this place gives me hope

[bama88]

Well friends I lurk around a lot. Some of the stuff yall talk about is pig Latin to me hee hee. I'm new and am kinda shy. We ran all the tests just to have my Nero tell me....as suspected ms. Rrms. Mine comes and goes. When it comes its awful. I like it when it leaves. I don't miss it. I have an ignore button. Sometimes it doesn't work. Part of me does not accept this new diagnosis at all. And I am impatiently waiting for my second opinion.  As I am not that bothered daily by this yet...key word yet....any words of wisdom would help me. Any. Questions I should he asking...I'm lost.

Think of me as the one that is scared and really dosent want to know. I'm playing possom or being an ostrich. Head under sand. I hear words like slotting. And wonder what is that?? And do I want to be slotted?? I hear of words I not know. Pig Latin. Lol.
I am extremely nieve to this. And if I had it my way I'd stay this way forever. Or at least until I can wrap my mind around it.

Maybe its because of a friend that has it who is bed ridden. That one hits my soul. I say he gave up. Others have there own opinion. And I come here now and then for a peek. Just a peek. And see so many active ms people. And that gives me hope. So here I am peeking again. Please don't get mad at me if I watch and learn. I am known as Johnny five....need more input. I've picked up some books but have failed to read. Maybe I'm not ready yet. But that's another story.....please yelp me with questions to ask. I've never done this. What do I need to be concerned with durring my first visit with another doctor. Or do they lead. Help I'm lost

[rendean]

Hi Bama,

Please feel free to lurk. MANY people do this. In case, you aren't  totally familiar with the site, there are pages of information on a variety of subjects. These Health Pages can be found on the right side of the main page on the forum, just under the "Recent Activity" block.

The majority of these pages were written by one of our members, Quix, a retired pediatrician with MS. She doesn't come on often any more but her hard work and dedication to this site is what you see today. The pages not written by Quix were reviewed and read for any errors. They are a great source of information!!

Feel free to lurk and learn and know we are hear for any questions you may have.

Ren

[anon07072023]

Hi BAMA, It's OK to lurk around here and ask all the questions that you want.  BTW, my dad's side of the family is from Athens, AL.

If you haven't started them already, you should think about the disease modifying drugs - Copaxone, Rebif, Tysabri, etc.  Have you had a discussion, yet, about them with your neuro?  Also, if you have any types of lasting effects from your relapses, there are quite a few meds out there that can help - ie Baclofen for spasticity, Amantadine for fatigue, etc.

I always want to learn as much as I can about my disease.  Some people aren't like that. They'll just nibble a little bit here and there.

Good luck to you,
Kelly
  

[SarahL2491]

Hang in there Bana, its like learning to drive, if you only look at the crashes, you'll never turn the key in the ignition.

As others have said, educate yourself.  The more you learn, the more power you have to face it.

Or as someone wise once said, if you do the abnormal long enough, it becomes normal.

[DiannaKw]

Hi Johnny

First off, the way I see it, knowledge is power. The more you know about this disease, as with any other, the better prepared you will be to deal with its potential effect on your life.

Try to keep in mind that your MS is going to be as unique as you are - no two are alike. Your MS is not my MS, nor is it your friends MS.

I know it can be scary and overwhelming at first, as there is much to learn and a lot to absorb. But it's good to see that you're not allowing your diagnosis to consume you, and that you're getting on with your life, just so long as you're not in a state of denial. (That's not healthy)

No one here would ever dream of being mad at you for "watching and learning". In fact, I'm sure most would encourage you to do so, in addition to asking questions, and participating in the forum.  After all, that's what this place for!

To answer your questions, I have no idea what "slotting" is. Where or in what context did you hear this word? I have a feeling you could have just come across a random typo.  

As for your first visit with a specialist, it's been my experience that he/she will take the lead at first. But be proactive and take it upon yourself to learn as much as you can, and develop your own questions based on your research.

Here's a great link that goes to the heart of what you're grappling with:

http://www.everydayhealth.com/multiple-sclerosis/multiple-sclerosis-questions-to-ask-your-doctor.aspx

Good Luck

Dianna