have to turn down some cancer care. I am at risk of losing everything even with health insurance. She will never know such hardship. There is no way she could look me in the eye and relate to me even though we share MS, cancer, and the love of riding. Simply because in her world people who work hard and pay there taxes do not end up in positions like me. through costly health care.
Alex
Actually, it is easier for Ann Romney. Her husband makes in 5 hours more than the average joe does in one year.
That means she has a maid to clean, a nanny for the kids, cook for nutritious meals, etc. etc. etc.
She doesn't have to choose between physio and shoes for the kids, or between MRI's and helping put the kids through college. Or for some - between needed treatment and food. Or give up the prospect of having a home for retirement - nevermind money for retirement!
To say that her life is as hard as an average person with MS is ridiculous! We all know what stress can and does do to us - and so often the topic is what we can't afford for our health. That can and DOES make it harder on the average person.
Corina
That means she has a maid to clean, a nanny for the kids, cook for nutritious meals, etc. etc. etc.
She doesn't have to choose between physio and shoes for the kids, or between MRI's and helping put the kids through college. Or for some - between needed treatment and food. Or give up the prospect of having a home for retirement - nevermind money for retirement!
To say that her life is as hard as an average person with MS is ridiculous! We all know what stress can and does do to us - and so often the topic is what we can't afford for our health. That can and DOES make it harder on the average person.
Corina
Actually, when I see Ann Romney on TV I am amazed at her ability to function in the heat & hysteria. Whatever she's doing, it looks like it's working for her.
My point really is that with all the MISinformation about MS, it would be great to have an articulate, very public person such as Ann speaking candidly about the costs (not just $$) and truth of living with MS -- the good news as well as the hard truths.
My point really is that with all the MISinformation about MS, it would be great to have an articulate, very public person such as Ann speaking candidly about the costs (not just $$) and truth of living with MS -- the good news as well as the hard truths.
Once again your amazing with your dedication to our forum and beyond.
If you were paid for all the hours you provide us with knowledge you would a millionaire ...
********** Where do you find energy ? * **************
To MsmsinFL
As far as Ann Romney goes, please don't fall into the trap that her illness isn't as difficult for her as anyone else with MS, just because she has wealth.
Dressage Therapy is proven to help with many types illness, and you don't have to own a horse, some agency don't charge at all.
best wishes to your efforts
JB
If you were paid for all the hours you provide us with knowledge you would a millionaire ...
********** Where do you find energy ? * **************
To MsmsinFL
As far as Ann Romney goes, please don't fall into the trap that her illness isn't as difficult for her as anyone else with MS, just because she has wealth.
Dressage Therapy is proven to help with many types illness, and you don't have to own a horse, some agency don't charge at all.
best wishes to your efforts
JB
Don't get me started on those idiots! They would not even be interviewed if they were not who they are. I would like to see them interview people who actually care about other people with MS and not just people who are using MS for personal gains. It is like this idiot artist I know who gets art shows because he makes gallery owners feel sorry for him because he has MS.
Why can't they just interview Ann about her million dollar horse she took the huge tax write off with?
Alex
Why can't they just interview Ann about her million dollar horse she took the huge tax write off with?
Alex
Lulu this is a great article, I sure hope they will "listen" to you. This is really very stupid, talking to all the wrong doctors when they should be talking to an ms specialist.
My best always,
Dagun
My best always,
Dagun
Lulu,
I wish your letter could be shared with every media source out there. I heard a couple of women talking about the Sharon Osbourne article in the store and started a conversation about how irritating it is to have something like that pop up when millions of us live with MS every day. I have talked to my dad until I'm blue in the face and he just keeps quoting this misinformation to me. If my own father can't understand, how will the rest of society?
I'm so very thankful I found this site because it's a resource where people understand what it's like to live with MS. I've learned a lot of helpful information here.
I really hope they read your letter on the show so that at least some good information is passed on!!
Thank you for writing it!
Chris
I wish your letter could be shared with every media source out there. I heard a couple of women talking about the Sharon Osbourne article in the store and started a conversation about how irritating it is to have something like that pop up when millions of us live with MS every day. I have talked to my dad until I'm blue in the face and he just keeps quoting this misinformation to me. If my own father can't understand, how will the rest of society?
I'm so very thankful I found this site because it's a resource where people understand what it's like to live with MS. I've learned a lot of helpful information here.
I really hope they read your letter on the show so that at least some good information is passed on!!
Thank you for writing it!
Chris
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