strange symptoms

[brkat03]

Nice to meet you all. My name is Kathy. Honestly I joined this group to try to find someone with some similar problems as mine. I have been diagnosed with a seizure disorder that affects my ability to speak and reason and leaves me severely disoriented. In minutes I can turn from a normal person to someone who appears mentally retarded. The affects of the so called seizure can last from hours to days and when it wears off I am fine again. It has been happening so frequently it's disrupting my life and my work. Stress, weather changes, fatigue, not eating enough, alcohol and caffeine are some of the triggers. A psychiatric evaluation assured me this is not psychiatric. I have swollen joints and fatigue, weakness, stomache trouble, menstrual disorders and a whole myriad of unexplained symtoms. Tests for Lupus, rheumatoid arthritis and Lyme disease all came back negative and I'm at my witt's end searching for answers. I don't want to just settle for a diagnosis for a seizure disorder when I feel so sick. There are times it is in remission and I feel fine even for months. I have a positive lupus anticoagulant but negative ANA and elevated eosiniphils. I just don't know where to get help anymore because I don't know what's causing it. I'd appreciate any ideas anybody may have

[dreamyeyes]

up

[Heather3418]

Your question is complicated, but of course, welcome.  I hope that our resident, retired doctor (Quix) can get a chance to take a look at your question and give you suggestions or opinions.  She is much more qualified that I, to try to sort out the symptoms.  Your questions are important and I know that you would want them answered by someone that has some medical knowledge behind their belt.

Hang in there...maybe Quix will drop in and see your post.  At least with me posting this, it will put your post at the top of the forum...if only for a little while...you have seen how fast this board moves.

Heather