sleep, sleep and more sleep :(

[LATW]

For me the worst part of MS, right now, is the sleep I need.  I am grateful I am able to sleep when I need it, but I am not getting much done!

LA

[Sumanadevii]

Winter has not been kind to me.  When I get cold I shiver,  It makes my fatigue worse,  I am due for my steroid infusion today and tomorrow,  I hope it helps with the fatigue,  I am lucky that this is only the second time fatigue has come to visit this severe,

[LATW]

Good point Lulu. I would not be hard on them.  I would be running around doing what I could for them.  My husband is a really sweet guy.  He does all he can for me.

I want to go to bed right now! :)


MCBCON - the cold is almost worse than the heat. I get really stiff when I get cold.  Wonder if that is true for others???

[Lulu54]

Ahhh, guilt.  Our own worst enemy.

What can you do to overcome the feeling of guilt ---- your body needs the rest.  You have a serious illness.  If this were your husband or one of your children and they needed an extreme amount of rest, would you be so hard on them?

Please rest and give yourself permission to do so.  We can be our own worst enemy.

be well, Lulu

[MCBCON]

Winter is better only for certain symptoms.  Cold is a stress as well as heat.

[LATW]

Before I started the meds for trigeminal neuralgia, low back pain, and leg spasms I also had a terrible time sleeping.

Pain was the major reason for my lack of sleep.

I am on 7 medications right now not including my tysabri.

I am very grateful I can sleep when needed.

More grateful I have the meds that control my pain and discomfort enough to allow me to sleep!

But the amount of sleep I need keeps me from getting every thing done that needs to be done and I feel guilty.

I need a ridiculous amount right now.


LA

[socrates2k1]

Yeah, I know "they say", Winter is suppose to be easier, symptom wise, but my body sure doesn't get that message.  I'm extremely fatigued, with my MS hug, to boot.
I know, there are things I really want to get done, but I just don't have the energy, to accomplish any of it.

On top of this, I have a difficult time sleeping.  I "go to bed", but lay there for hours, praying I will go to sleep, but don't.  Then you think about, all the things you could have accomplished, during those hours, you simply laid in bed, trying to fall asleep.  Most nights, I may get, 2 to 3 hours, of actual sleep.  Yes, I know, I need 8 or more hours, but my body doesn't like to cooperate.  Then, there are "exception days", as I call them, when I do the opposite, and get 13 or more hours sleep, maybe once every 10 days or so.

The only actual "MS med.", I'm on is Rebif.

So, I can understand your situation, and life must go on, and does.

-- Socrates2k1

[LATW]

I am on a lot of meds to help with my symptoms.  I know that adds to the sleepyness.  I was sleeping a lot before my diagnosis too.  I could sleep all day if I had nothing else to do.

Good thing I have a husband and kids!  I have problems with computer use because my eyes start to go crazy on me.  

I just started Tysabri so maybe that will help.  I am hanging in there and doing what needs to be done.  

I sleep and do the things I need to do right after I wake up.  I seem to have a burst of energy and then I crash again.  But it is the way my life is.  No one by me is complaining.  

LA

[MCBCON]

Sleep is a funny thing.  Seems that the need for sleep and sleep's demands come too often when life wants one's attentions for other things.

[huff1711]

Be thankful you can sleep. Between all the medicines I'm on I can't fall asleep. I literally toss and turn for 3 plus hours every night. I'd be welcome to trade you. But being tired all the time does get old after awhile I know, like Alex said, hang in there.

Chad

[HVAC]

Do what you can and do not be hard on yourself it takes too much energy. A lot of my meds make me sleepy. I have to decide whether I want energy or symptoms. Hang in there.

Alex