I had this same sensation for about 3 months and finally had to go to the doc because it became so distracting. I also had a large oblong knot at the base of my rib cage on the left side of my back. After some xrays my doc said that I had a kink in my colon on the left side which had caused bowel to back up in the colon area across the top of my stomach. It was so bad that the "knot" on my back was actualy my ribs being displaced from the "backup." I was still having normal bowel movements so I never considered that I was seriously constipated. Doc's diagnosis was to take benefiber daily but to start with 3tbls of mike of magnesia daily for a week and I was also prescribed dicyclomine 20 mgs. 3x a day. Doc said that I had a least 10lbs of bowel backed up. My only symptom was the strange fluttering -crawling sensation which was explained as my colon trying to spasm but could not fully because of the problem. Hope this helps.
In my rib pain post, I mentioned a "rolling twitch" in my left side . . . I think we are talking about the same type of sensation. Relaying this type of symptom to the doc is always interesting. I'm never quite sure how to describe some of these oddities : )
Sherry
HI Hbananas
thanks for the reply .yes I do have TMJ and FM .I was dx with FM 12years ago .
TMJ 7yrs .I also have grand -mal eliepsy always spell that wrong And lots of other things ,but you learn to live with these things .there are worst people off than me
thanks tmj
Hi silverdawn
thanks for the reply .you described it perfectly .
I am so glad I am not going mad .althought my family
might disagree.lol ,these little green aliens invading my body
thanks tmj
My first symptom that I can recall was a waist creepy-crawley. It was like I had my cell phone clipped to my waistband and it was ringing on vibrate, but I didn't even have it with me.
Do you have TMJ and fibromyalgia, by any chance?
Holly
To Heather
thank you for your reply .I was not sure about mentioning this
when I have my next hospital appt ,as I thought for sure the men in
white coats would be difinalty waiting !!!!!!!!!!!!!!!!!!!!!!!!!!!!!.but now I know
what it is I will tell the DR.I seem to be getting very senstive skin
my arm itched and I only rubbed it gently but it felt like rough sandpaper
on my skin and was really painful .I have a great DH but I sometimes feel like all I talk about are my many smyptons .I would just like to know what is going on in body as I am
still in limboland
thank you very much
tmjfibro
Yup, have had that sensation on and off for years. Not painful, just distracting. Sometimes feels like bugs crawling, or fluttering across the skin.
I have had this feeling, but I would describe it as a creepy, crawling sensation. I have alot of sensory symptoms in my course of MS, so I am never surprised when I get one of these sensations anywhere in my body. If I told everyone everything I actually feel and where, they would probably put me in a straight jacket.
So yes, I totally understand this feeling you are having. This was in fact one of my first symptoms, including total numbness in my right torso, that made me seek out a Neurologist, in the first place.
Heather