has anyone had any of these nights where your toes feels like pens and needles feeling then it works it self up to the head while in bed and then have feeling as someone strapped some weights unto your legs plus your whole body feels as you are sinking into the mattress feeling? I cant wait untill the 28th to see my neurologist. Been up all night and still having some pens and needles feeling but not asbad as night time..
Yep the heat intolereance sounds like me for real.I dont like even my legs or anything touching me or husband hugging me at nights.. I also have my feet hanging out of blankets or my whole body then when get cold i cover my feet then as soon as they get warm i have to uncover them or my whole body as well. I go see Neurologist October 28th. My whole body was like pens and needles everywhere i was sooooooo miserable. cant wait to see whats going on..
Hugs
No, you can have a normal eye exam and still have MS. This also doesn't mean that you didn't or don't have optic neuritis. Many times problems with the optic nerve aren't found when the doctor dialates your eyes. You can still have optic neuritis.
Heat intolerance is a problem with many people with MS. I'm getting more intolerant of it, it seems. Just this year, I've noticed that I can't stand long sleeves because it makes me feel like my arms are on fire they burn so badly. Yikes, even the warm of my husband's hands when he hold my hand is intolerable!
I agree with Rena, you must get into to see a neurologist--hopefully an MS specialist ASAP. If you have MS, you need to be on disease modifying drugs.
Hugs, Deb
I want to ask though about i went to an eye dr which does the dialating the pupils and she said everything is fine but againg and said no sign for damages or ms or anything . does that mean i dont have ms ? and also what is symptome for heat tolerance? i am not sure if i have that or not. I know i cant handle being in the hot or i would pass out sometimes or feel sick inside..
Thanks again for all of you. Your the best
When the doc did mine in 2001, he did one right after the other and on the second one he hit fluid.
I felt like ole Jed Clampett!
Good luck with it, Cheryl. I know they can be scary with the pain and the potential headache and all.
I will keep you in my prayers.
Richard
OperaMBA
Oh, by the way, i just ha a swallowing test. My c-scan showed an infection in my lung or chest. And i have the same problems with swallowing, exactly the same. I have had a hiatal hernia and acid reflux for years also. i should get my results tomorrow evening.
go figure...meg
Hi and welcome to this forum, everyone is so very helpful and even when i think i am not making sense and i am new here as well. I was going to suggest that you ask your prior Dr's for your records and you new Dr can also request them.
You know about 6 yrs ago i was diagnosed with a stroke, and not long after that my cardiolgist told me he saw lesions in my mri and sent me to a Neuro., i did go but the neuro talked me out of it, saying i was too young. This year my DR. saw it also and with all my other symptoms he sending me to an MS Clinic. Now my "so-called" stroke
started with vertigo and i ended up on the floor not eing able to stand up and vomiting all over...that was all they really had to go on and the mri...so think that it was not a stroke at all but possibly a mri attack, just my opinion.
And all of your symptom mimic mine and probably more so please stay here and talk with us. I know we are not dr's and dont tel you what to do but can help you with choices. I would see a neuro if i were you and let him knowof your symptoms,,,can you tell us where you are located?
hugs, meg
I am going to find a Dr here to whom i can feel comfotable with and have the Dr get me into a neaurologist my husband is going to see what dr will take his insurance here in Melbourne Florida. i was diagnosed with stoke or MS in 1997. I really appreciate all of you here being there for me and for each other and i am glad i found this web sight. I felt alone in this and my family or husband does not understand way i feel or going through they seem to think i am going over board on way i feeling at times..Richard on your second attempt they did did the Drs get anything out that time? I am so scared to do it again due to having a severe headache for days after it was done on me. And hope that you too can find out what is going on i know it is really hard not knowing what it is you have. and good luck to you as well..
I was wondering maybe if i could get the results from where i was diagnosed at to call the hospiital where i was at and have them send it to me or have Drs get it along with the neaurologist i went to.. HUGS to all of you as well
I did have a spinal tap done in the hospital in 2001 with no flouroscope. The first attempt he didn't get any fluid, so he had to do a second attempt at a different vertabra.
I have a lot of the symptoms that you describe and I too am in limboland.
Good luck with finding a good neurologist and with getting a diagnosis.
Richard
OperaMBA
Hi there and thanks for elaborating on the symptoms you have been having my dear! First of all, I think it would be in your best interest to look at some of the Health Pages that we have in the upper right hand corner of this page. There is an article in there call "My family doctor thinks I may have MS...what do I do now?". This article will guide you through what the proper diagnostic steps should be taken when looking at a possible MS diagnosis.
You didn't mention how long ago it was that you were diagnosed with either a stroke or MS but regardless, you need to see a neurologist now and if you can see an MS Specialist you will be even better off. You also didn't mention where you are living...if you are in Canada you will need a referral to a Neurologist but you would be able to pretty much pick and choose if you are in the U.S.A. I guess.
Cheryl...after reading all of your symptoms which by the way could possibly be related to MS, I feel that you need to see a Neurologist as soon as you can ok? You should have a full Neurological workup including a physical exam, MRI, Lumbar Puncture and possibly some evoked response testing. If you are diagnosed with MS "again" you should probably be on the disease modifying drugs that have proven to be very valuable in slowing the progression of the disease. I am not a physician but when I compare your symptoms to others that have a diagnosis, I think it possible that you may indeed have MS and if you do you need to seek out the help of a doctor that specializes in MS. If you can find the copy of the MRI that you had when you were "diagnosed" with MS or a stroke, they would be incredibly valuable as then the neurologist would have something to compare a new MRI to and this would show clearly if there is a change since the last MRI.
I hope that I have been of some help to you Cheryl...please try to get in to see a neurologist as soon as you can ok and also look at the information in the Health Pages. A journey to a diagnosis of MS can be a very long one but the most important thing we have found is that if we are educated in what we are looking for we can be our own best advocate to ensure our own care. If after looking at these pages you have questions, don't be afraid to ask...how else can one learn without asking questions. We are here for you Cheryl 24/7, and we will help in any way we can ok? Please let us know what you are going to do next and we will guide you through your journey ok?
Lots of Hugs,
Rena
Thanks everyone
I also forgot these other symptoms i have
a band feeling around my head
when sometimes i eat i cant swollow my food then i start wheezing sound or gasping trying to swollow it even sometimes i cant swollow my saliva.
i sometimes feel as i am having a heart attack but when i go to hosppital from when i have these attacks they tell me my heart is fine but blood pressure was very high. I am on meds for it and it is normal range.And my small toe on right twitches.Again thanks for everyone understanding me
members...hopefully you can chime in and help Cheryl to better understand what may be going on. I know that we are not doctors and cannot diagnose anything on line, but many members could possibly relate to Cheryl's symptoms and offer her some clues.
Thanks for your replys and your help .
here is my symptoms but i will try to put all i can.
Fatigue so bad some times i can not even have energy to walk and i can take up to 4 naps , tingling and numbness in feet and hands. hands and feet gets cold easily . legs feels like i have weights in my legs. forget things, poor memory and cummunication skills. and sometimes when i am walking in the store or wherever my right foot gets to feeling weak and heavy like so i have to shuffle my foot. i have floaters and sometimes i feel as i am seeing fog look as i thought maybe something is burning but nothing is.i do have curviture of the spine and bad posture . this is kind of embarrasing but when i feel the need to go to restroom i can sit there and it takes time to come and sometimes i can just go but as soon as i feel i am done and i stand up i go again and sit some comes out and sometimes it takes a while to come out again so all i do is sit , stand and repeat. then finally i am done and when i seem to wash my hands i dribble some which is so embarrasing to me.. Before i had this stoke or MS i had one time i was in pain all over i could not walk or anything i had to climb up the stairs and scoot down test came out abnormal at that time but they were not sure what it is. there were times but it has been a while when it happened is while i am eating or have an object in my hand my hand looses grip and i cant hold on to it so i have to use my other haand to helo the hand i use to lift my hand up.. i get lightheaded alot. have acid reflux.mood swings. after i had the stroke or MS i did go see a Neurologist and a neuropsycoligst or however you spell it. but i had to stop going to insurance problems and also i got married and we moved alot from state to state due to my husbands work . so i had to see different Drs when i could but now settled for another year or so and seeing thid Dr but i dont feel comfortable with him when i had to go see him for an uper resperatory infection he asked me whet is all my sypmptoms he looks at me like i am crazy or something i told him i was diagnosed with a stoke or ms but seems like it is nothing to be conserned about but he did say thats bad i dont know what i have or had isnt it. i did have copies from my MRI and neuropsycholist but i seem to misplace them somewhere due to moving. there are some i could tell you of my symptoms and again thanks for your support.
I was to echo exactly what Rena said. There's a lot of people in Limbo Land and some that aren't that have gone through similar experiences that can lend an ear or even help give you some guidance as to steps you can take.
Maybe you can make a list of symptoms (my list is long, too, don't worry about that) that you have and tell us a little bit about what you know of the tests that you've had.
Do you have copies of the results of your MRIs or spinal tap? You may learn some interesting things from those reports and it always helps when you want to change doctors or get second opinions.
Are you seeing a neurologist?
Hugs,
Deb
Hi there and Welcome to the MS forum! I feel like you have something to tell us and believe me...nobody's story is too long! You need to know that we are here to support you and for us to be able to do that we need to know pretty much the whole story. If you are comfortable telling us of your symptoms and your tests, we may be able to help you find the right direction to take to find a cause for those symptoms.
We have a great group of people here that have been through a lot and through our combined experiences, we have gleaned a lot of knowledge on the subject of MS. If you look at the Health Pages at the top right hand corner you will get an idea of what we have to offer.
Please take the time to explain your situation in detail Cheryl...we are here to listen, we are here to help and we are here to guide you in the direction of a diagnosis for your symptoms ok? Don't be shy...we are all friendly here and we don't judge people...we will take you as you are and wrap our cyber arms around you and provide all the support we can muster ok?
Lots of Hugs,
Rena
I had a spinal tap done due to was diagnosed with either a stoke or MS. After whatever i had i was still having alot of problems like tingling in my feet and hands and still having this with many other things like feeling so tired no energy at all still today and tingly feet and hands. Sometimes having hard time swolloing foods like i should i either start coughing or make a weezing or gasping while i eat at times. Had many MRIs and at times there was abnormalities on both sides of brain or maybe somtimes there is just a lttle abnormality so dr said nothing to be real concerned and some MRIS that are fine so thats why they wanted to do the spinal tap. I have so many symptoms i could not even tell you such it to long to put all i have wrong..
just tired being confused on whats wrong..
Hi Cheryl and welcome to the MS forum.
I frankly have never heard of them not being able to get a good sample of spinal fluid. But I am sure if the doctor is not quite in the right spinal space, that could happen.
What did the doctor's do a spinal tap for? What where they looking for?
I hope that you will tell us more of your story, so we can offer some help and guidance. You've come to the right place for support.
Please tell us more about your symptoms and what lead to the spinal tap?
All the Best,
Heather