this is what the neurologist said in his report

[angelbum31]

the patients mri scan is reported as showing two high signal lesions which are entirly non -specific . no other abnormality identified i would regard this scan as being within normal limits ??? still having terrible symptoms what now ??? thanks

[biowham]

Hi, legal--

If you go to the main page and click on the green Post a Question button, you can copy and paste the above into a brand new post. Then it will show up on the main page as a thread all your very own...and people will see it an be able to comment, etc., just for you.

Bio

[legalgirl5]

Hi...

Well your request to tell you why I ended up going in for a spinal MRI is a huge request!

I have been dealing with a multitude of issue for many years.  I always assumed it was just life or perhaps Diabetes (I have Type 1). I do have an A1C of 5.6 which I am proud of, thanks to my little pink pump!

I have always had vision problems such as double vision, no side vision and eye sight that came and went at will.  Not to mention eye and cheek pain. No eye specialist could ever figure it out, my dentist says all is good too.  

Then about 2000, I started have a squeezing or what I call the wash cloth wringing out feeling in my sternum area.  I thought it was GERD.  I have had three endoscopy (down the throat) and everything came back perfect.

In 2004 I developed spastisity in my left hip running towards my knee.  It became so bad I had to have help to walk.  I began taking steroid shots in my hip to no avail.  The bone doctor told me no more and he did not know how to help me.  
During this time frame I would get the squeeze from time to time and then the same issues would come back.

Last year I saw my primary doctor and we discussed the squeeze.  Due to the fact my specialist had ruled out GERD, heartburn and ulcers, she thought they might be heart attacks.  I was instructed to go to the hospital the next time.  Of course not too long after I was minding my own business, when it hit me like a truck.  My family called the ambulance and off to the hospital I went.  I had an EKG, Stress Tests and everything they could think of while I spent three days in the ICU.  I was sent home with everyone shaking their heads.

  Three days later or so...The hip began to act up.  I went for follow up with my Primary who sat in shock as my husband helped me walk into the room.  She sent me to a Rheumy who tested for Eppstein Barr, Rheumatroid arthritus, Lupus and Lyme.  In flusteration he said I have Fibromyalgia.  He took me off the Mirapex I had been taking for a couple of years for RLS.  He put me on Klonopan, that did nothing "good" for me.  

Now, I have to go back a few years.  When I was 15 years old I was ejected out of a jeep and received a TBI.  I have no other issues from it other than occasional jerks.

Anyway.....As soon as the Mirapex was out of my system I started having seizures.  When I went back to his office for an EMG I had a grand mal and he ushered me out of his office once I could walk.  Now, I had an appointment with a Neurologist.  

The neuro did an MRI brain scan without contrast and she could see the TBI,  I just found out between 6 and 8 lesions were also seen.  She said the other day they are indicative of MS.  I have now been on seizure meds for one year.

We went ahead and tested me for Myasthenia Gravis and I dont know what all.  The seizures have gotton better and I am no longer on Klonapan and my Neuro just put me back on Mirapex ( I am feeling a difference already).  I just had my follow up and she tested reflexes..we talked about my "tipping over" and falling, my new tremors, speech problems and loss of memory and hearing and a bunch of other stuff.

So she ordered an MRI of the entire spine.  She said she has to rule out a spinal injury but believes I have MS.  Now I waiting for my appointment date for an SSEP??  and after that she said she insists on an LP.  Oh ya...I also have urinary retnetion, urgency etc.  I also have a neuro-urologist who has me ISC all the time now.  I am also on meds for that.

I have a lot of problems with numbness and foot and leg spasms. I hope they figure this out soon...I am getting tired of paying the payroll for all of these "Ologists" I see.
Thanks for the reply.
Susie (legalgirl5)

P.S. I do not know how to post any other way than what I did on here..Any advice would be gratefully accepted!  I am really not computer illiterite!!  LOL

[biowham]

Hi, legalgirl5--

Could you take your info above and repost it as a new post? That way, more people will see it and respond.

As for reviewing your images, the MRI results in several different kinds of images, all of which will show white spots and other features that have nothing to do with pathology. The images of interest will be those taken using the FLAIR sequence or T2...spots showing up in the tissue on these images may be relevant, but you really need to be an expert to comment on that. I do not know what the numbers mean.

Can you tell us in your new post what took you in for the MRI in the first place?

Bio

[angelbum31]

http://www.radiologyassistant.nl/en/4556dea65db62  

this site may help ? take a look

[legalgirl5]

Hi..
A year ago I had a brain MRI without contrast.  Last week my Neuro told me that she had seen between 6 and 8 lesions that she believes are MS related.  Huh?  Why did I just learn that?
Anyway, she scheduled me for an new MRI with contrast of my "spine".  I had it done yesterday and they sent me home with the pictures on the disk.  There is no report or any other information on the disk.  I was told to give it to my Neuro.
Nosey me...I looked at it.  Now I am more confused.
What does a lesion look like?  I have so many "white" spots I cannot count them.  I have approx. 10-15 that glow.  I have others that are black with a glowing ring around them (kind of like an eye ball). Some of the pictures show dark areas in the dark areas but they are more noticeable.  Then...it seems like the photo's were enhanced because the white and black spots appear to be raised.  Some are round while others are oval in shape.  I have no idea what all of this means but additional information is: 1.5 T.
Then on several of the pictures they focus in on several areas with the following numbers: 1,4,7,10,13,16,19,22 then on another picture: 1,4,7,10, 13.  I might be talking a language no one knows (especially me) but thought I would see if anyone knows what it all means.  My Doctor did say at last appointment she "thinks" it is MS.  I am scheduled for an SSEP and coming soon an LP.
Thanks for the help in advance!
Susie

[angelbum31]

im not in a good way ! i just wondering whats going on ? i have not had any migraines since the age of 21 . that mri scan was taken on the nov 8th 2008 . yes they done the trigger points but i couldnt reall feel that ?  so 2 nd rhematologist said maybe fibro maybe cfs . i have had all tests ana rf bone scan bloods nothing was found in them . im seenig a neurologist again this coming monday cant wait ! godness how could anyone get so excited about seeing a doctor ? the shooting pains around 2 - 3 days then dissappear again . im having vision problems epecially when i look to the right out the window it takes a while for things to come in to focus also some dark faded patches dotted her and there in sight . im really finding it hard to explain whats going on i feel confused as well . my legs feel weak and body . my memory is like a sieve and congnitive abilites down the tubes . oh what am i to do ??? thanks for all the comments i appreciate it . x

[Quixotic1]

Hi, there.  I agree that this was a nonsensical report.  Having two hyperintense lesions is not normal at your age.  They may be due to having migraines, but they are NOT normal for age.  Neither are your problems.  It sounds like the early attacks - whatever they were - were very short in duration.  they sound like they might have been migraines.

Just because your lesions are small on the MRI, doesn't mean those are the only problems you have or that any symptoms you have will also be small.  It doesn't sound like your doctors are trying to put the whole picture together.   "Entirely nonspecific" means there is no clear cause for them.  It does NOT mean they are not important.  This seems to be a common misconception with doctors.

When was your MRI?  Do you still have migraines?  Was the fibromyalgia diagnosed using the tigger points?

Have they checked your thyroid, your B12, your ANA and such?  Have you been checked for leg weakness?

When you have the shotting pains, how many days in a row do you have them?

It does sound like you are having more and more symptoms that stick around almost all of the time.

It also seems like you are acquiring lots of diagnoses to explain your symptoms - Migraine, Fibromyalgia, Chronic Fatigue and ADD.  At some point they need to stop adding diagnoses and try to put the whole picture together.

Talking to people in the UK can be so frustrating, because it seems like the healthcare is so often hit and miss.  Have you seen a Neurologic Consultant?

Looking for your answers.

Quix

[angelbum31]

i have been having symptoms since i was teenager im now 30 years old . i had an attack when i was 14 face went numb and arm tingling sensetions also speech went funny back to front and vision problems doctor didnt know what it was give me some meds put me to bed next day was ok . then 9 months later another attack vision speech tingling this time i was walking around in mental confusion tried to lift a toilet physically tried to bite dads girlfriend admitted to hospital came alright again next day never told what it was . then started to get migraines and face pain 15 -21 years of age . then funny pains shooting tingling then came fatique bedded up for 2-3 weeks then alright again over the years im getting longer spells of being ill can last for months now ! neck pain bache ache tingling in feet and hands . also my feet ache all the time . my vision is blurry i feel lightheaded and a bit unsure on my feet i dont walk far as i have a heavy feeling in my legs . muscle spasms middle back shoulders tightness feeling in head neck and stiffness in hands and feet . the fatique unbearable . they said tiny lesion ?

[biowham]

Angelbum...That report is extremely sketchy. Where are the lesions? How large are they? What is their shape? What, exactly, does "entirely nonspecific" mean, anyway? Never seen that one before.

What are your symptoms? I'm sorry if you've posted that and I don't remember. What did your neuro say? Have you have a thorough neuro exam, and if so, was it normal or abnormal?

I can better answer your "what now" if you give a little more info.

Thanks,
Bio

[angelbum31]

can anyone shed any light for me on this