repost ms symptoms

[hikinfool]

Hello all :) I'm hoping someone can give me a little direction on my next step. This is very new for me. For many years now I've experienced off and on extreme fatigue, fogginess, tingling etc..I wrote it off as stress and would have periods of feeling good. I'm very active and able to run, cycle, hike etc..but then will have bouts of weakness and unable to do anything.

Fast forward to last summer. I live in Arizona with extreme heat. The heat has started to bother me so much now. more so the sun on me then anything. Last summer I would be driving home and not really know what was going on. euphoric state. when i would try to talk my speech was slurred or I would say a different word then what I waanted to say. My body felt so weak and fatigue and I hand tingling and numbness in legs and hands. The worst was  i layed in bed for four days with my face hurting and feeling like electrical shock going from head to toes. the feeling subsided after some days but i did go see my doctor who took one look at me and referred me to a neurologist. she also put me on high dose of b12.  The b12 seemed to help alot but i still had numbness and tingling.

I went the neurologist and she had me do an mri and some otheer tests. now this is where I'm at a loss. for four months i kept calling to get my results and either no one would call back or i was told no news is good news. So I kinda wrote it off but  i still wasnt feeling right so I just showed up at the neurologists office. I really didnt expect bed news cause no one had called me. She walks in and says 'she's not sure why no one called but I have a lesion on my left lobe' she kinda talked over it. like it was no big deal and maybe it was a mini stroke or ms. she didnt give much opinion or suggestions. i said what should i do and she said we could wait and in a year do another mri to see if there are more lesions. Well I'm like no! I'm not waiting a year. so she said she would order a spinal tap. I was told it would be at most a couple of weeks for them to get it set up. Its now been five weeks. I've called and left messages and no return call back.

I'm very frustrated. Almost feel like giving up. ugh. still have shock feeling at times,tingling and numbness
My questions are these...Should I see an MS specialist? Only having one lesion rule out MS? lesions and plaques the same thing?

[kwarendorf]

PS None of these issues had anything to do with my MS, which I didn't even know I had at the time :-)

[kwarendorf]

It seems as though the radiologist reading your studies was more suspicious of blood vessel issues than neurological ones.

I am a veteran of spinal stenosis and disk herniation. Either or both of these can cause the tingling and head to toe pain you describe. They did in my case. I was lucky with my herniated disk. It broke in half on its own. This relieved the pressure on the nerves and no further treatment was required. No so lucky with my stenosis. That needed surgery, but all of my tingling and pain went away...

Kyle

[hikinfool]

Thank you so much JJ! I'm going to take a deep breath, relax and try not to worry so much until I have further tests done :)  Appreciate your feedback.

[supermum_ms]

Hi there,

From what i understand which isn't much, the location of your lesion is one of the more common locations for ischemia. 'If' it was stroke related i'd be thinking because of it's size, it would be more along the line of a transient ischemic attack (TIA). Polyps in the maxillary sinuses are not related to MS or stroke, it's typically seen in people with allergies, asthma etc but mild spinal stenosis (C4-C6) and degenerative disc disease 'may' to some degree, actually explain any ongoing tingling etc.....sorry that's as much as I know.

Cheers.........JJ  

[hikinfool]

Hello all :)

Thank you so much for your advice/info. I did go into my neurologist office very frustrated. I ended up getting some answers. Alot more than my visit the last time.

According to my results it says There is a focal linear area of hyperintense T2/Flair signal abnormality in left corona radiata measuring at 9mm in length, possibly area of ischemia. Most other is normal.

On top of this I have mild spinal stenosis is C4-C6 and degeneration of discs along with cysts/polyps in the maxillary sinuses bilaterally.

She did not discuss the spinal stenosis nor cysts/polyps only vaguely discussed the lesion.

If it were not for the fact that I have symptoms on a regular basis and some days so much worse than others...I would not be so concerned however with this being ongoing and getting these results I'm wondering what to do.

I did make another appointment with her for a week from now and I do have appointments made for a spinal tap and neuro psych evaluation.

Once again thank you so much to all of you. This has been a bit of a scary time for me and it means so much to me to get your feedback. I've read each comment and taken it into consideration.

I hope all of you are doing well and I wish I could have elaborated more on my first post. however my computer crashed and was writing off my tablet...which is never to fun for me :)