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Multiple Sclerosis Community
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Avatar universal

subcortical deep periventricular white matter

my diagnosis was thought to be ms. the neuro doc stated it definitely is not ms. stated i need to tell my primary doc to get a blood test. findings was this. Increased t2 and flair signal identified in the deep periventricular and subcortical white matter regions bilaterally. one is also seen laterally in the left temporal lobe. What possibly does this means?. My head is so sore at the top and i am developing migraines daily. never got headaches. in 2003 I had a lumbar disc fusion. I developed arthritis in 1995. IT PROGRESSED QUICKLY.I know you cannot give me no answers. i just want some insight on my condition.
3 Responses
Avatar universal
Welcome Toliver....I can't give any answers because I too am in "limbo" as we say here, without a clear diagnosis.

I have learnt that migraines can cause white matter lesions (ischemic lesions). I have also learnt that some neurologists dismiss people and say "it's just migraines". I guess they don't get them, eh?

The other members in here are great at welcomes and offering advice, but as most of them are Americans and its nighttime there (I think) it might take a while for a good response.

But hang in there, you've come to the right place.

Only thing I can offer is I found high doses of magnesium chelated has reduced the frequency and severity of my migraines...

Cheers, chin up
Jemm (australia)
Avatar universal
Welcome.  I too am in limbo land.  I'm having similar battles with specialists.  Amazingly my PCP sent me for a lumbar MRI because of the lack of reflex in my left foot.  The MRI showed problems (no kidding, I've had 3 back operations at the L5S1 level).  So back to the neurosurgeon.  Amazingly the neurosurgeon is adamant that what shows on the MRI is not causing my problems.  He said it is either cervical spondylosis or MS.  (I didn't even mention MS he brought it up after testing my reflexes which are extremely hyperactive).  Tomorrow I have a follow up with the neurosurgeon for feed back on the cervical MRI.  So for me my neurosurgeon is ending up being my best advocate that this may be MS.  The neurologist said I couldn't possibly have MS.  I think the neurosurgeon trumps the neurologist.  You may want to consider another consult with the neurosurgeon who did your operation in 2003.  Best of luck.
198419 tn?1360245956
Hi Toliver31,

Welcome!  Going to hit you with a few questions, hope you don't mind....

What Dr. thought you had MS? And, if I'm understanding correctly, the next Dr., a Neuro, said it was not? I see you had MRIs done on your brain but MRIs are not the only factor when diagnosing MS. It is a clinical diagnosis, and results from tests support a diagnosis of MS.  We have great infomation on our health pages that describe it in detail and better than I could ever explain.  They are located toward the right hand corner of our website.  Hope you get the chance to read them.

No matter what, we are a very supportive bunch.  And, we will be here for you as you move forward.  Did you discuss your migraines with your Neuro? Did he or she offer you any diagnosis of any kind or any explanation of what you might be experiencing?

Again, welcome.  Hope to see you around,
Shell


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