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640347 tn?1228533326

spinal tap

I had a spinal tap done years ago but Dr said there is no fluid comming out    maybe justa small drop so  they tell me it is inconclusive..Has anyone  ever   had same things happening  . was diagnosed with stroke or MS before and  going crazy not knowing  
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640347 tn?1228533326
has   anyone had any of these nights where  your toes    feels like pens and needles feeling then it works it self  up  to the head  while in bed  and then   have feeling as  someone  strapped some  weights   unto your legs     plus  your whole body feels as  you are sinking into the mattress feeling?  I cant wait untill  the 28th to see my neurologist. Been  up all night and  still having some pens and needles feeling but not asbad as  night time..
Helpful - 0
640347 tn?1228533326
Yep the heat intolereance sounds like me for real.I dont like  even my legs or anything touching me  or husband  hugging me at nights.. I also   have my feet hanging out of blankets or my whole body then when get cold i cover  my feet  then as soon as they get warm i have to uncover them or   my whole body as well. I  go see Neurologist October 28th.  My whole body   was  like pens and needles everywhere i was sooooooo miserable. cant wait to see whats going on..
Hugs
Helpful - 0
429700 tn?1308007823
No, you can have a normal eye exam and still have MS.  This also doesn't mean that you didn't or don't have optic neuritis.  Many times problems with the optic nerve aren't found when the doctor dialates your eyes.  You can still have optic neuritis.  

Heat intolerance is a problem with many people with MS.  I'm getting more intolerant of it, it seems.  Just this year, I've noticed that I can't stand long sleeves because it makes me feel like my arms are on fire they burn so badly.  Yikes, even the warm of my husband's hands when he hold my hand is intolerable!

I agree with Rena, you must get into to see a neurologist--hopefully an MS specialist ASAP.  If you have MS, you need to be on disease modifying drugs.  

Hugs, Deb
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640347 tn?1228533326
I want to ask   though   about   i went  to  an eye  dr  which  does  the  dialating the pupils  and  she said  everything is  fine  but  againg    and  said no sign for    damages  or   ms or anything  .  does that mean   i dont have ms ?  and also  what  is  symptome  for heat tolerance? i am  not  sure if i have that or not.  I know i cant handle being in the  hot    or i would pass out sometimes  or feel sick inside..  
Thanks again for all of you. Your the best
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Avatar universal
When the doc did mine in 2001, he did one right after the other and on the second one he hit fluid.

I felt like ole Jed Clampett!

Good luck with it, Cheryl.   I know they can be scary with the pain and the potential headache and all.

I will keep you in my prayers.

Richard
OperaMBA
Helpful - 0
620048 tn?1358018235
Oh, by the way, i just ha a swallowing test.  My c-scan showed an infection in my lung or chest. And i have the same problems with swallowing, exactly the same.  I have had a hiatal hernia and acid reflux for years also. i should get my results tomorrow evening.  

go figure...meg
Helpful - 0
620048 tn?1358018235
Hi and welcome to this forum, everyone is so very helpful and even when i think i am not making sense and i am new here as well.  I was going to suggest that you ask your prior Dr's for your records and you new Dr can also request them.

You know about 6 yrs ago i was diagnosed with a stroke, and not long after that my cardiolgist told me he saw lesions in my mri and sent me to a Neuro., i did go but the neuro talked me out of it, saying i was too young.  This year my DR. saw it also and with all my other symptoms he sending me to an MS Clinic.  Now my "so-called" stroke
started with vertigo and i ended up on the floor not eing able to stand up and vomiting all over...that was all they really had to go on and the mri...so think that it was not a stroke at all but possibly a mri attack, just my opinion.

And all of your symptom mimic mine and probably more so please stay here and talk with us.  I know we are not dr's and dont tel you what to do but can help you with choices.  I would see a neuro if i were you and let him knowof your symptoms,,,can you tell us where you are located?

hugs, meg
Helpful - 0
640347 tn?1228533326
I am going to  find a  Dr here   to whom i can  feel comfotable with  and  have   the Dr  get me into a neaurologist my husband is going to see  what dr will take  his insurance here in Melbourne Florida.  i was diagnosed  with stoke or MS in 1997. I really appreciate all of you here  being there  for me and for each other and i am glad i found this  web sight. I  felt alone in this and my family   or husband  does not   understand   way i feel  or going through they seem to think i am    going over board on  way i feeling at times..Richard  on your second attempt  they did  did  the Drs get anything out that time? I am  so  scared to do it again due to having a severe headache for   days after it was done on me. And hope  that you too can find out what is going on i know it  is  really hard not knowing  what it is you have. and good luck to you as well..
I was wondering maybe if i could get  the  results from where i was diagnosed at   to call the  hospiital where i was at and have them send it to me or have Drs  get it  along with the neaurologist i went to..  HUGS to all of you as well
Helpful - 0
Avatar universal
I did have a spinal tap done in the hospital in 2001 with no flouroscope.   The first attempt he didn't get any fluid, so he had to do a second attempt at a different vertabra.

I have a lot of the symptoms that you describe and I too am in limboland.

Good luck with finding a good neurologist and with getting a diagnosis.

Richard
OperaMBA
Helpful - 0
335728 tn?1331414412
Hi there and thanks for elaborating on the symptoms you have been having my dear!  First of all, I think it would be in your best interest to look at some of the Health Pages that we have in the upper right hand corner of this page.  There is an article in there call "My family doctor thinks I may have MS...what do I do now?".  This article will guide you through what the proper diagnostic steps should be taken when looking at a possible MS diagnosis.

You didn't mention how long ago it was that you were diagnosed with either a stroke or MS but regardless, you need to see a neurologist now and if you can see an MS Specialist you will be even better off.  You also didn't mention where you are living...if you are in Canada you will need a referral to a Neurologist but you would be able to pretty much pick and choose if you are in the U.S.A. I guess.  

Cheryl...after reading all of your symptoms which by the way could possibly be related to MS, I feel that you need to see a Neurologist as soon as you can ok?  You should have a full Neurological workup including a physical exam, MRI, Lumbar Puncture and possibly some evoked response testing.  If you are diagnosed with MS "again" you should probably be on the disease modifying drugs that have proven to be very valuable in slowing the progression of the disease.  I am not a physician but when I compare your symptoms to others that have a diagnosis, I think it possible that you may indeed have MS and if you do you need to seek out the help of a doctor that specializes in MS.  If you can find the copy of the MRI that you had when you were "diagnosed" with MS or a stroke, they would be incredibly valuable as then the neurologist would have something to compare a new MRI to and this would show clearly if there is a change since the last MRI.  

I hope that I have been of some help to you Cheryl...please try to get in to see a neurologist as soon as you can ok and also look at the information in the Health Pages.  A journey to a diagnosis of MS can be a very long one but the most important thing we have found is that if we are educated in what we are looking for we can be our own best advocate to ensure our own care.  If after looking at these pages you have questions, don't be afraid to ask...how else can one learn without asking questions.  We are here for you Cheryl 24/7, and we will help in any way we can ok?  Please let us know what you are going to do next and we will guide you through your journey ok?

Lots of Hugs,

Rena
Helpful - 0
640347 tn?1228533326
Thanks everyone

I also forgot   these other symptoms i have
   a band feeling around my head
when sometimes i eat  i cant swollow my food then i start wheezing sound   or gasping  trying to swollow it   even sometimes  i cant swollow my saliva.
i sometimes feel as i am having a heart attack   but when i go to hosppital from  when i have these attacks  they tell me my heart is fine but blood pressure  was   very high. I am on meds for it  and it is  normal range.And my small toe on right twitches.Again thanks for everyone  understanding me
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195469 tn?1388322888
members...hopefully you can chime in and help Cheryl to better understand what may be going on.  I know that we are not doctors and cannot diagnose anything on line, but many members could possibly relate to Cheryl's symptoms and offer her some clues.
Helpful - 0
640347 tn?1228533326
Thanks for your replys and your help  .
here is my symptoms  but i will try to  put all i can.
Fatigue so bad some times i can not even have energy to walk and i can take  up to 4 naps ,  tingling  and  numbness in feet  and hands. hands and feet gets cold easily . legs  feels like i have weights in my legs. forget things, poor memory and cummunication  skills. and  sometimes   when i am walking  in  the store or wherever   my  right  foot  gets   to feeling  weak and heavy like so i have to shuffle my  foot. i have floaters and  sometimes  i feel as i am seeing   fog  look  as i  thought maybe  something is  burning but  nothing is.i do have  curviture of the spine   and bad posture . this is kind of  embarrasing  but when i   feel  the need to  go to restroom i can sit there  and it takes time  to come and  sometimes i can just  go  but  as soon as i feel i am done  and i stand up i go again  and sit   some  comes out and sometimes it takes a while to come out again so all i do is  sit , stand  and  repeat.  then finally i   am done and when i seem to wash my hands i dribble  some  which is so embarrasing to me..  Before i had  this stoke or MS  i had   one  time i was in pain all over i could not   walk  or anything i had to climb  up the stairs  and  scoot down    test came out abnormal at that time  but they were not sure what it  is.  there were  times  but it has been a while when it happened is  while i am eating  or have  an object in my hand  my hand looses grip and  i cant  hold on to it  so i have to use my other haand to helo  the hand i use  to  lift my hand  up.. i get lightheaded alot. have   acid reflux.mood swings.    after i had the stroke or MS i did  go see   a Neurologist and a neuropsycoligst or however  you spell it.    but i had to stop going to   insurance problems and also   i got married and  we moved alot  from state to state  due to my husbands work    .    so i had to see different   Drs when i could   but now settled  for   another year or so and seeing  thid  Dr  but i dont feel comfortable with him    when   i had to go see him for an uper resperatory  infection he asked me    whet is all my  sypmptoms  he looks at me like i am crazy or something   i told him i was diagnosed with a  stoke or ms  but seems like  it is nothing to be conserned about  but he did say thats bad i dont know what i have or had isnt it. i did have copies from my MRI and neuropsycholist  but i seem to  misplace them somewhere  due to moving. there  are some i could tell you of my symptoms    and again thanks for your support.    
Helpful - 0
429700 tn?1308007823
I was to echo exactly what Rena said.  There's a lot of people in Limbo Land and some that aren't that have gone through similar experiences that can lend an ear or even help give you some guidance as to steps you can take.

Maybe you can make a list of symptoms (my list is long, too, don't worry about that) that you have and tell us a little bit about what you know of the tests that you've had.  

Do you have copies of the results of your MRIs or spinal tap?  You may learn some interesting things from those reports and it always helps when you want to change doctors or get second opinions.  

Are you seeing a neurologist?

Hugs,
Deb  
Helpful - 0
335728 tn?1331414412
Hi there and Welcome to the MS forum!  I feel like you have something to tell us and believe me...nobody's story is too long!  You need to know that we are here to support you and for us to be able to do that we need to know pretty much the whole story.  If you are comfortable telling us of your symptoms and your tests, we may be able to help you find the right direction to take to find a cause for those symptoms.  

We have a great group of people here that have been through a lot and through our combined experiences, we have gleaned a lot of knowledge on the subject of MS.  If you look at the Health Pages at the top right hand corner you will get an idea of what we have to offer.

Please take the time to explain your situation in detail Cheryl...we are here to listen, we are here to help and we are here to guide you in the direction of a diagnosis for your symptoms ok?  Don't be shy...we are all friendly here and we don't judge people...we will take you as you are and wrap our cyber arms around you and provide all the support we can muster ok?

Lots of Hugs,

Rena
Helpful - 0
640347 tn?1228533326
I had a spinal tap  done   due to was diagnosed with either a stoke or MS. After  whatever i had  i was  still having alot of problems like  tingling in my  feet and hands and   still having this  with many other things   like  feeling so tired  no energy at all still today  and tingly feet and hands. Sometimes having hard time swolloing foods like i should i either start coughing or make a weezing or gasping while i eat at times. Had many MRIs and   at times  there   was abnormalities on both sides of brain   or  maybe   somtimes  there is just a lttle  abnormality  so dr said nothing  to be real concerned    and some   MRIS that are fine so thats why they wanted to do the  spinal tap.  I have so many  symptoms  i could not even   tell you such it  to long to put all i have wrong..
just tired being confused  on whats wrong..
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195469 tn?1388322888
Hi Cheryl and welcome to the MS forum.

I frankly have never heard of them not being able to get a good sample of spinal fluid.  But I am sure if the doctor is not quite in the right spinal space, that could happen.

What did the doctor's do a spinal tap for?  What where they looking for?

I hope that you will tell us more of your story, so we can offer some help and guidance.  You've come to the right place for support.

Please tell us more about your symptoms and what lead to the spinal tap?

All the Best,
Heather

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