swelling around my eyes

[Maks322]

I was recently diagnosed with MS.  The only symptoms that I have that my neuro hasn't see before is a eye that droops and a swelling I have around my eyes.  The eye is only slightly droopy (makes me look tired, but is permanent) and the swelling is random and comes and goes.  He has seen it happen to me while in his office.  Sometimes my other eye droops more than the original droopy eye, but it doesn't stay that way.  It's such a swelling that it has created creases in my forehead near my eyes.  I have seen a neuo opthomologist who says that nothing is wrong.  
Anyone seen anything like this before?

Thanks
Maureen

[Maks322]

Hi,
Yes, I have every blood work under the sun done (some twice).  I hope the swelling you have doesn't become an issue for you. In the past week and a half my eyelids have pushed my contact out (twice) and I have lost 2 very expensive contacts.
Thanks for your thoughts

[Maks322]

I find that very interesting, my eye is droopy, I have failed every field vision test given to me by my optometrist, but this one by this doctor I passed!  She was quite clear, no insurance company will pay for the surgery I need.
I found the whole visit odd.  You know when you are sitting there thinking this is such a waste of time! I waited 3 months for this visit.

I see my eyelid, normally, when I'm tired, or the end of the day, it's awful.  The swelling on around my eyes has caused 2 deep creases, sometimes I have creases, sometimes the swelling is so great, I have no creases at all.  I feel the area around my eyebrows is becoming permanent swollen as well.

I have an appointment with a Oculoplastic Surgeon. She will issue a different kind of field vision test.  This time I got smarter and made sure it wasn't first thing in the morning, when I feel best.

Maureen

[Corriel]

Hi, my neuro thought one of my eyelids seemed swollen and since it is the eye with the most vision issues, I was wondering if it was something to do with MS. He didn't seem overly concerned and it isn't bothering me so I'm just keeping it on my radar for now. I have had so many blood tests lately that if anything was up something would have shown up. It wouldn't hurt to get some tests done though if you haven't already had some, especially for thyroid function. Good luck and take care.

[twopack]

Several things can cause swelling around the eyes - allergies, kidney disease, hypothyroidism and infectious disease processes are a few things that come to mind right off.  Maybe the neuro-ophth meant that type of diagnostics aren't within her area of expertise?  Lots better ways to answer though....... for sure!  Maybe your primary needs to address the issue?

I had my eyelids surgically repaired years ago by an ophthalmic surgeon.  My insurance covered the cost when pictures offered proof that the drooping lids prevented me from having a clear field of vision.  I was younger than would be considered usual for it to be done for cosmetic reasons but I can't be certain it was caused by MS.  (It was years before my official diagnosis but years after the first lesions appeared on my MRI.)

[Maks322]

Honestly I asked her why it swells and it blew my mind when she answered "that's not my area of expertise". I thought then whose is it?  You are an Neuro-ophthalmology specialist.  Truthfully, I don't even she she believe it wasn't always that way.  She kept saying well do you have any pictures from before to prove it.  I don't carry pictures of myself and my license was brand new.

I would like to get the droopy eye fixed as it pushes my contacts and really makes my vision fuzzy.  Wearing glasses is tough with computer work in a dark room.  When I come out (with glasses) of the dark room into the light my vision becomes quite fuzzy.  But I need to know the cause first.  It could happen again

[doublevision1]

Swelling isnt typical in MS as far as I know.  If your neuro-ophtha is saying nothing is wrong, how does s/he explain why it's happening?

The eye droopiness, aka ptosis, can happen with MS.  I have a slight droop on one side that's worse when I'm tired.  The dx'ing neuro told me it's not uncommon in MS.  Don't know about when it happens on both sides at different times.  Mine is always on the same side.

Hopefully someone else with experience and/or knowledge about this will chime in.